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Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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LDN

 
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Erica
Little Blue Penguin
Little Blue Penguin
Canada

Joined: 28 May 2014

Posts: 39
User's local time:
2017 Sep 22 - 7:00 PM


Food Intolerances : gluten/dairy/fibre/food needs to be boiled
Location: Canada

PostPosted: Tue Aug 01, 2017 1:28 pm    Post subject: LDN Reply with quote

Has anyone used LDN therapy? If yes, was it helpful? Is it better than using entrecort?
The magnesium topical spray-how much are you supposed to use? How often? Could using this cause more D?
Has anyone used psyllium husks at night to help with D? Any success?
I am so frustrated because I am on 6-7 Imodium/day and I take 1-2 entrecort a week and am unable to get off the entrecort. if I do stop the entrecort my stomach gets weak.
Thank you.
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7065
User's local time:
2017 Sep 23 - 10:00 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Tue Aug 01, 2017 2:58 pm    Post subject: Reply with quote

HI Erica
I have tagged some LDN users on FB to hopefully come and reply about LDN

magnesium - topical use WILL NOT cause D (that is why we encourage its use.) how much to use, the aim is to get at least 400mg elemental magnesium per day, (if you can do up to 600mg that would be great) the bottle will say how many ml or how many sprays etc = how much elemental magnesium. regards to how often, spread it out so you get the 400mg-600mg applied each day.

Psyllium husks - although recommended for IBD's I have not seen any MC'ers benefit from it. Some members have had success with Slippery Elm powder - finely ground (not as capsule as fine powder on food)

are you taking Vit D3?? medications like entocort have limited scope of success if you are deficient in Vit D3
also - what is your eating and drinking plan?? are you following the suggested eating plan??
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Sheila
Rockhopper Penguin
Rockhopper Penguin


Joined: 18 May 2011

Posts: 1127
User's local time:
2017 Sep 22 - 7:00 PM


Food Intolerances : gluten, eggs, cow's milk, soy, guar gum, whey, goat's milk, cocoa, crab, carrot, amaranth, kamut,
Location: Palm Beach Gardens, Fl

PostPosted: Tue Aug 01, 2017 6:59 pm    Post subject: Reply with quote

Hi Erica,
I'm taking LDN for my Sjogrens Syndrome, not MC. Diagnosed with MC 2010-11, had Enterolab tests, began a Paleo diet and budesinide (Entocort). I took 3 mg of budesinide, more caused constipation. It stopped the diarrhea from day one. For several reasons, I stayed on budesinide for 2 years, weaning off the last 3-4 months and have been in remission since then. LDN wasn't on the radar back then. I don't think LDN would hurt you, I just don't know if it will help. There are a few with MC who swear by LDN. Hopefully, they will be able to help you.

Sheila W
_________________
To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
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deb51

United States

Joined: 22 May 2017
Posts: 12
User's local time:
2017 Sep 22 - 6:00 PM


Food Intolerances : gluten, dairy,soy
Location: North Dakota

PostPosted: Tue Aug 01, 2017 11:07 pm    Post subject: Reply with quote

What is LDN? Confused
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7065
User's local time:
2017 Sep 23 - 10:00 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Wed Aug 02, 2017 2:29 am    Post subject: Reply with quote

Deb
Low Dose Naltrexone.

there are some posts about it in the main message board or that can be found via doing a search.

some people here, namely those with multiple AI issues, have had some good success with using LDN.
others have not.

It is not generally prescribed by mainstream medical doctors. it is functional doctors and practitioners that prescribe it and you obtain the script from a compounding pharmacy.
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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deb51

United States

Joined: 22 May 2017
Posts: 12
User's local time:
2017 Sep 22 - 6:00 PM


Food Intolerances : gluten, dairy,soy
Location: North Dakota

PostPosted: Wed Aug 02, 2017 7:46 am    Post subject: Reply with quote

Thank you Gabes. Smile
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