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Marshmallow root
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HockeyMom
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Food Intolerances : Gluten, dairy, soy, rice, chicken, almond, etc/etc/etc/etc...
Location: Colorado

PostPosted: Wed May 17, 2017 10:22 am    Post subject: Marshmallow root Reply with quote

Anyone here used marshmallow root? Just wondering as a friend mentioned it to me..

Laine
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humbird753
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Food Intolerances : Gluten, Casein
Location: Wisconsin

PostPosted: Thu May 18, 2017 1:11 pm    Post subject: Reply with quote

I used Marshmallow Root. It was one of the ingredients in a homemade cough syrup recipe I made. What does your friend say it's for?
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humbird753
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Food Intolerances : Gluten, Casein
Location: Wisconsin

PostPosted: Thu May 18, 2017 1:14 pm    Post subject: Reply with quote

Just read this, and see that it's also good for the gut. It never gave me problems when I used it in cough syrup.

https://draxe.com/marshmallow-root/
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Fri May 19, 2017 7:50 pm    Post subject: Reply with quote

Laine
my experience over the past 7+ years is that the herbs that help IBS, crohns etc have not worked so well (or at all) for MC.

In the early stages of healing, be cautious with herbs etc. depending on if they are liquid or tablet and what other ingredients are part of the formula.

as Paula mentions above, she tolerated it ok
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HockeyMom
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Food Intolerances : Gluten, dairy, soy, rice, chicken, almond, etc/etc/etc/etc...
Location: Colorado

PostPosted: Mon May 22, 2017 10:33 am    Post subject: Reply with quote

Just wondering. Haven't tried it, just am in a bad flare (wow, on top of the bad year I've had...things had been going well though..) and they thought it might settle things down right now. I started the Pepto thing again last week and am hoping my gut stops churning soon. Bloated too. This is day 2 of calling in sick at work...lucky that I was off Wednesday and Thursday last week.

Usually immodium helps slow things down but not right now. Think I've lost the precious 3-4 pounds that I had managed to gain back Sad , haven't been on the scale, just think that's the case. I really think I am heading back to Entocort but not sure about that as the GI doc won't prescribe it until I do another colonoscopy (bailed out of the one set for February cause I was wearing the heart monitor for the month back then with the crazy high heart rate thing which has settled down...probably with upping the magnesium). The thought of wrecking myself with the prep just terrifies me right now. I can not lose any more weight or cut my diet back any further really...

Think part of this was cutting down the cholestyramine thinking I was doing so well....might have been wrong on that....

Laine
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HockeyMom
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Food Intolerances : Gluten, dairy, soy, rice, chicken, almond, etc/etc/etc/etc...
Location: Colorado

PostPosted: Mon May 22, 2017 10:44 am    Post subject: Reply with quote

And my mom just sends me the name of the new miracle drug for IBS......"Kijimea IBS"!!!!! Looking at the add, it's some certain strain of probiotic from Germany I believe. Shocked Shocked Shocked

Think I freaked her out telling her that I'm not sure of my ability to work unless this straightens out soon, cause you really can't do my job if you have 45 seconds of warning to get to a bathroom to have high volume watery diarrhea (dropping your stroke patient in the hallway while you are working on gait and weight bearing activities would get me fired anyway...).

Laine
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Mon May 22, 2017 2:07 pm    Post subject: Reply with quote

Laine
if the reduction of cholestryamine has allowed a major flare, that immodium is not able to help with then you are still having contact (either via food or externally) to too many triggers. The inflammation levels are too high for the meds to help.

what is your current eating, drinking supplement plan?

I would not start any herbal type treatments until you have at least 4-6 months of 'stability' with current eating plan and lifestyle etc.
so the body can optimise the healing properties of the herb.
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HockeyMom
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Food Intolerances : Gluten, dairy, soy, rice, chicken, almond, etc/etc/etc/etc...
Location: Colorado

PostPosted: Mon May 22, 2017 6:26 pm    Post subject: Reply with quote

Hey Gabes-
Im sure I added stuff in that I shouldn't have. I was doing well so figured I'd try and cut back on the cholestyramine since that seems to be the concensus around here!! My bad...

Added things in slowly I thought....eggs (tested ok with those on Enterolab years ago...maybe not so good anymore, or would be ok less frequently..), my tapioca bagels (only have tapioca starch and coconut in them really), some highly overcooked spinach. Otherwise just the usual overcooked vegies (acorn/
butternut squash, carrots, zucchini), white sweet potatoes, lamb/turkey/cod/elk, water/black tea, taro chips, avocado/banana, apple sauce and sunflower seed butter. Did try some very overcooked cauliflower mixed with the sweet potatoes a couple times... Will admit to the occasional piece of dark chocolate with no bad stuff in it...

Magnesium-was doing 200 mg mag glycinate broken up with meals, total of 300 mg Remag and about 180 of oil spray. 6,000 of VitD. Zinc meltie. And vitamin B6 and B12. Again, all this seemed to be ok until I did the wierd menopausal thing for a day or 2 and spotted and that seemed to kick this whole deal off, well, that and me sorta dropping my cholestyramine dose about the same time. I'm also using progesterone cream 2x/day which seems to have knocked the wierd menopausal "I feel like I'm gonna start my period" everyday thing.

