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Survey On Response To Treatment For MC
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Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options
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What type of treatment are you using, and how effective is it?
I'm not using any treatment, and I'm not having any significant symptoms.
3%
 3%  [ 3 ]
I'm carefully following the GF diet, and I'm in remission.
6%
 6%  [ 6 ]
I'm carefully following the GF diet, and my symptoms are improved, but I'm not in remission.
6%
 6%  [ 6 ]
I'm carefully following the GF diet, but I'm not seeing any improvement.
0%
 0%  [ 0 ]
I'm carefully avoiding gluten, and dairy, and I'm in remission.
3%
 3%  [ 3 ]
I'm carefully avoiding gluten, and dairy, and my symptoms are improved, but I'm not in remission.
7%
 7%  [ 7 ]
I'm carefully avoiding gluten, and dairy, but I'm not seeing any improvement.
1%
 1%  [ 1 ]
I'm carefully avoiding gluten, dairy, and soy, and I'm in remission.
2%
 2%  [ 2 ]
I'm carefully avoiding gluten, dairy, and soy, and my symptoms are improved, but I'm not in remission.
7%
 7%  [ 7 ]
I'm carefully avoiding gluten, dairy, and soy, but I'm not seeing any improvement.
0%
 0%  [ 0 ]
I'm carefully avoiding gluten, dairy, soy, and other proteins, and I'm in remission.
1%
 1%  [ 1 ]
I'm carefully avoiding gluten, dairy, soy, and other proteins, and my symptoms are improved, but I'm not in remission.
8%
 8%  [ 8 ]
I'm carefully avoiding gluten, dairy, soy, and other proteins, but I'm not seeing any improvement.
0%
 0%  [ 0 ]
I'm taking Entocort, with no diet changes, and I'm in remission.
4%
 4%  [ 4 ]
I'm taking Entocort, with no diet changes, and my symptoms are improved, but I'm not in remission.
3%
 3%  [ 3 ]
I'm taking Entocort, with no diet changes, but I'm not seeing any improvement.
0%
 0%  [ 0 ]
I'm avoiding a few foods, and taking Entocort, and I'm in remission.
2%
 2%  [ 2 ]
I'm avoiding a few foods, and taking Entocort, and my symptoms are improved, but I'm not in remission.
4%
 4%  [ 4 ]
I'm avoiding a few foods, and taking Entocort, but I'm not seeing any improvement.
0%
 0%  [ 0 ]
I'm avoiding many types of food, and taking Entocort, and I'm in remission.
3%
 3%  [ 3 ]
I'm avoiding many types of food, and taking Entocort, and my symptoms are improved, but I'm not in remission.
11%
 11%  [ 11 ]
I'm avoiding many types of food, and taking Entocort, but I'm not seeing any improvement.
5%
 5%  [ 5 ]
I'm taking some other medication for MC, and I'm in remission.
1%
 1%  [ 1 ]
I'm taking some other medication for MC, and my symptoms are improved, but I'm not in remission.
7%
 7%  [ 7 ]
I'm taking some other medication for MC, but I'm not seeing any improvement.
2%
 2%  [ 2 ]
I'm following some other type of diet, and I'm in remission.
0%
 0%  [ 0 ]
I'm following some other type of diet, and my symptoms are improved, but I'm not in remission.
5%
 5%  [ 5 ]
I'm following some other type of diet, but I'm not seeing any improvement.
1%
 1%  [ 1 ]
I have mast cell involvement, so the above choices do not fit my situation.
1%
 1%  [ 1 ]
I have UC, and diet changes definitely seem to help.
0%
 0%  [ 0 ]
I have UC, but diet changes do not seem to help.
0%
 0%  [ 0 ]
I have Crohn's, and diet changes definitely seem to help.
0%
 0%  [ 0 ]
I have Crohn's, but diet changes do not seem to help.
0%
 0%  [ 0 ]
Total Votes : 93

Author Message
MBombardier
Rockhopper Penguin
Rockhopper Penguin


Joined: 14 Oct 2010

Posts: 1524
User's local time:
2017 Sep 26 - 2:52 AM


Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Mon Jan 17, 2011 11:50 am    Post subject: Reply with quote

I just voted in the carefully avoiding gluten, dairy, and soy, and in remission category.

Arlene, I know exactly what you mean about "tentative." I am doing well enough now that my system no longer feel tentative, and have decided to try adding some fiber back into my diet. So my system is back feeling tentative about that. Very Happy
_________________
Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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TooManyHats
Rockhopper Penguin
Rockhopper Penguin


Joined: 14 Jan 2011

Posts: 550
User's local time:
2017 Sep 26 - 6:52 AM


Food Intolerances : Gluten Soy Dairy Spices including cinnamon, cloves, and ginger
Location: New Jersey

PostPosted: Mon Jan 17, 2011 11:55 am    Post subject: Reply with quote

MBombardier wrote:
I just voted in the carefully avoiding gluten, dairy, and soy, and in remission category.

Arlene, I know exactly what you mean about "tentative." I am doing well enough now that my system no longer feel tentative, and have decided to try adding some fiber back into my diet. So my system is back feeling tentative about that. Very Happy


I knew you all would know! So nice not to have to TRY to explain it. Smile

Tex, should there be a follow-up pole? Say 6 or more month follow-up? That would be interesting.
_________________
Arlene

Progress, not perfection. devilangel
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30499
User's local time:
2017 Sep 26 - 4:52 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jan 17, 2011 5:07 pm    Post subject: Reply with quote

I'm not sure that the outcome would change much, because as new members continue to join, many/most of those who have been here for a while, especially if they have managed to reach remission, tend to drift away, and stop coming back. shrug

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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grannyh
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 29 May 2005

Posts: 1011
User's local time:
2017 Sep 26 - 6:52 AM




PostPosted: Mon Jan 17, 2011 6:20 pm    Post subject: Reply with quote

The same problem the doctors have.. if people go into remission they never see them again.. if a quack doctor can't offer useful solutions.. the patients don't go back...
grannyh
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ahhneatah

unknown IP

Joined: 08 Sep 2010

Posts: 5
User's local time:
2017 Sep 26 - 4:52 AM




PostPosted: Wed May 11, 2011 7:55 am    Post subject: TEX--your oats Reply with quote

how did you find out about the oats allergy specifically what you mentioned in your post
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ahhneatah

unknown IP

Joined: 08 Sep 2010

Posts: 5
User's local time:
2017 Sep 26 - 4:52 AM




PostPosted: Wed May 11, 2011 7:58 am    Post subject: oats Reply with quote

tex
I am new at this
hope you get it

the oats subject--how did you determine this allergy? symptoms the same as others?
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30499
User's local time:
2017 Sep 26 - 4:52 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed May 11, 2011 10:50 am    Post subject: Reply with quote

Hi,

I did an oat challenge, using oat cereal certified to be wheat free. The post at the following link describes how I went about it, and it contains my report on the results, and it also contains links to progress reports that I posted along the way. As I recall, the primary symptoms were bloating and diarrhea, but any other symptoms, (joint aches, body aches headaches, migraines, etc.), were somewhat minor. Probably the reason why other symptoms weren't more serious, is because I didn't continue to eat it long enough to develop the leaky gut syndrome. If I had continued to eat it, I might have eventually had more problems with other symptoms, as well.

http://www.perskyfarms.com/phpBB2/viewtopic.php...ght=oat+challenge

And here's one more post that I made about a week later, when I tried oats one more time, just to verify that I was definitely sensitive to it:

http://www.perskyfarms.com/phpBB2/viewtopic.php...ght=oat+challenge

Tex

P. S. Note that in the first link that is listed in the first article that I linked to above, I posted that, "the current world standard for gluten-free certification, (at 200 ppm)". That was written 4 years ago, and since then, the world standard for gluten-free certification has been lowered to 20 ppm, as controlled by the Codex Alimentarius.
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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HappyBird
Gentoo Penguin
Gentoo Penguin


Joined: 17 Sep 2015

Posts: 305
User's local time:
2017 Sep 26 - 10:52 AM


Food Intolerances : GF, DF, SF, LF.

PostPosted: Sat Sep 19, 2015 11:39 am    Post subject: Reply with quote

No treatment - on elimination diet only. Hoping for a miracle through diet alone.
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