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My hospital stay - "Missing Month"

 
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Joefnh
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Joined: 21 Apr 2010

Posts: 2469
User's local time:
2017 Apr 30 - 11:18 PM


Food Intolerances : Gluten, Soy, Dairy, Onions
Location: Southern New Hampshire

PostPosted: Fri Jul 11, 2014 6:47 pm    Post subject: My hospital stay - "Missing Month" Reply with quote

While on the ventilator they kept me sedated with propofol and fentanyl 24x7 for 13 days. They had a hard time weening me off of the ventilator as due to the MG my breathing muscles in my diaphragm were essentially paralyzed.



After I was awake and able to breathe on my own, my son shared some the pictures that were taken. I had 2 of the IV pump setups (one on each side) Apparently they were all used each delivering a different med.





The best medicine I could have ever hope for was my own private nurse... AKA "Nurse Nestle" Once out of the ICU I was transferred to the surgical recovery ward, my kids arranged to have her come to visit me. She jumped right up onto the bed crying and basically fell asleep on top of me. She stayed there for about 3 hours and I just fell asleep knowing all was OK at that moment.


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Joe
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tex
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Joined: 24 May 2005

Posts: 29907
User's local time:
2017 Apr 30 - 10:18 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Jul 11, 2014 7:13 pm    Post subject: Reply with quote

Wow! What an ordeal. You're lucky to walk away from that one.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Joefnh
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Joined: 21 Apr 2010

Posts: 2469
User's local time:
2017 Apr 30 - 11:18 PM


Food Intolerances : Gluten, Soy, Dairy, Onions
Location: Southern New Hampshire

PostPosted: Fri Jul 11, 2014 7:17 pm    Post subject: Reply with quote

Tex after 12 days on the ventilator with all of the issues at hand that they were struggling to control, the doctor told the family members that were there that if anyone might want to fly in that it would be a good time to do so.
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Joe
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tex
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Joined: 24 May 2005

Posts: 29907
User's local time:
2017 Apr 30 - 10:18 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Jul 11, 2014 8:02 pm    Post subject: Reply with quote

I hear you.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Deb
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unknown IP

Joined: 20 Nov 2010

Posts: 1464
User's local time:
2017 Apr 30 - 10:18 PM


Food Intolerances : Gluten, still determining others
Location: Minnesota

PostPosted: Sat Jul 12, 2014 5:03 am    Post subject: Reply with quote

Glad to see you back, Joe. Continued prayers for healing for you. Deb
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JLH
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Joined: 17 Jun 2008

Posts: 4271
User's local time:
2017 Apr 30 - 10:18 PM


Food Intolerances : gluten, casein, soy, eggs, yeast; 3+ rice, chicken, corn, almond; 2+ tuna. oat, beef, cashew; 1+ white potato, walnut

PostPosted: Sat Jul 12, 2014 12:20 pm    Post subject: Reply with quote

Oh, my goodness, Joe, that is so scary. Bravo to you, your doctors, nurses and Nurse Nestle. We are all praying for your rehab to go without a hitch.

go team


bouqueofpinkroses
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LDN July 18, 2014

Joan
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ldubois7
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Joined: 19 Feb 2013

Posts: 1230
User's local time:
2017 Apr 30 - 10:18 PM


Food Intolerances : Gluten, dairy, eggs, soy
Location: Pennsylvania

PostPosted: Sat Jul 12, 2014 6:17 pm    Post subject: Reply with quote

Wow! What an ordeal. You're a very strong person! So, glad that is behind you!

rainbow
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Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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Sheila
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Joined: 18 May 2011

Posts: 1121
User's local time:
2017 Apr 30 - 11:18 PM


Food Intolerances : gluten, eggs, cow's milk, soy, guar gum, whey, goat's milk, cocoa, crab, carrot, amaranth, kamut,
Location: Palm Beach Gardens, Fl

PostPosted: Sat Jul 12, 2014 7:54 pm    Post subject: Reply with quote

Wow, pictures are worth a thousand words. You are a strong man, Joe, and I hope you never go through such an ordeal ever again.

Sheila W
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A person who never made a mistake never tried something new. Einstein
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humbird753
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Joined: 28 Nov 2011

Posts: 923
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2017 Apr 30 - 10:18 PM


Food Intolerances : Gluten, Casein
Location: Wisconsin

PostPosted: Sun Jul 13, 2014 8:13 am    Post subject: Reply with quote

Wow, Joe. You have been through a lot. I agree with Sheila - you are a very strong man. I pray you continue to improve.

Hugs,
Paula
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"You'll never know how strong you are until being strong is the only choice you have."

"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
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Lesley
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King Penguin


Joined: 03 Sep 2011

Posts: 2914
User's local time:
2017 Apr 30 - 8:18 PM


Food Intolerances : Too many to list

PostPosted: Sun Jul 13, 2014 11:35 pm    Post subject: Reply with quote

SO happy to see you back, Joe. Next pics of you at home with Nurse Nestle in your garden please!
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MaggieRedwings
King Penguin
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Joined: 31 May 2005

Posts: 3865
User's local time:
2017 Apr 30 - 11:18 PM


Food Intolerances : Gluten, Soy, Eggs, Nightshades, Mushrooms, Bananas, Melons, Most Dairy, usually Citrus, Corn for the most part
Location: SE Pennsylvania

PostPosted: Mon Jul 14, 2014 5:11 am    Post subject: Reply with quote

Powerful pictures Joe but Nurse Nestle was your best medicine. Just finished doing the ICU with Frank's son and it is a very scary place with all of the machines. Your pictures are very similar to his stay. Continued recovery.

Love, Maggie
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Maggie Scarpone
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Resident Birder - I live to bird and enjoy life!
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CathyMe.
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Joined: 27 Feb 2012

Posts: 574
User's local time:
2017 Apr 30 - 10:18 PM




PostPosted: Tue Jul 15, 2014 5:38 am    Post subject: Reply with quote

Unbelievable Joe and what a sweet picture of Nestle! They are such good companions and she must be happy that you're home!
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Zizzle
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Joined: 22 Jul 2010

Posts: 3478
User's local time:
2017 Apr 30 - 11:18 PM


Food Intolerances : gluten, dairy, soy, sesame seeds, buckwheat, amaranth, walnuts, peppers, CORN!

PostPosted: Fri Jul 18, 2014 11:40 am    Post subject: Reply with quote

Holy Cow Joe! I'm so glad you're still here! Your nurse is the absolute best. KEEP FIGHTING!
big big hug
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1987 Mononucleosis (EBV)
2004 UCTD post-partum
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2012 Dermatomyositis
2013 Modified Paleo Diet
2014 Low Dose Naltrexone
2015 Megaspore and Culturelle probiotics
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fatbuster205
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Joined: 22 May 2012

Posts: 339
User's local time:
2017 May 01 - 5:18 AM


Food Intolerances : Gluten, cows milk, bakers yeast & soy
Location: Carrickfergus, Northern Ireland

PostPosted: Mon Jul 21, 2014 11:18 am    Post subject: Reply with quote

OMG! So glad you are out the other side and returning to health! xxx Love and hugs!
Anne
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If you ever feel too insignificant to be noticed, you have never been to bed with a mosquito!
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