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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 886
User's local time:
2017 Oct 22 - 2:46 AM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat May 16, 2015 1:34 pm    Post subject: Not a trace... Reply with quote

Hi,

Can I ask one thing: When we wipe ourselves, and there is nothing on the toiletpaper, not a trace... For the first time in 5 years!

Isn't that a success?

I'm so happy!

https://www.youtube.com/watch?v=y6Sxv-sUYtM

Lilia
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 886
User's local time:
2017 Oct 22 - 2:46 AM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat May 16, 2015 2:02 pm    Post subject: Reply with quote

I forgot to mention that routine used to be: Straight to the shower after a visit to the toilet.

Lilia
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:46 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat May 16, 2015 5:04 pm    Post subject: Reply with quote

Lilia wrote:
Can I ask one thing: When we wipe ourselves, and there is nothing on the toiletpaper, not a trace... For the first time in 5 years!


Definitely! Congratulations!

wierdnana wierdnana poopbanana wierdnana wierdnana

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 886
User's local time:
2017 Oct 22 - 2:46 AM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sun May 17, 2015 4:42 am    Post subject: Reply with quote

A really embarrasing subject, but all achievements must be celebrated Smile
Lilis
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7136
User's local time:
2017 Oct 22 - 12:46 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Tue May 19, 2015 5:23 pm    Post subject: Reply with quote

Sounds like a dream come true!! Congratulations!!!

My gooey poop consistency needs moistened wipes every time, been like that for the past 3 years or more....
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 886
User's local time:
2017 Oct 22 - 2:46 AM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat May 30, 2015 8:34 am    Post subject: Reply with quote

Update:

I'm still having Normans, much to my surprise. I have been weaning off Entocort since December 2014, and have only 3 capsules left. I take a Zyrtec each morning.

I often wonder if we'll ever understand this disease, and while I was asking for reasons why I got CC 5 years ago, I'm now asking myself why I don't have D any longer.

I tend to believe that my remission is much due to the B-vitamin regimen Tex gave me in December, and that this in addition to a strict diet for the last 2 years, have turned out to my advantage.

I guess I'll never know, but I can live with that.

Very Happy

Lilia
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:46 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat May 30, 2015 9:07 am    Post subject: Reply with quote

Lilia,

That's a very interesting observation (that methylation issues might have a significant effect on the treatment of MC symptoms).

Thank you for sharing your insight. We probably need to devote more time to thinking about this possibility.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 886
User's local time:
2017 Oct 22 - 2:46 AM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat May 30, 2015 10:03 am    Post subject: Reply with quote

Tex,

Maybe the B-vitamins make our intestines more robust? Back in the old days; we were told that B-vitamins result in healthy hair, skin and nails. Maybe this also goes for the collagen in our intestines? Could it be that simple?

Lilia
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:46 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat May 30, 2015 10:34 am    Post subject: Reply with quote

Maybe, but most of us don't have significant B vitamin deficiencies unless we have methylation issues, and methylation issues mostly respond to the active forms of the vitamins (which is what you were taking). Most people who do not have methylation issues can get all the B vitamins they need either from their food, or from a low-cost mutivitamin.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 886
User's local time:
2017 Oct 22 - 2:46 AM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat May 30, 2015 10:58 am    Post subject: Reply with quote

Hi again, Tex!

Do methylation problems lead to a lack of intrinsic factor?

Lilia
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:46 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat May 30, 2015 1:51 pm    Post subject: Reply with quote

Hi Lilia,

Well, intrinsic factor controls the absorption of B-12 (in the form of cobalamin), but I'm not aware of any research that associates a lack of intrinsic factor with a methylation problem. Of course that doesn't mean that methylation problems cannot affect the production of intrinsic factor by the parietal cells of the stomach, it simply means that no research data have been published about it (at least I'm not aware of any). Probably it has never occurred to anyone that it should be researched.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 886
User's local time:
2017 Oct 22 - 2:46 AM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat May 30, 2015 2:05 pm    Post subject: Reply with quote

Hi Tex,

I googled "definition of intrinsic factor", and found this :

"The reason is that in PA (pernicious anemia), patients suffer from gastric mucosal atrophy, most likely caused by a destructive autoimmune process".

http://www.mayomedicallaboratories.com/test-cat...Interpretive/9335


Lilia
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Back to top
Lilja
Rockhopper Penguin
Rockhopper Penguin
Norway

Joined: 25 Aug 2014

Posts: 886
User's local time:
2017 Oct 22 - 2:46 AM


Food Intolerances : Gluten, casein, soy
Location: Oslo

PostPosted: Sat May 30, 2015 2:21 pm    Post subject: Reply with quote

PS: The edit-button has suddenly disappeared, so I cannot edit my last post. "Mucosal atrophy"... I thought that Collagenous Colitis meant thickening of the mucosa layers in the colon, not atrophy.

Still confused :-)

Lilia
_________________
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:46 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat May 30, 2015 2:25 pm    Post subject: Reply with quote

Yes, I know, but this is a relatively complex topic. Probably the most likely way that methylation issues could affect parietal cells would be by compromised DNA methylation. That would enable epigenetic corruption that could result in AI damage to parietal cells. Here is a link to an article that discusses how epigenetic issues can be associated with AI diseases, but it's quite technical, due to the nature of the topic.

Epigenetics and Autoimmune Diseases

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
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