Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

Visit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
Enterolab Credibility
Goto page Previous  1, 2
 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Discussions About Enterolab Testing
 View previous topic :: View next topic  
Author Message
lsedels
Adélie Penguin
Adélie Penguin
United States

Joined: 18 Jul 2014

Posts: 53
User's local time:
2017 Jun 26 - 12:56 AM




PostPosted: Mon Jul 28, 2014 9:04 am    Post subject: Reply with quote

nerdhume wrote:
Larry,
I'm sure none of us intended to hurt your feelings. The fact is we each must find our own way of dealing with this, and it is a lot to deal with.

As with any other group of people and advice....take what you need/want and leave the rest.

We don't all follow the same plan, we have one thing in common....we want to be in remission while taking the least harmful medication possible.

Best wishes to you and your mom.

Agreed, Theresa. Thanks for your post.
_________________
Larry
Back to top
lsedels
Adélie Penguin
Adélie Penguin
United States

Joined: 18 Jul 2014

Posts: 53
User's local time:
2017 Jun 26 - 12:56 AM




PostPosted: Mon Jul 28, 2014 9:06 am    Post subject: Reply with quote

Jeanemcl wrote:
Larry,
I had several of the same feelings about the test and the expense. My family and friends got mad at me for being on the internet....I was a mess. I would say .....the support group says and everyone would roll their eyes. I did do the testing as I was desperate. I came back sensitive to gluten, soy and casein. I eliminated those from my diet and struggled with weight loss. I went on Endocort which had worked beautifully in three years ago. After 5 months of struggles things gradually got better. I stopped the Endocort, maintained a strict diet, went on 10 Elavil at bedtime and Questran during the day (both have side effects of constipation) - my internist's recommendation. Something worked....I am not sure that there was a magic bullet, but I continue with the diet and have cut back on the meds. I went back to the GI and she asked "did the diet cure you?" I said "not sure, but something has helped me manage this stupid disease! " and now that's what I do is MANAGE.....and BALANCE. I have dropped to every other day with Elavil, I have cut out Questran, but on days that I feels digestive distress I take it...I throw in an Imodium here and there if I am going out for dinner. I am extremely careful of what I eat in the morning as that is my "bad" time (sometimes). If I am going to walk which I do almost daily, I walk and then eat breakfast. I eat most meats, veg, rice, quinoa and eggs. I use Udi bread and earth balance butter. I read labels. All these things I have learned by observing, keeping a journal, and experimentation and reading suggestions from this site.
This disease confuses the best of us and we are all different and have to find out what works for us.
As somebody said before - take what you like and leave the rest. Hopefully, you will find out what works for your mom. Patience and persistence pays off with this disease. Good luck.

Thank you.
_________________
Larry
Back to top
dfpowell
Gentoo Penguin
Gentoo Penguin


Joined: 03 Apr 2013

Posts: 483
User's local time:
2017 Jun 26 - 12:56 AM


Food Intolerances : Gluten Free
Location: Lakeville, Minnesota

PostPosted: Mon Jul 28, 2014 12:16 pm    Post subject: Reply with quote

Larry,

It took me several years to accept the need for diet changes, I have a medical background and decided to follow the advice of the doctors, including one from Mayo Clinic, and took the medication they prescribed for 18 months. When the medication lost its effectiveness, meaning I was again dealing with all of the MC symptoms, I decided the advice of those in this group had more credibility than the doctors telling me this disease is only a minor inconvenience and all you need to do is take medication.

I think it is good that you ask about Enterolab's credibility, I have also had a similar skepticism, but went ahead with the test because I needed some quicker answers than an elimination diet. I have found by following the diet suggestions, my symptoms are very minimal and better managed than when I was on medication. Sometimes I have tried adding different foods back into my diet, only to have my symptoms increase, meaning more diarrhea, and when I take them out again the diarrhea goes away, so I have seen a cause and affect with diet and my MC symptoms.

Is the medication your mom has been prescribed for MC helping? Perhaps at her age that is the best that can be done.
_________________
Donna

Diagnosed with CC August 2011
Back to top
lsedels
Adélie Penguin
Adélie Penguin
United States

Joined: 18 Jul 2014

Posts: 53
User's local time:
2017 Jun 26 - 12:56 AM




PostPosted: Mon Jul 28, 2014 12:19 pm    Post subject: Reply with quote

dfpowell wrote:
Larry,

It took me several years to accept the need for diet changes, I have a medical background and decided to follow the advice of the doctors, including one from Mayo Clinic, and took the medication they prescribed for 18 months. When the medication lost its effectiveness, meaning I was again dealing with all of the MC symptoms, I decided the advice of those in this group had more credibility than the doctors telling me this disease is only a minor inconvenience and all you need to do is take medication.

I think it is good that you ask about Enterolab's credibility, I have also had a similar skepticism, but went ahead with the test because I needed some quicker answers than an elimination diet. I have found by following the diet suggestions, my symptoms are very minimal and better managed than when I was on medication. Sometimes I have tried adding different foods back into my diet, only to have my symptoms increase, meaning more diarrhea, and when I take them out again the diarrhea goes away, so I have seen a cause and affect with diet and my MC symptoms.

Is the medication your mom has been prescribed for MC helping? Perhaps at her age that is the best that can be done.

Thanks for your post.

I completely understand your position.

Yes, the Uceris is making a big big difference, thankfully. But it is not clear to us whether she will have to come off it or not, or whether if she takes it long enough, it will lose its efficacy.
_________________
Larry
Back to top
JLH
King Penguin
King Penguin


Joined: 17 Jun 2008

Posts: 4272
User's local time:
2017 Jun 26 - 12:56 AM


Food Intolerances : gluten, casein, soy, eggs, yeast; 3+ rice, chicken, corn, almond; 2+ tuna. oat, beef, cashew; 1+ white potato, walnut

PostPosted: Mon Jul 28, 2014 12:40 pm    Post subject: Low Dose Naltrexone Reply with quote

A small group of us, for whom the diet and meds (or combo) did not work, are doing the very same thing all over again! We ARE trusting doctors and patients on the internet! There has been success, too.

http://www.perskyfarms.com/phpBB2/viewtopic.php...highlight=miracle
_________________
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Discussions About Enterolab Testing All times are GMT - 6 Hours
Goto page Previous  1, 2
Page 2 of 2

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright © 2005–2017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery