About my journey to remission

Personal experiences with diet as a means of controling the symptoms of Microscopic Colitis and related issues, should be posted here.

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moremuscle
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About my journey to remission

Post by moremuscle »

I wrote the following a few days ago in response to a post by Roni. Roni's daughter, Emily who is only 17 has MC. Several people felt inspired by my story and encouraged that I list it here so you and others can read it too. If I may add a small side note to this post it would be that my journey was and is not as smooth and easy as it may appear from the text you are about to read. There were many ups and downs on the way - the general mood as far as I remember it was a feeling of deep catastrophy and fear - I cried in my lonelyness almost every day for 3 months before I came to some kind of peace with the perfect life I felt I had lost. The support group was my life line.
I hope you will enjoy the reading and feel inspired to help yourself. You can do it too!
Love, Karen
___________________________________________________________
Good Morning, Roni

You asked in another thread about my path to remission -was I aggressive from the start or did I start slowly.

I will try to find a response to this question on the old board and copy it into this thread but here is a short answer to your question.

I started GF in July of 2004. Three weeks later I started DF based on information from the GF Kitchen folks. I was GF/DF for a couple of months w/o getting significantly better so I was worried that changing my diet wasn't going to help. I remember asking over and over again how soon I should expect to see results?! I desperately wanted results - as you know, we feel very bad when we have symptoms. I was adviced to give the diet 6 months - after that if I still hadn't seen results perhaps I was reacting to additional triggers. I wasn't patient enough to wait 6 months for results - had D accidents all the time and just felt completely terrible; could not leave the house w/o having major problems etc.
After going dairy free I had tried some milk substitutes such as soy milk, rice milk, almond milk. I had terrible reactions to the soy milk. I also reacted to the rice- and almond milk - I attributed the reactions to the latter two to carrageenan because Polly had mentioned she reacts to that. So after discovering that I reacted to soy I started focusing on avoiding soy. I still had bad accidents and continuous rumbling and gas galore, explosive watery diarrhea. I decided that I would have to try to eliminate all the triggers that the MIers were avoiding in order to see if I would get better. I felt hopelessly inadequate in figuring out how to do that. I started reading the list of foods/derivatives to avoid when on a corn free diet and I quickly realized I could not begin to remember all those chemicals. It was very overwhelming. Nevertheless I asked myself the question: Do you want to be well or do you want to be sick? What you are doing now makes you sick, so if you want to be well, you have to do what the well people do. I was kind of feeling at a loss as to how to handle it and looked around for my MOMMY - she wasn't there and I thought to myself, Karen, you are a big girl now, you can do it!! If it takes a long time to figure it out, that's OK. If I make mistakes, that's OK, I will learn from them.....
IOW I gave myself a big pep talk and decided I was the only one who could make me well. I would take on the big MI-diet beginning NOW! and I did. It took me several weeks before I realized that the simplest way to do it right was to avoid premade things (things that come in boxes, bags, bottles, jars, etc.). When I read labels I put all things down that had more than 4 ingredients on the list. I went SIMPLE and BASIC. I bought fresh produce, period.
Approx 3 weeks after starting the MI diet (gf, df, sf, cf, yf) I went into remission and stayed in remission for 1 1/2 months. I sabotaged my own remission by introducing some foods that I later discovered were trigger foods too. After taking those out of my diet I have been in remission.

It was not necessary for me to eliminate all grains from my diet in order to go into remission. In fact the first remission was reached on eating large amounts of rice-meals that I cooked in my rice cooker. I added ground meat and sauteed vegetables to brown rice and cooked it in the rice cooker. I then stored the left overs in tupperware containers that I could take out of the fridg and reheat in the microwave oven. This made it easy and convenient. I ate the same meals 3-4 days in a row. Then I made another batch with a slightly different mix of veggies and meat and ate that for the next 3-4 days. For dinner I typically had steak, pork/lamb chops, hamburgers, flank steak, chicken with veggies and or salad and a baked potato.

Roni, this became long - hopefully it will give you some ideas and inspiration to keep working on Emily's diet.

