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Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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MLC and pregnancy

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unknown IP

Joined: 01 Sep 2014

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2018 Jan 19 - 4:51 AM

PostPosted: Sat Mar 18, 2017 3:10 am    Post subject: MLC and pregnancy Reply with quote

Hi everyone,

I am pregnancy (about 37 weeks now) and my doctor knows I have microscopic lymphocytic colitis. However, he keeps referring to my MLC as just "colitis" which is way different than UC or Crohn's as we all know. I was always wondering if he was realizing the difference or not...

My MLC has not made me lose weight, put me in the hospital for pain, caused me to lose blood, etc. My baby is right on target for height and weight. I even had my vitamin B tested (as my primary was SURE I had deficiency d/t MLC and being vegetarian and vegan) and I was right in the middle of the normal range. I've had MLC for 9 years and it hasn't gotten worse or better.

During the pregnancy, especially in the 3rd trimester, it's about the same. If anything has changed, its the amount of times I go to the bathroom. Instead of 3 times a day, sometimes its just 1.

My doctor at 36 weeks though wanted to "schedule a day in the OR just in case" because he doesn't want me going past 40 weeks with "colitis". He says it can really exacerbate the disease. Despite all the searching I do online, and my husband who is an MD and looking too, we can't find any guidelines to support this.

However, we could be wrong. I wanted to come here and see have any other pregnant women with MC or MLC been told the same thing?

Is it irresponsible of me to refuse a scheduled c-section at 39 weeks and undergo the risk of increasing the symptoms of my MLC?
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Site Admin

Joined: 24 May 2005

Posts: 31001
User's local time:
2018 Jan 19 - 3:51 AM

Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Mar 18, 2017 2:56 pm    Post subject: Reply with quote


I hope that someone here who has completed one or more pregnancies with LC will notice your post and respond, but in the meantime my thoughts are that pregnancy brings one of 2 responses from MC. About half of subjects see a dramatic improvement (relief) in their symptoms, while the other half see worsening symptoms. If my memory is on target, this change typically takes place during the first trimester when the diamine oxidase enzyme level increases by roughly 500 % or so.

This suggests (my opinion, not proven medical fact) that symptom improvement in such cases may be due to improved control of histamine levels as a result of the additional DAO enzyme availability. In such cases, mast cell activation disorder (MCAD) may be contributing to symptoms (prior to pregnancy).

I don't recall any member who opted for a C-section or even considered one.

I hope that this is helpful.


It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Marcia K
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unknown IP

Joined: 03 Apr 2014

Posts: 911
User's local time:
2018 Jan 19 - 3:51 AM

Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Sat Mar 18, 2017 3:16 pm    Post subject: Reply with quote

Hi, if you are on Facebook there is a closed group "Living with Lymphocytic Colitis." Someone on there might be able to answer your question.
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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