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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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How do I change my user name?

 
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Optimystic

United States

Joined: 12 May 2016

Posts: 8
User's local time:
2017 Oct 21 - 9:51 PM


Food Intolerances : Gluten, Dairy, Beef, Chicken, Pork
Location: Toronto

PostPosted: Sat May 14, 2016 11:30 am    Post subject: How do I change my user name? Reply with quote

When I registered, I used my name, but don't really want to be identified publicly, so for the time being have checked the box for hidden profile...................
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:51 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat May 14, 2016 12:03 pm    Post subject: Reply with quote

Hi Jan,

The option to change one's user name is normally unavailable as a security precaution to prevent spammers and other troublemakers from hiding behind repeated name changes as a way to evade detection and removal and deactivation of their account.

I have activated the option to change user name for a couple of hours so that you can make that change in your profile.

If you have any problems making the change, please let me know and I'll try to help.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Optimystic

United States

Joined: 12 May 2016

Posts: 8
User's local time:
2017 Oct 21 - 9:51 PM


Food Intolerances : Gluten, Dairy, Beef, Chicken, Pork
Location: Toronto

PostPosted: Sat May 14, 2016 1:23 pm    Post subject: Reply with quote

Thanks Wayne
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:51 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat May 14, 2016 7:56 pm    Post subject: Reply with quote

You're very welcome. Would you prefer that I change your user name?

Wayne
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Optimystic

United States

Joined: 12 May 2016

Posts: 8
User's local time:
2017 Oct 21 - 9:51 PM


Food Intolerances : Gluten, Dairy, Beef, Chicken, Pork
Location: Toronto

PostPosted: Sat May 14, 2016 10:16 pm    Post subject: Reply with quote

Hi Wayne

I did try, but obviously wasn't successful! Wink

Thanks, yes, make my name Optimystic please.


I've looked at this website several times since diagnosis and found it most useful/intriguing/thoughtful........ Particularly your theories on Mast Cells, which I had not heard of before, although I did have my GP refer me to an allergist about 10 years ago. I believe he recommended an anti anxiety medication for off label use to reduce my sensitivity and response to irritants, but I was reluctant to use it because osteoporosis was a side effect, and I already had that as a diagnosis.

So I'm pretty sure Mast Cells are a big part of my problem as I have had a lot of histamine type symptoms for many many years, and have had headaches and low energy since I was a teenager. New histamine symptoms have arisen with the passage of time, unfortunately

I've been in a mild - moderate flare for the last year and a half. Have always tried to control my symptoms with diet. GF for about 10 years. Reading your blog has made me realize that my restrictions need to be stringent and ongoing. When I start to feel better I start to stray and try reintroducing foods, probably too soon.

I've just started taking Claritin, and intend to try the antihistamine route for the next few months. I think I had read some suggestion from you at one time of dosages, but haven't been able to find it on the site. Could you steer me to that info? (please Wink )

BTW, this is an amazing forum. THANK YOU for all the work that you do to try to support people like me who have been wandering in the wilderness for so long and leading challenging existences a lot of the time. I expect this is more than a full time job for you.

(I have ordered your book, and am looking forward to its arrival! When do you think your volume 2 will be published?)

Many thanks,
Jan
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:51 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun May 15, 2016 8:36 am    Post subject: Reply with quote

Hi Jan,

I made the change you requested.

Anti-anxiety medications and antidepressants have been prescribed by some physicians to treat MC ever since the disease was first medically described, mostly because many of them have a labeled side effect of constipation. But in many cases, this class of medications is more likely to cause increased diarrhea than to control it. In some cases though, where the adverse effects do not dominate the potential benefits, patients see an improvement in their symptoms. IMO this occurs because this class of drugs also has powerful antihistamine effects and those patients probably have unresolved mast cell issues. But it's usually more practical to simply take antihistamines rather than to take an antidepressant or an anti-anxiety drug just to get the antihistamine effect.

Yes, it's true that most of us have to be constantly vigilant about our diet or we may suffer a relapse of symptoms. As with all IBDs, there are a few MC patients who occasionally enjoy periods of spontaneous remission, but most of us are not that lucky.

Please be aware that the regular formulation of Claritin contains lactose (at least this is true here in the States, it may be different in Canada). Because of that, most members here who use Claritin use the Claritin Redi-Tabs, because they don't contain that ingredient. There is a forum main category here on Mast Cells. From the "sticky" post there, this may contain the information that you were seeking about treating mast cell issues:

How are mast cell issues treated?

I'm making good progress on the book, but I still have a long way to go and I continue to find additional material that needs to be included. I'm not sure if I'll be able to finish it by the end of this year, but I'm going to try.

Thank you for the kind words, I appreciate them. Yes, I do stay busy, but comments such as yours make it very satisfying work.

Wayne
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Optimystic

United States

Joined: 12 May 2016

Posts: 8
User's local time:
2017 Oct 21 - 9:51 PM


Food Intolerances : Gluten, Dairy, Beef, Chicken, Pork
Location: Toronto

PostPosted: Mon May 16, 2016 5:24 pm    Post subject: Reply with quote

Thanks Wayne

I forgot to mention that you are also gracious. :) Your book arrived this evening. :)

I'll see if I can get a friend travelling in the States to bring me back some Reditabs. Thanks for the suggestion.
Is there another antihistamine, without lactose, that might do the trick?

Thanks again,
Jan
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 8:51 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon May 16, 2016 8:17 pm    Post subject: Reply with quote

I use Allegra (fexofenadine). Zyrtec (cetirizine) is another option, but I'm not sure if any members here use it. Many use Allegra.

You're very welcome,
Wayne
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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