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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30151
User's local time:
2017 Jul 23 - 6:43 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Apr 20, 2017 4:48 pm    Post subject: Reply with quote

Gracie,

I've added your results to the list. Compared with most others, those appear to be fairly typical results.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Deb
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United States

Joined: 20 Nov 2010

Posts: 1487
User's local time:
2017 Jul 23 - 6:43 PM


Food Intolerances : Gluten, still determining others
Location: Minnesota

PostPosted: Fri Apr 21, 2017 5:24 am    Post subject: Reply with quote

Thanks Tex. I appreciate you and your extensive knowledge. Deb
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30151
User's local time:
2017 Jul 23 - 6:43 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Apr 21, 2017 10:48 am    Post subject: Reply with quote

Deb,

You're very welcome. And I appreciate you and all your contributions to the forum.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SusanneK
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jul 23 - 6:43 PM



Location: Louisiana

PostPosted: Mon Jun 05, 2017 9:19 am    Post subject: Reply with quote

I got my results today:

Anti-gliadin 308
Anti-casein 25
Anti-ovalbumin 8
Anti-soy 15

Mean value 11 antigenic foods 14

No reactivity : pork, walnut, cashew

1+ oat, rice, corn, tuna, beef, chicken, almond, white potato

2+ none

3+ none

Had not expected that high a value for gluten! On the other hand, I'm glad I can eat eggs once in a while.

Would the high gluten value indicate celiac disease? Is there a point in getting tested when the fact is I have to stay away from gluten no matter what? I think I have read that to get diagnosed in a blood test, I'd have to eat gluten for weeks which seems very counterproductive.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30151
User's local time:
2017 Jul 23 - 6:43 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jun 05, 2017 10:34 am    Post subject: Reply with quote

Hi Susanne,

You are correct, it would be rather pointless to suffer through a gluten challenge just to prove that you are a celiac. The blood tests that screen for celiac disease are not very sensitive or reliable anyway. They miss about 80 % of celiac cases. You would have to do an upper endoscopy and take biopsies to confirm celiac disease, and that's a very invasive procedure. It's the one that resulted in Joan Rivers' death.

The stool tests are far more sensitive by several orders of magnitude. They will detect gluten antibodies for up to 2 years after gluten has been withdrawn from the diet, whereas the blood tests are only reliable for a few months at best. If you have a celiac gene (either DQ2 or DQ8) you probably have the disease already or you would be likely to develop celiac disease eventually if you continue to eat gluten. If you don't have a celiac gene then you have non-celiac gluten sensitivity so you need to completely avoid gluten anyway.

Actually, high numbers on the tests used by EnteroLab are not usually associated with severity of disease — instead, they indicate roughly how long the sensitivity has existed. Antibody levels continue to increase over time as long as exposure to an antibody continues. The higher the number, the longer you have been reacting.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SusanneK
Adélie Penguin
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Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jul 23 - 6:43 PM



Location: Louisiana

PostPosted: Mon Jun 05, 2017 10:59 am    Post subject: Reply with quote

Thank you, Tex.

Do I also have to completely avoid the foods under the 14 unit mean value? I have been eating some of them and I'm doing fine. But if they still do damage, I would want to avoid them of course.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30151
User's local time:
2017 Jul 23 - 6:43 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jun 05, 2017 11:14 am    Post subject: Reply with quote

You're handling it right. With an overall score of 14 on that result you may or may not have problems with the 1+ foods. In some cases it depends on how often the foods are eaten.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SusanneK
Adélie Penguin
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unknown IP

Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jul 23 - 6:43 PM



Location: Louisiana

PostPosted: Mon Jun 05, 2017 12:08 pm    Post subject: Reply with quote

Thanks, Tex, I really appreciate your advice.

I now got an email from Enterolab recommending that I get an intestinal fat malabsorption stool test. They can do it with the sample they have, all I have to do is pay for it...

Any thoughts on that?
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30151
User's local time:
2017 Jul 23 - 6:43 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jun 05, 2017 1:39 pm    Post subject: Reply with quote

Well, the test will tell you how bad your malabsorption problem might be (in your small intestine) if you really want to know, but many of us have a malabsorption problem when our MC is active. If you do have a malabsorption problem it will fade away on a gluten-free, casein-free, and soy-free recovery diet as your intestines heal.

I had the test, and the result showed malabsorption, but if I had it to do over, I think I would save my money FWIW. It is a good test for celiacs to have though because it shows you how much damage has been done to your small intestine (and therefore how much healing has to be done).

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SusanneK
Adélie Penguin
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unknown IP

Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jul 23 - 6:43 PM



Location: Louisiana

PostPosted: Mon Jun 05, 2017 3:38 pm    Post subject: Reply with quote

Thanks again!!

I shudder to think what would have happened if I hadn't found this site and had to rely on a GI doc!

I'm very thankful for you guys.
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Gabes-Apg
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Joined: 21 Dec 2009

Posts: 6907
User's local time:
2017 Jul 24 - 10:43 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Mon Jun 05, 2017 3:45 pm    Post subject: Reply with quote

Susanne
with the gluten and soy result, when you get a chance, double check your bathroom / make up products and ensure that;
in regards to gluten is no wheatgerm in shampoos, moisterisers etc some make up brands have gluten in lipsticks etc
in regards to soy - be cautious of moisterisers etc where the one of the top 4 ingredients is Vit E (this is soy) Lip blams etc are very high risk for soy etc

I react to soy worse than gluten so can not use any product with Vit E in it.
I use things like rosehip oil, coconut oil, lanoline, pure shea butter for face and body.
iHerb have good coconut based hair products etc.

we also have a section on the forum where this is discussed.
http://perskyfarms.com/phpBB2/viewforum.php?f=69

With the gluten result and the overall score result you may be a bit more sensitive to topical Soy than others.
hope this helps
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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SusanneK
Adélie Penguin
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unknown IP

Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jul 23 - 6:43 PM



Location: Louisiana

PostPosted: Mon Jun 05, 2017 6:38 pm    Post subject: Reply with quote

Thank you, Gabes - that's very good information.

I did not know that Vit E is soy!

I don't really use make up, but lip balm, lotion, sunblock, soap, shampoos and conditioners - I am going to check carefully for ingredients.

This really is a jungle. I can't imagine how sick I'd still be if it wasn't for you guys!
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SusanneK
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 24 Jun 2016

Posts: 50
User's local time:
2017 Jul 23 - 6:43 PM



Location: Louisiana

PostPosted: Mon Jun 12, 2017 3:05 pm    Post subject: Reply with quote

I ended up getting the malabsorption test, and it showed everything is NORMAL.

That is a big relief. Mostly because I probably don't entirely understand how everything works - but any test that comes back normal is a little victory in my book! Very Happy
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