I have a relatively driven or aggresive personality - it came in fairly handy in this case. However, I think you have an equally driven personality - you are extremely dedicated and hard working and I don't doubt for a second that you will find the way to bring relief for Emily. You are well on your way to succeed.

Don't forget to take good care of Emily's mother too :smile: She deserves a little tender love and care.

Love,
Karen
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Post by moremuscle »

It is now November 2005. I haven't read the above entry since I put it here but I want to add a few things to it since it is my hope that I will be an inspiration to you and others who are trying to figure out how to go into remission and stay in remission via dietary means.
It is also my hope that I will be an inspiration to those of you who are atheletes or who were serious exercisers before you began to experience MC. I remember how devastated I felt when my high powered body building/fitness program fell apart while I got sicker and sicker with MC in 2004 - I wasn't sure I was ever going to be able to exercise as hard or as often as I wished to again. My body was failing me, I thought. However, it was actually me who was failing my body as it turned out - I needed to figure out how to feed my body foods that it would accept and leave out all the types of food my body reacted poorly to. I began to think of those foods as poison for my body. It was clear to me that until I learned how to treat my body right it was going to rebel.

I am still in remission and I have been feeling fine and doing very well since the beginning of March 2005 w/o any relapses. I am convinced that I control my symptoms via my diet - there is no other explanation.

I eat free of gluten, dairy, soy, corn, and yeast and any/all derivatives of those. That's all I need in order to stay in remission.

The most important addition to my initial way to living symptom free came soon after I had gone into remission via the discovery of the socalled paleolithic diet, also often refered to as the caveman diet, or the stone-age diet. I read Loren Cordain, The Paleo Diet and I read Ray Audette, Neanderthin. Both of these books are very informative as well as easy to read - I highly recommend those books. There are also web-sites dedicated to the paleolithic diet and lifestyle; some are interactive. In the beginning I read a lot of the entries in one of the paleo-diet forums. For a long time now I have managed my diet independently and by way of sticking to the basics.

I have recently purchased Loren Cordain's newest book, Paleolithic diet for Atheletes. I am currently reading it. Much of his first book is repeated in it; but the book is geared toward improving your atheletic performance while being on the paleolithic diet. This is a twist that is especially interesting to me as I have been an avid exerciser for almost 5 years now. Recently my focus of interest has turned away from weight lifting (yes, I am female) more in direction of endurance running. I am 45 years old and I was never an athelete as a young person but I find that I enjoy exercising and being in good shape.

The paleo diet does not include any grains, dairy, or refined sugar. Thus I no longer eat rice or potatoes - something I used to eat frequently at the time of my transition from a diet full of processed foods to a trigger free diet. I went into remission while I was eating rice and potatoes on a daily basis so I don't think those foods are necessary to eliminate in order to achieve remission; however, I have chosen to try living w/o those items based on reading about the paleolithic diet and the theory behind it. Other factors that helped me decide the eliminate rice/potatoes and other grains from my diet were personal testimonies from several members of this forum that they experienced enhanced feelings of well being w/o grains in their diet.

One year ago in October 2004 I ran my first ever 5K race (that's 3.1 miles). I was barely capable of running that far at the time (I was still having symptoms and felt extremely tired and worn out most of the time; but I was slowly figuring out how to eat right).

During the past year I have made big strides in my atheletic abilities - this would not have been possible if I had not become symptom free. I am currently running approximately 15 miles per week; for my weekly long run I am able to run for 1 1/2 hour w/o a break; that's approximately 8-9 miles. I have joined a training group - we are going to train for a 1/2marathon which is 13.1 miles. I am going to train for the Myrtle Beach 1/2 marathon that takes place in February 2006. I am very excited about making this decision and the commitment to that goal. I think it will be a lot of fun (and hard work of course). I have already met with some of the folks in the group 2 times and run together with them - it is wonderful to run with other people and a real challenge as well; I am used to running solo all the time.

So here is to all of those atheletes out there with MC - take on the challenge of figuring out how to eat right just the way you would take on an athletic challenge. You will be able to get yourself right back on track and if Loren Cordain is right you will perform even better on the paleo diet than ever before. Isn't it great?!! It is downright unbelievable but it is true :smile:

Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
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Check out this site!

Post by harvest_table »

Hi Karen,

What a wonderful update on how your doing!

