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Considering myself a success story until further notice....
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1001
User's local time:
2017 Apr 24 - 1:06 PM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Tue Apr 11, 2017 2:59 pm    Post subject: Reply with quote

Making a note regarding methylation - MC and Histamine:

I want to let those know that upon encouragement from Gabes to up my B6 (p5p active form) from 50 to 100mg along with my biotin, and B2 (riboflavin) I have done much much better in the histamine dept...in fact I have not used any Allegra this Spring (I am 2 years into healing as of this month).

I am not having the copious amounts of mucus like I am used to in all my years past!

I do Not have the MTHFR gene, but my husband does and he hasn't had the gut issues like I have and I haven't seen him have mucus issues either, and he has only been taking the thorne methyl-guard plus for 3/4 of a year now and I can see an improvement in his attitude, energy, and quality of life. Not sure if this has anything to do with my non-use of antihistamine but thought I would state it anyway. My husband has always dealt better in dealing with histamine than I ever have...which seems to contradict the methylation/MC theory a little bit. Perhaps because he is a County Road Dept worker who works outdoors a lot he has always gotten more VitD (and he doesn't have VDR issues uptaking it into his system as I do) and therefore that has been a contributing factor in his ability to stave off the potential histamine issue for him, who knows.
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1001
User's local time:
2017 Apr 24 - 1:06 PM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Mon Apr 17, 2017 5:24 pm    Post subject: Reply with quote

Another update to this healing journey.

I must have finally made it to another echelon on this mountain we climb because I have been experiencing Bristol 4 and 5 all week long for about 7 to 8 days now...I felt maybe it was a fluke but it seems to be a new normal. I have even been able to add in some romaine lettuce and I flavor it with a little bit of veganaise and ketchup to make a thousand island mixture.

I still stick with my safe foods, and now that I am 2 full years into healing being really strict with myself and aiding my body with proper Magnesium and getting my VitD levels up they are at 84 which is outstanding compared to 19 in 2011. I am getting good absorption of my B vitamins and the histamine has tapered back (even in this wild and wacky Spring).

Healing is hidden - you don't really know it is happening until you start to see tiny flickers here an there. One day, after it feels like forever ago, the body starts to run smoother than you've ever remembered it running. It feels like it will never get better....but that never changes ;-)

I've lost muscle tone over these last two years more than I care to have leave, but I am hoping I can gain some of it back in the coming years. My new diet is taking care of me very well. I told my husband yesterday that I have met the hurdle of what kinds of foods I can eat and what I can rely on at this time, the next hurdle is how to branch that out into being able to travel and trust myself to make the right decisions and have choices that are safe for me moving forward. I think once I get comfortable with that hurdle I will feel like I have mastered my body and its new requirements to life.

Not gonna lie, the beginning was tough, I was scared, sad, angry, and not so very hopeful that I was cut out to kick this MC to the curb. But I did it!! I know it will always be lingering in the background ready to find faults in my decisions....I can deal with it now.

I'm not perfect, but I'm not as sick as I was either!
I'm living again party people
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 29881
User's local time:
2017 Apr 24 - 3:06 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Apr 17, 2017 7:28 pm    Post subject: Reply with quote

thumbs up

Excellent update! Good for you.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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DB



Joined: 31 Jan 2017
Posts: 20
User's local time:
2017 Apr 24 - 3:06 PM




PostPosted: Sat Apr 22, 2017 5:55 pm    Post subject: Reply with quote

Erica, congratulations on your new level of poo! ;-). I can't wait to be able to say that myself. I've had a few formed stools in the past month or so and it's pretty funny how excited I get when that happens... it's actually possible!

I've been taking a pretty low dose (just 1.5g/day) of Cholestyramine for the past month (after having a wicked reaction to Budesonide), and it's definitely helped with controlling my symptoms, but I think it might be making me dizzy (a bit hard to tell, since I already had issues with positional vertigo, but it seems a little different than the usual). I was just wondering if you are still taking the Cholestyramine and if you've noticed any side effects...?
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