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JUST DIAGNOSED WITH CC HAVE QUESTIONS PLEASE HELP

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Frequently Asked Questions about CC, LC, and MC
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starz123

United States

Joined: 18 Aug 2009

Posts: 5
User's local time:
2017 Aug 24 - 12:59 AM




PostPosted: Tue Aug 18, 2009 10:00 am    Post subject: JUST DIAGNOSED WITH CC HAVE QUESTIONS PLEASE HELP Reply with quote

HI all I'm new to this site and have some questions I hope you can help me with. I've had CC for over 2 yrs. it was horrible still is. I'm on Entocort 3mg 2x per day now. My question is does any one else with CC have canker sores and get pink eye with flare ups. I would like a detailed description of all symptoms that come with this diesease. I've had the canker sores from day one, but with this flare up which is really bad entocort not helping much, this time I have pink eye too. HELP any information is appretiated.





Thank- You

Star Sad
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starz123

United States

Joined: 18 Aug 2009

Posts: 5
User's local time:
2017 Aug 24 - 12:59 AM




PostPosted: Tue Aug 18, 2009 12:51 pm    Post subject: thank-you Reply with quote

Thank-You mfor your answers I appreciate it.This is all new to me and I want to know every thing I can about this disease. I'm so very glad I found this site, sometimes I feel really alone and most people don't understand what I'm going through. I'm blessed that there is this site with people who know exactly what I'm going through thank you.

Star
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30302
User's local time:
2017 Aug 24 - 12:59 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Aug 18, 2009 1:07 pm    Post subject: Reply with quote

Star,

I moved our responses to your post on the Main Message Board, where everyone else was responding. You can find them all there. If you're not sure where that is, this link will take you there:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10336

I felt the same way before I found this great group of people, years ago - I felt all alone, and hopeless. No one really understands MC, unless they have the disease.

We're very glad that you found us, and I hope we can answer your questions.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gas Bag
Adélie Penguin
Adélie Penguin


Joined: 01 Aug 2009

Posts: 198
User's local time:
2017 Aug 23 - 11:59 PM


Food Intolerances : None
Location: Washington State

PostPosted: Tue Aug 18, 2009 1:50 pm    Post subject: Re: thank-you Reply with quote

starz123 wrote:
Thank-You mfor your answers I appreciate it.This is all new to me and I want to know every thing I can about this disease. I'm so very glad I found this site, sometimes I feel really alone and most people don't understand what I'm going through. I'm blessed that there is this site with people who know exactly what I'm going through thank you.

Star
It does help immensely to know you aren't alone in this.

There is so much information on this forum it is hard to absorb it all, I am still looking around and finding out all sorts of things. You might just stumble on something that will click and make sense for you and make you better.

Deb
_________________
Hypothyroid 06/01
LC 12/06

Dwell on the positive.
Happiness is a result of a decision to be happy.
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sonja
Adélie Penguin
Adélie Penguin


Joined: 20 Oct 2012

Posts: 83
User's local time:
2017 Aug 24 - 6:59 AM


Food Intolerances : gluten, dairy, soy, oats, corn, yeast, gilthead bream, sole, carp, red bream, pike perch, seadevil, sea bass, shark, oysters, some nuts, capres, marjoram, caraway, ananas, cherrie spinach, chick peas, horsebean and more

PostPosted: Thu Nov 27, 2014 2:36 pm    Post subject: Reply with quote

Dear reader,

Sorry for my English....
I am a member since a few years, but it is so difficult for me to read evything in the right way. I am Dutch. I saw that there are about 6 or 7 members in the Netherlands, but they were not on line in 2014. Sad I would like to contact them. is that possible?

I think i can get a lot of information from the potty people, but it's so difficult to find it.
I was diagnosed in january 2011 with lc and started with entocort; sometimes I stopped and I managed to keep control. But since half a year it does not work any more (D.). I was tested for gluten intolerance in may 2014 and this was negative. My specialist suggested last week that i shoud skip the gluten for 2 or 3 weeks and see what happens. And now, after 4 days, i have already a positive result!!!! I am amazed and wonder what else i should skip.......
I also use hormons (estradiol / dydrogestrion) since december 2012 with good results for my hormonal problems, but now I saw the information about hormons......
Is there anyone with simular problems? I would like to get advise, thank you in advance.
Sonja
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30302
User's local time:
2017 Aug 24 - 12:59 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Nov 27, 2014 5:53 pm    Post subject: Reply with quote

Hi Sonja,

Welcome. After you post 4 more messages, the system will allow you to search the archives, using key words, and that will make it much easier for you to find past discussions that might be helpful for you. And you will also be able to see the email addresses for each member at the bottom of their posts. That will allow you to contact them directly by email.

