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please help! having trouble with meds

 
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Mst

United States

Joined: 22 Feb 2017
Posts: 2
User's local time:
2017 Nov 20 - 12:00 PM




PostPosted: Mon Feb 27, 2017 6:13 pm    Post subject: please help! having trouble with meds Reply with quote

I was diagnosed with collagenous colitis a little over two weeks ago. My doc started me on entocort but the anxiety and no sleep/bad dreams was terrible. He then switched me over to Lialda. I have been taking it for 5 days and Im back to full time potty visitations. What do I do?The entocort was beginning to help the D but the anxiety was beyond my control!
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Gabes-Apg
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Joined: 21 Dec 2009

Posts: 7214
User's local time:
2017 Nov 21 - 3:00 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Mon Feb 27, 2017 6:19 pm    Post subject: Reply with quote

welcome to the group
(and sympathies for the Diagnosis and having to find us)

sorry you have had no luck with either medication.

Not sure how much reading you have done here, but what we have found is that for some (many people) medications have limited scope to work successfully if you are still having high inflammation trigger foods (like Gluten, Dairy etc) and also the success of the medications (and possible side effects) are impacted if you are deficient in Vit D3 and magnesium.

what sort of eating /drinking plan are you having day to day?
are you supplementing with Vit D3 and magnesium?
are you taking any other types of medications?
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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tex
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Joined: 24 May 2005

Posts: 30711
User's local time:
2017 Nov 20 - 11:00 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Feb 27, 2017 7:28 pm    Post subject: Reply with quote

Hi Mst,

Welcome to the group. Lialda usually doesn't work as quickly as budesonide (Entocort). It typically takes a couple of weeks or so. The reason why Gabes mentioned the magnesium and vitamin D is because virtually all IBD patients are deficient in vitamin D and magnesium. They're part of the reason why we have CC/LC/MC in the first place, and this disease also tends to deplete what's left of our vitamin D and magnesium reserves.

Healing requires a properly working immune system because the immune system controls healing. Vitamin D is the "fuel" that our immune system operates on, so if vitamin D is deficient, then healing is compromised. Magnesium is necessary for hundreds of vital chemical processes that take place constantly in the body, so if magnesium is deficient, many of those processes will not be completed normally.

Also, anxiety is one of the main side effects of magnesium deficiency. Entocort depletes magnesium, so the fact that the medication caused anxiety in less than a couple of weeks is strong evidence that you had very low magnesium reserves to begin with, and the drug quickly wasted what was left of your meager magnesium reserves. Your body is telling you that it desperately needs magnesium.

The Lialda might begin to help in another week or so. If you avoid all foods that contain gluten and all dairy products, the Lialda may work faster. But as Gabes mentioned, it doesn't work for everyone. When medications don't work, the only option left for controlling the disease is to avoid the foods in our diet that are causing the inflammation. As the inflammation fades away, the symptoms will also fade away.

Again, welcome aboard, and please feel free to ask anything.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Mst

United States

Joined: 22 Feb 2017
Posts: 2
User's local time:
2017 Nov 20 - 12:00 PM




PostPosted: Sun Mar 05, 2017 10:55 am    Post subject: Thank you Reply with quote

Thank you everyone. It's seems I've found the right place for support. After three days of unanswered phone calls to my GI doctor, the pharmacy called me with a prescription of cholestyram. I never did hear back directly from the drs office so I'm not sure if I take this together with the Lialda. Thank you again for your patience. This is all new to me!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30711
User's local time:
2017 Nov 20 - 11:00 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Mar 05, 2017 11:15 am    Post subject: Reply with quote

You can take cholestyramine concurrently with Lialda, but always take the cholestyramine either 1 to 2 hours after or 4 to 6 hours before taking any other medications or supplements because it will sequester (bind) most other meds and supplements so that you will be unable to absorb them.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
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Joined: 21 Dec 2009

Posts: 7214
User's local time:
2017 Nov 21 - 3:00 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sun Mar 05, 2017 1:51 pm    Post subject: Reply with quote

Here are some previous discussions about cholestyramine, other members experiences etc that may help you

http://www.perskyfarms.com/phpBB2/viewtopic.php...mp;highlight=bile
http://www.perskyfarms.com/phpBB2/viewtopic.php...mp;highlight=bile
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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