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Medication Guide - This Guide was Compiled By Sally

 
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tex
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Joined: 24 May 2005

Posts: 30471
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2017 Sep 22 - 6:11 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jun 20, 2005 2:27 pm    Post subject: Medication Guide - This Guide was Compiled By Sally Reply with quote

http://web.archive.org/web/20021203210233/http:...llyread/id22.html

NOTE: At the time of the original posting, Lotronex was pulled from the market by the FDA. Today, Lotronex is again on the market with controlled restrictions.
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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am

United States

Joined: 04 May 2009

Posts: 1
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2017 Sep 22 - 6:11 PM




PostPosted: Mon May 04, 2009 8:01 pm    Post subject: apriso Reply with quote

i may have missed a post on apriso (mesalomine) and if it has helped anyone with microscopic colitis.
thanks for your help. this is an amazingly comprehensive site!
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tex
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Joined: 24 May 2005

Posts: 30471
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2017 Sep 22 - 6:11 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon May 04, 2009 8:37 pm    Post subject: Reply with quote

Hi,

Welcome to our discussion and support board. Apriso was only approved by the FDA on October 31, 2008, so as far as I am aware, no one here has been given a prescription for it, yet. Many have used the other 5-ASA medicatons, (mesalamine), however, for use mostly as a maintenance medication, after remission has been achieved by the use of Entocort.

This is an information forum. You will find that most of the discussions take place in these forums:

http://www.perskyfarms.com/phpBB2/viewforum.php?f=2

http://www.perskyfarms.com/phpBB2/viewforum.php?f=27

Again, welcome aboard, and I hope you will find the information you are seeking, here. Please feel free to ask any questions.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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janemick

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Joined: 24 Jun 2011

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PostPosted: Sat Jun 25, 2011 5:45 pm    Post subject: Reply with quote

I would like to know what reactions people had when attempting to taper off from Entocort. Three capsules per day to two capsules . I did not seem to do well on two so I take three every other day, Any suggestions would be appreciated . I would like to reduce the dosage but I do not do well on only two.
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tex
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Joined: 24 May 2005

Posts: 30471
User's local time:
2017 Sep 22 - 6:11 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Jun 25, 2011 6:35 pm    Post subject: Reply with quote

Hi Jane,

Welcome to the board. You can find a lot of information concerning one member's experience with weaning off Entocort, in this thread:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=6730

Typically, most members have found that if they make the necessary diet changes, to eliminate from their diet, the foods to which they are sensitive, they can eventually wean their dosage rate of Entocort down to 1 capsule per day, or even one capsule every other day. Some are able to completely stop taking Entocort, and remain in a state of stable remission, provided that they have fine-tuned their diet, and they have allowed sufficient time for their gut to heal, (usually roughly a year or more). Without the proper diet changes, though, most people with MC will relapse virtually every time that they attempt to wean off Entocort.

IOW, in order to phase out treatment with Entocort, the source of the inflammation that is causing the MC, must be removed. For most of us, that's food sensitivities, but for some people, the inflammation is caused by a drug that they are taking, to treat another issue. MC can be triggered by NSAIDs, SSRIs, PPIs, statins, bisphosphonates, and a number of other drugs. Some people are fortunate enough that they can simply stop taking the drug that triggered their MC, and they can achieve remission, and maintain it, as long as they avoid that drug, (or that family of drugs), but for others, food sensitivities are triggered when the MC is triggered, so they have to make diet concessions, if they are to achieve remission and maintain it, without the long-term use of drugs, to control the inflammation. Most doctors are totally unaware of the fact that food-sensitivities are the primary cause of MC, and they will insist that diet has nothing to do with the disease. They are wrong, of course.

Again, welcome aboard, and please feel free to ask anything.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Shlany

United States

Joined: 27 Sep 2012

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PostPosted: Wed Oct 03, 2012 9:31 am    Post subject: Reply with quote

Has anyone else been perscribed Pentassa? Major problem for me!!!
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tex
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Joined: 24 May 2005

Posts: 30471
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2017 Sep 22 - 6:11 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Oct 03, 2012 10:25 am    Post subject: Reply with quote

Hi,

Welcome to the Board. Yes, a few members have been prescribed Pentasa, and sometimes it is effective when the other mesalamine-based medications are not. Like all drugs, though, it doesn't work for everyone. This is an information forum. You'll get a lot more responses from other members if you post on the Main Message Board.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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gac
Adélie Penguin
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Joined: 16 Jul 2015

Posts: 117
User's local time:
2017 Sep 22 - 7:11 PM


Food Intolerances : GF/DF/SF,onions,garlic,veggies/fruits,seeds,eggs,spices
Location: Atlanta, GA

PostPosted: Tue Jul 28, 2015 9:36 pm    Post subject: replacement for NSAIDS Reply with quote

If MC's are not supposed to take NSAID's, what are we allowed to take for a headache? I always took ibuprofen. When I have a migraine, I used my Imitrex injections but also have to take a couple ibuprofen to knock the pain. I have been doing without for weeks now, trying to substitute a cup of coffee, breathing steam, sniffing VICKS, using heating pad or ice packs, etc. But I surely miss ibuprofen. Please advise.
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tex
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Site Admin


Joined: 24 May 2005

Posts: 30471
User's local time:
2017 Sep 22 - 6:11 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Jul 29, 2015 7:19 am    Post subject: Reply with quote

You can find a list of medications and how they relate to MC at this link:

Medications And Supplements That Are Safe For Most Of Us

As you can see from that list, the following painkillers can be used without having adverse affects on MC.

Quote:
Painkillers:

acetaminophen (Tylenol)
tramadol (Ultram)
narcotic-based painkillers

Note that many members of this discussion board have successfully used topically-applied analgesics (including NSAIDs) with no apparent ill effects


Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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