Yes, almost every one of us here is sensitive to gluten, even though the blood tests that our doctors use showed negative results. Most of us are also sensitive to all dairy products, and many of us are sensitive to soy and all legumes. Some of us are also sensitive to eggs, and other foods. Many of us here control our symptoms by changing our diet, and without taking any medications.

Hormone replacement therapy causes problems for many members here (but not everyone), and there have been many discussions about this problem.

Also, if you will post your questions on the Main Message Board http://www.perskyfarms.com/phpBB2/viewforum.php?f=2 you will get more responses, because many members do not read all of these discussion forums.

Again, welcome to the group. We will try to help you in any way we can.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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sonja
Adélie Penguin
Adélie Penguin


Joined: 20 Oct 2012

Posts: 83
User's local time:
2017 Aug 24 - 6:59 AM


Food Intolerances : gluten, dairy, soy, oats, corn, yeast, gilthead bream, sole, carp, red bream, pike perch, seadevil, sea bass, shark, oysters, some nuts, capres, marjoram, caraway, ananas, cherrie spinach, chick peas, horsebean and more

PostPosted: Wed Dec 03, 2014 9:40 am    Post subject: Reply with quote

Hoi Tex,

Thank you very much for your friendly answer. I even don't now how I found your reply...., because I get the message that there a no messages for me. And you did answer so quick!
I didn't realise that I was not on the main message board. I try to do that soon.
Thank you once more. It's nice to be welcome and to know that I'm not alone with this problem.

Sonja




tex wrote:
Hi Sonja,

Welcome. After you post 4 more messages, the system will allow you to search the archives, using key words, and that will make it much easier for you to find past discussions that might be helpful for you. And you will also be able to see the email addresses for each member at the bottom of their posts. That will allow you to contact them directly by email.

Yes, almost every one of us here is sensitive to gluten, even though the blood tests that our doctors use showed negative results. Most of us are also sensitive to all dairy products, and many of us are sensitive to soy and all legumes. Some of us are also sensitive to eggs, and other foods. Many of us here control our symptoms by changing our diet, and without taking any medications.

Hormone replacement therapy causes problems for many members here (but not everyone), and there have been many discussions about this problem.

Also, if you will post your questions on the Main Message Board http://www.perskyfarms.com/phpBB2/viewforum.php?f=2 you will get more responses, because many members do not read all of these discussion forums.

Again, welcome to the group. We will try to help you in any way we can.

Tex
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Grahm
Gentoo Penguin
Gentoo Penguin
United States

Joined: 05 Jun 2014

Posts: 254
User's local time:
2017 Aug 24 - 1:59 AM


Food Intolerances : gluten, dairy, eggs, and possibly corn
Location: Lexington, KY

PostPosted: Wed Dec 03, 2014 11:57 am    Post subject: Reply with quote

Welcome Sonja,

You are at the right place for help. Just like Tex said after you post a couple of more times you will be able to research and find so many wonderful posts from everyone here. We are like a family and everyone wants to help you get this under control.
Go slow, read and ask for help as you travel on this journey.

Love,
Connie
_________________
Live, Laugh & Love Much
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Skyward
Adélie Penguin
Adélie Penguin


Joined: 22 Nov 2014

Posts: 58
User's local time:
2017 Aug 24 - 1:59 AM



Location: Indiana

PostPosted: Wed Dec 03, 2014 7:37 pm    Post subject: Reply with quote

Sonja- I am also new here. Every forum board has a slightly different way to do things so it takes a little to learn- but I think this forum seems to work very nicely. The no new messages "for you" probably means no private messages.

Near the top of this page you will see this headline-

MICROSCOPIC COLITIS SUPPORT Forum Index -> Frequently Asked Questions about CC, LC, and MC

If you click on the first part- MICROSCOPIC COLITIS SUPPORT Forum Index ->

It should take you to a page that shows ALL the forum activity since your last visit. (not just posts to your topic)

Be sure when you make a post that you want to follow closely to check the box at the bottom to get a notification when a reply is posted- it will send you one e mail.

I go between reading the new posts and searching the archives and just trying to learn from the old posts. There is so much to learn from the experiences and knowledge of others. One of my symptoms is a little bit of dizzyness and lightheadedness and it makes it very hard for me to take in information right now- but I am trying. I can't imagine trying to learn this complicated information in another language! I hope that you are able to contact some dutch speaking friends.

-Sarah
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