I don't know, maybe I picked up some stomach bug as alot of my coworkers have had something like it or their kids have.

Laine
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Mon May 22, 2017 6:39 pm    Post subject: Reply with quote

I am thinking that the combo of hormone changes (depletes zinc, b6 and magnesium) along with seasonal changes (spring increased pollen etc) with your eating plan ( there are a few high histamine items with avocado, banana, small amounts of chocolate etc) with adding things back in - was maybe a bit too much for your delicate still healing system.

is the B12 and B6 active forms?
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Gabes-Apg
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Mon May 22, 2017 6:45 pm    Post subject: Reply with quote

given your reaction this time, I would only reduce the cholestyamine if everything else (hormones, diet, workplace etc) is really stable OR you are getting too constipated.

the other thought is that the higher dose of cholestryamine was masking reactions to things in your eating plan, and the reduction in dose highlighted this. (I get after everything that has happened in the past year, you may not want to hear this... )
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tex
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon May 22, 2017 8:15 pm    Post subject: Reply with quote

Laine,

I'm thinking that you may have picked up a stomach bug and on top of everything else, that started this flare. But once started, a flare can be mighty tough to stop. Incidentally, some people can't tolerate tapioca starch (I couldn't when I was recovering). You may need to stop the supplements to stop the flare, including the magnesium.

Tex
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brandy
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Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Mon May 22, 2017 8:59 pm    Post subject: Reply with quote

Hi Laine,

Last August after a 4 month flare that would not end no matter what I had to stop my supplements (all the oral ones) and pretty much switch to a straight protein diet for several days. After several days of no supplements and just protein I started getting pencil stool.
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brandy
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PostPosted: Mon May 22, 2017 9:01 pm    Post subject: Reply with quote

Quote:
Gabes said
Quote:
the other thought is that the higher dose of cholestryamine was masking reactions to things in your eating plan, and the reduction in dose highlighted this.


I've definitely experienced this.
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HockeyMom
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PostPosted: Thu May 25, 2017 8:27 am    Post subject: Reply with quote

Hey Guys-
Thanks for all the input. Think this may be the perfect storm. I havent had this sort of liquid diarrhea since this went off the rails in 2011. Pepto helped then and I've used it for shorter periods since then. Baseline I have had tinnitus I think my whole life.....so whatever!!!

Haven't done the mag pills in a week. Have upped the oil/lotion and continue to do 300 mg of ReMag. Should I cut the ReMag?? Can cut out the other stuff I guess. Haven't had a banana in a few days...can cut the avocado out too..

Had to call in and start the whole short term disability thing with work yesterday as that was day 4 calling in sick and that's the policy. Having dealt with the Time Away From Work people (I work for a huge hospital system that farms this stuff out...these people are far from helpful, dealt with them 2x last year with my husband's surgeries and ultimate death) in the past...I dread this stuff. Fortunately I have worked for this system for years so have alot of EIB (extended illness bank-grandfathered in at this point) built up.

I am surprisingly calm about all this Gabes, which I think speaks to my mag levels!!! I was so worried about where my life was going last year and now I've sort of resigned myself to the fact that I have absolutely NO control over what happens. I can only work on myself and hope that I get better. I've given up on my old life and just want to get to some sort of life outside this house. Have to go take a shower now as I have a dr appt to get to (PCP) so that they can fill out the expected paperwork...will take in my own stool sample (had a sort of semi formed first BM yesterday morning, all liquid after that). And, getting to the dr's will be dicey, but after all these years I've taken to carrying a large barf bucket in the car which I've had to use NUMEROUS times to poop in because I couldn't get out of that car fast enough. Of course those times were basically soft serve poop, not the straight up liquid stuff I'm doing now...

Again, thanks guys. Have been doing the pepto for about a week, hoping it starts to firm me up some, like I said, was some form to it yesterday am.

Beautiful day here in Colorado!!

Laine
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brandy
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Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Thu May 25, 2017 10:56 am    Post subject: Reply with quote

Hi Laine,

Sorry you are suffering.

My experience was that I had to cut oral mag glycinate in order to stop WD. I was VERY reluctant to do so because it really helps me to sleep. Short term I switched to epsom salt baths and mag spray. I was able to reintroduce the oral mag glycinate after about 6 weeks.

I have not used Remag. Dr. Dean talks on her website that it can cause D. Consider stop it for awhile and switch to epsom salt baths and mag spray then reintroduce the Remag when things are more stable.

Last summer i had to eliminate every oral OTC supplement I was taking in order to work back into remission.

I remember for about 3 days I ate just protein and broth. After struggling for 4 months with WD I bounced back somewhat quickly by eliminating all of my supplements and eating just protein and broth for 3-4 days. Three to four days of this regimen got me "ribbon stool."

8 pepto a day or higher dose of cholestyramine or budesonide?
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