I'm busting at the seams here in sending you this link to a thread I know you will enjoy reading as much as I did. This is from an active diet forum "specifically" for Paleolithic and Neanderthin followers.

This threads topic is about athletes, but take a gander around the rest of the information in the Paleo/Neanthin forums. Have you seen this site before? I found it early this morning and have not been able to leave my computer- there is SO much HELPFUL information and such interesting conversations going on. This is an "ultimate" site for help with this diet with folks that are DOING IT.

Heres the link http://forum.lowcarber.org/showthread.p ... nextnewest

It appears to me so far, based on what I've read it's members are folks dieting to lose weight and I know first hand, it works!

I hope I'm not doing anything ilegal (now that I think about it) by posting this thread from another group? Take a peek when you get a chance and let me know what you think.

Thank you- your such an inspiration Karen. Happy Running!

Love,
Joanna
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Post by moremuscle »

Hi Joanna,

Thank you so much for drawing attention to that site - I have never run across it before. I looked at some of the discussions on the paleo/neanderthin part of the site - very interesting stuff. I need more time to browse there to see what inspires. Perhaps some new books we can read..........

Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
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Post by harvest_table »

Hi Karen,

Glad you were able to take a look. There is ALOT of stuff to review and I'm having a grand time.

I'm heading to the library shortly to pick up a book some were discussing called Lights Out: Sleep, Sugar and Survival by T.S. Wiley. It sounds interesting. Living in Alaska has made it challenging for me to sleep "consistantly" over the 14 years I've been here and it's probably taken more of a toll on me than I realize. Hoping to gain some insight from the book.

Happy Running!

Love,
Joanna
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Post by moremuscle »

Hi Joanna,

I saw the discussion on the book you mentioned - I will be curious to hear your review when you have read it.

I am into week 2 in my 1/2 marathon training program - I can hardly believe that I am saying this. That kind of distance used to make me react with disbelief when others talked about it - now I am in deep trouble LOL!!

I was sick last week - it was a stomach virus and I had diarrhea for 3 days. Lots of rumbling and some nausea - at one point I started to think that perhaps I was reacting to a food; but my kids had been sick and vomited a few days prior so I thought it was too much of a coinsidence that I be sick at the same time. I am feeling much better now that I am able to eat normally again. I've gotta eat a lot to have enough energy for the milage I am putting in and the intensity of the training.

I'll keep running and you take care!! See ya'!!

Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
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Post by moremuscle »

Jan 8, 2006 -

I have been in remission for a long time now - on the paleolithic diet. It is a wonderful diet full of delicious and healthy choices. I make all my meals by myself and enjoy eating without anxiety.

My focus has shifted away from my diet toward other things in life - such as family, I have two boys 7 and 10 and a husband. I also spend a great deal of time working in our little self employed mom and pop business. My big passion is running - I am deeply involved in training for the upcoming 1/2 marathon in Myrtle Beach, SC February 18. I have developed enough endurance to run 13.1 miles in one stretch now - and I have improved my 5K race pace. I ran a 5K on December 31, 2005 and finished first in my age group. I finished 1 of 10 in 25 minutes and 56 seconds. This broke my PR by almost 5 minutes. Of course I am a beginner so it is easy to improve but still - it's one heck of an improvement. I know it is due to the training I am receiving - it is very intense and I enjoy it tremendously. The best part is probably the company and running with others every Saturday - I look forward to ur Saturday morning workouts. However, I am also competitive and enjoy placing well in those local races.

Love,
Karen
(feeling lucky)

P.S. Diet is a big issue in sports - an athelete must eat well. I have an advantage over many other competitors in that respect since I already have such a good grip on eating with dicipline and being able to listen to my body.
Inspired by the paleolithic diet and lifestyle -
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Post by tex »

:thumbsup:

Excellent! Good luck on your upcoming marathon.

Love,
Wayne
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by starfire »

:grin: You truly are amazing, Karen, and I want to wish you well in your upcoming race. :grin:

Love, Shirley
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Post by Mars »

You should be mighty proud of yourself Karen! Thumbs up to you!

