Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

Visit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
A full recovery

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Member Success Stories
 View previous topic :: View next topic  
Author Message
nick

United Kingdom

Joined: 27 May 2013

Posts: 23
User's local time:
2017 Jun 27 - 3:42 PM




PostPosted: Thu Jan 26, 2017 11:20 am    Post subject: A full recovery Reply with quote

Hi...I have been symptom-free for the best part of a year now. I take no medication and follow no special diet. I eat gluten, dairy, lots of fruit and lots of vegetables...I eat anything I want!
My history? Late in 2011 I started a bout of watery diarrhea. When it didn't go away, I visited my doctor and fairly quickly was seen by a specialist who did a colonoscopy with biopsies. The biopsies revealed Microscopic Lymphocytic Colitis throughout the colon in multiple sites.

Drug therapy followed which didn't work. My specialist and I came to an agreement that, rather than go on to stronger drugs with side effects, I would try to live with the symptoms so long as they didn't trouble me too much. This was more or less ok to begin with but became boring after a while. I looked for alternatives and found out about gluten-free. Following a gluten-free diet was not difficult for me as I work from home and I was able to make my home a safe gluten-free zone.

After a fashion it seemed to help but I still suffered terrible flare-ups. I found this forum and was horrified and deeply depressed to find that gluten-free was only the beginning of a radical diet for most people. And for everyone it seemed as if there was no alternative to lifelong vigilance and avoidance of a bewildering array of foods.

For two-and-a-half years I followed a very strict gluten-free diet but I was never totally symptom-free. I tried selectively cutting out all sorts of foods, often eating a very limited diet for long periods to try to isolate the "problem food". All to no avail. Then, at the beginning of 2016 I had such an almighty flare-up that I went back to my doctor to ask to be put on strong drugs, whatever the side effects. But the flare-up was found to be nothing more than a Campylobacter infection, albeit a vicious one and it lasted a full 6 weeks. Shortly after this I had another flare-up and went back to my doctor to find out if it might be Campylobacter again. The test proved negative but my doctor suggested another celiac test. This meant eating gluten again for 6 weeks. Not wanting to have a "borderline" result I ate gluten morning, noon and night with absolutely no ill-effect. By this point my flare (they usually last about 6 weeks) was subsiding and it continued to subside as it usually would. The celiac test proved negative and I have continued to eat gluten ever since. I feel so much better now. Most of the troublesome minor symptoms have disappeared and I am able to enjoy my social life again I even went skiing this winter...imagine trying to get out of salopettes in a hurry!

I think it is important to make this point. The members of this group are, necessarily, those with ongoing symptoms and are therefore a self-selecting group. They may not accurately represent the majority of people's experience with the condition. Positive outcomes, such as mine, are therefore unlikely to be represented in these posts and the representation of the condition as lifelong and complicated to manage might not be entirely accurate.

If you are reading this as a newly diagnosed sufferer of Lymphocytic Colitis, I hope you will find a way to manage the condition. In my case, it took a long time but I am fine now. I don't believe diet had a part to play although my wife believes that gluten-free helped my gut to heal. I don't know...and I don't think anyone else does either.
_________________
nick
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30082
User's local time:
2017 Jun 27 - 9:42 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Jan 26, 2017 1:34 pm    Post subject: Reply with quote

Hi Nick,

You lucky devil! Laughing Congratulations. Sometimes weird things happen to change the course of our life. It's difficult to say what has happened, but if I had to guess, I would suspect that the Campoylobacter infection, plus the antibiotic treatment to eliminate it somehow changed your gut bacteria balance to a fortunate arrangement that changed your genetics, and that resolved your digestive issues.

It's well known that gut bacteria can change our genes, but unfortunately we don't yet know how to use that trick to our advantage. So at this point, trying to manipulate them amounts to pot luck. But you may have won the jackpot in the gut bacteria shuffle.

Or there may be some other reason for your miraculous recovery. Who knows? Nothing surprises me any more.

At any rate, I hope your remission continues forever, and thank you for posting an update.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1111
User's local time:
2017 Jun 27 - 7:42 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Thu Jan 26, 2017 5:41 pm    Post subject: Reply with quote

Great post Nick!

I hope to one day get my bacteria in agreement....until then I keep healing and enjoying my bristol 4-5 right now Wink I think stress is what does me in a lot of time so for now diet change isn't hurting me one bit Very Happy

So happy for your wonderful turn of events for your life that is simply spectacular!
Cheers
Erica
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Back to top
Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 805
User's local time:
2017 Jun 27 - 9:42 AM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Thu Jan 26, 2017 8:10 pm    Post subject: Reply with quote

Wow Nick, that's wonderful that you can eat normally again. At three years post-diagnosis my stools are almost completely normal but a little bit of hidden gluten makes me feel like I was hit by a bus. I think your story is not the norm for our group, but I'm happy for you.
_________________
Marcia
------------
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
Back to top
brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1800
User's local time:
2017 Jun 27 - 9:42 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Thu Jan 26, 2017 8:12 pm    Post subject: Reply with quote

Hi Nick,

Thank you for taking the time to post! I am really glad that you are doing well and shared your story!

Nick said,

Quote:
I think it is important to make this point. The members of this group are, necessarily, those with ongoing symptoms and are therefore a self-selecting group. They may not accurately represent the majority of people's experience with the condition. Positive outcomes, such as mine, are therefore unlikely to be represented in these posts and the representation of the condition as lifelong and complicated to manage might not be entirely accurate.


This is very true of internet forums and I think it is a real valid point. The folks that are doing well drop off the forum and are not posting.

I hope you are enjoying the yummy European cheeses!

Brandy
Back to top
nick

United Kingdom

Joined: 27 May 2013

Posts: 23
User's local time:
2017 Jun 27 - 3:42 PM




PostPosted: Fri Jan 27, 2017 12:45 am    Post subject: Reply with quote

Hi...thanks for the messages...in reply to Tex, I didn't take antibiotic (or anything else) for the Campylobacter. But I also wonder if it may have been the catalyst for my recovery.

My colitis began with a gut infection, very probably Campylobacter. I have minimal understanding about how these things work but I believe that when you have a gut infection, your body recognises this and sends a "message" to your colon to produce lymphocytes in order to get rid of its contents without absorbing any pathogens. When the infection is over your body (here I enter the realm of speculation) sends another message to tell it to stop producing lymphocytes. Except in my case, for some reason the message didn't get through. After a while, the messages ceased to be sent and I was left producing these troublesome lymphocytes ad infinitum. Years later, I get another infection and, when it is over this time, my body once again sends the message to stop producing lymphocytes and this time it is successful. Whatever was blocking the message telling my body to stop producing lymphocytes is no longer active.

As I said...I am no expert!

Good luck to you all
Nick
_________________
nick
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Member Success Stories All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright 20052017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery