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Celebrex

 
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SweetSydney
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2017 Dec 17 - 11:47 AM



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PostPosted: Sun Feb 02, 2014 5:46 pm    Post subject: Celebrex Reply with quote

I've been MIA a long time now.

Gluten-free diet didn't help me, at all.

G.I. Doc changed me from Lialda to Asacol HD in Sept.

Seemed to make the LC worse.

I dropped from 78#s in Sept. to 70#s in Dec.

Still taking Entocort.

G.I. Doc advised me to have a Living Trust & DNR drafted. Done.

Taken off of Rebif for my MS last summer-contributing to my LC. No more MS drugs allowed.

Lost the use of my right hand for quite awhile.

Orthopedist Suregeon confirmed it was due to my MS.

Long story short-I explained that my spine hurt far worse than my right arm and hand.

MRI revealed a lot of problems in in spine.

Steroid shots in spine.

P.M. Doc kept pushing a 'script for UltramER-I kept telling her G.I. Doc said "No NSAIDS"

Kept insisting it was gentle on bowel. (I've taken it in the past.)

Finally too tired to debate it, so, I took it home and called my G.I. Doc. He said "No to the UltramER, ok'd 200 mg. Celebrex.

After one week on it, severe D.

In Sept. I weighed 78#s and at my Dec. appt. I was down to 70#s.

I don't think I am going to get well.

Just a vent. bang head

Sydney
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Sydney
Lymphocytic Colitis-12/17/2012
MS
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tex
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Joined: 24 May 2005

Posts: 30859
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2017 Dec 17 - 11:47 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Feb 02, 2014 6:34 pm    Post subject: Reply with quote

Hi Sydney,

I'm so sorry to hear that nothing is working for you. I don't understand your GI doc's reasons for not prescribing Ultram, and prescribing Celebrex instead. He appears to be confused. Celebrex is an NSAID, so it's not surprising that it would cause D. Ultram is not an NSAID.

Ultram can cause breathing problems, so maybe that is why your GI doc refused to prescribe it, but as far as I am aware, there is no specific reason why someone who has MS cannot take it, and Ultram is one of the few painkillers (other than Tylenol) that will not normally cause diarrhea problems for someone who has MC. One of the listed side effects of Ultram is diarrhea, but as far as I am aware, none of our members here who have used it have had any problems because of it. Your GI doc probably just doesn't know enough about MC to understand what usually works and what doesn't work.

Your P. M. Doctor's recommendation is correct, Ultram is not an NSAID. Maybe you need a GI doc who understands medications, and who also understands how to treat MC. You need help, and your GI doc doesn't seem to be very helpful.

I agree with you that you are probably not going to be able to control your problems unless you can find a GI specialist who knows what he or she is doing. What part of the country are you located in? Maybe we can find a doctor who can help.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SweetSydney
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PostPosted: Sun Feb 02, 2014 6:44 pm    Post subject: Reply with quote

Hi, Tex.


Thank you.

I have emphysema-never smoked a day in my life-so I think that's why my G.I. Doc didn't want me to take it.

I don't know why he approved an NSAID either. He knows NSAIDS are off limits. He told me not to take them.
I'm in NW IN.

So, if you know of any good G.I. Docs out here, let me know.

There are very few here.

Sydney
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Sydney
Lymphocytic Colitis-12/17/2012
MS
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tex
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Joined: 24 May 2005

Posts: 30859
User's local time:
2017 Dec 17 - 11:47 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Feb 02, 2014 10:24 pm    Post subject: Reply with quote

Sydney,

That's probably the reason why he didn't want you to use tramadol, and that's certainly a good reason.

The closest GI specialists to NW Indiana for which we have favorable feedback from members here are these:

Dr. Steven Crane
Grand River Gastroenterology
310 Lafayette Ave SE Ste 400
Grand Rapids, MI 49503
(616) 752-6525

http://www.grgastro.com/aboutus_who.html


Dr. Michael Brogan
Ohio Gastroenterology Inc
3820 Olentangy River Road
Columbus,Ohio
(614) 754-5600

http://www.ohiogastro.com/physicians-a-staff/physicians


They're not very close, but as you say, GI specialists who do well at treating MC are not easy to find.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SweetSydney
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Joined: 11 Jan 2013

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2017 Dec 17 - 11:47 AM



Location: United States

PostPosted: Mon Feb 03, 2014 6:43 am    Post subject: Reply with quote

Hi, Tex.

He had originally said that the only safe way for my pain managemet doctor to treat the pain in my spine is with trigger point injections,

So, I think I will stick with those.

The Celebrex only made my LC worse.

Thank you for the doctors names.

Unfortunately, too far for me to travel in my condition.

Sydney
_________________
Sydney
Lymphocytic Colitis-12/17/2012
MS
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30859
User's local time:
2017 Dec 17 - 11:47 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Feb 03, 2014 9:53 am    Post subject: Reply with quote

Sydney wrote:
He had originally said that the only safe way for my pain managemet doctor to treat the pain in my spine is with trigger point injections,

So, I think I will stick with those.


That's probably a good idea at this point.

Sydney wrote:
Unfortunately, too far for me to travel in my condition.


I was afraid that would be the case. It's a shame that good specialists are so difficult to access for most people.

Please take care of yourself, and keep us informed.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SweetSydney
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 11 Jan 2013

Posts: 104
User's local time:
2017 Dec 17 - 11:47 AM



Location: United States

PostPosted: Mon Feb 03, 2014 12:46 pm    Post subject: Reply with quote

Yes, sadly good G.I. Docs are hard to find, and while I have one that is considered the best in my area, I'm afraid he doesn't know enough about LC.

So, I'm skipping the Celebrex, and remaining on the Entocort, and praying I go into remission.

Thank you, Tex-I will keep you posted.

Sydney
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Sydney
Lymphocytic Colitis-12/17/2012
MS
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