Keep up the good work!
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
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Post by moremuscle »

Thanks so much for all the well wishes - I need a good bit of wind in my sails when the day comes so I will be thinking of you guys on the day - you can do a lot of thinking while running that far.........
BTW, Wayne it's just a 1/2 marathon - that's enough for now.

Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
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Post by harvest_table »

Karen,

It's good to hear from you. I know you are very busy with the shop
and family as well as running- this upcoming race sounds so exciting.

Give it all you have and remember, we are a portion of the wind beneath your sail....so think of us while you are running.

Enjoy your health, and body. You go girl!

Love,
Joanna
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Post by moremuscle »

Hi Joanna,

You bet I will be thinking of you guys! I think of you all the time and I know why I am well and able to do anything at all - it is because of all the help I've received from you; there is no other explanation and fortunately that's all I need. I am like a purring kitten :cat:

W/o you guys I would still be a sick and sad story! :cry:

I will forever remember where the wind in my sail comes from.

Love,
Karen
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living w/o gluten, dairy, soy, corn, and yeast.
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Post by Polly »

Karen,

Isn't it amazing how far you have come? You are INCREDIBLE! I am following your marathon training with great interest and delight! So you can now run 13 mi! Three cheers for you!!! :cheerleader: :cheerleader: :cheerleader:

And you were first in your age group in the recent road race! :footprint:
Hurray! You are obviously in top form, and I can tell it agrees with you. You sound so upbeat and optimistic!

I will be thinking of you on the morning of the 18th. Please let us know how you do ASAP after the race. YOU GO GIRL!

Love,

Polly
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Post by moremuscle »

The following is copied from a thread we had running on the main message board after the race:

Yes, Polly - Thanks for your interest :) I love it!!

My time was 2:01:40 (2 hours, 1 minute, 4 seconds). My goal had been to race in 2:08 - it is sweet to have achieved that and then a little bit but I can't help being a little disappointed that I wasn't able to run it under 2 hours. Next time I will set a goal under 2 hours - perhaps 1:55 - I need to digest and analyze everything.

It takes time to recover from this run. I didn't sleep more than perhaps 4 hours the night before the race. I had to get up at 4:30 - drive to the start line at 5:30 and start running at 6:30. I stressed major because I was in a hotel room - tossed about in the bed and went to the bathroom to pee every hour or so during the few hours of sleep.

I have been eating and drinking ever since the race - today I worked in the store with David from 1:30 to 6 - I feel relatively well now. But I need to catch some more sleep before we start working again tomorrow.

I was very well prepared for the race - I knew how to run the distance; we had done it 4-5 times since December 24. I knew how I would feel toward the end and how to pace myself. I had my watch set to go off every 9minutes and 30 seconds - in that way I would know if I was on pace every time I passed one of the mile markers. I basically ran the entire race at the same pace - my overall race pace ending up at 9:27 (this means that I ran each mile in 9 minutes and 27 seconds).

I am not sure the 1/2 marathon is the best distance for me; it is definitely challenging. I don't feel like taking on a full marathon at this point. I do however feel that I could improve my 1/2 marathon time given some more dedicated training. There is no more 1/2 marathon training before the end of the summer - in the mean time I am training for a 10K. I will be working on my speed and doing some hill training - one of my weak areas. I would like to do a few more shorter races in the spring before the heat really strikes us here - some 5 Ks and some 10Ks, there is also a 12K coming up in Orangeburg, SC at the end of April. I might try that distance.

Time will tell what is going to happen in the next few months - right now I am still just trying to digest what I have experienced. It has been an incredible experience. I have taken some chances with my running and my body that I haven't done for a long time - in some ways I feel like I have become more of a risk taker as a runner; I wonder how and if this is going to manifest itself in other areas of my life - hopefully it will inspire me in my business to go beyond what I/we have been doing so far.

I don't care much for staying in a hotel the night before a race - too stressful. I will try to find some races that are in shorter driving distance and start at a more decent time instead of 6:30 am - it wasn't even light yet when we started running.

I loved knowing so many people - all my team mates - and being there to cheer on them as they came in. It was a pretty intense week end.

More to come later.
Again, thanks for your interest, Polly - you are wonderful!!

Love,
Karen
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Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
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Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
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