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fletch14

United States

Joined: 08 Aug 2017
Posts: 19
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : DAIRY

PostPosted: Tue Aug 08, 2017 1:48 pm    Post subject: New to this forum - please help! Reply with quote

Hi, I have had both lymphocytic colitis (about 5 years ago) and collagenous colitis (diagnosed in February of this year). I was on budenoside for 3 months (9 mg, 6, then 3)... and was fine for the last few months, but as of late, it seems to be flaring back up again.

I spoke with my doctor and he recommended Imodium AD for the next six weeks and I should see how I do.

Are there any other options? Have others gone back on the steroid, or no? Are there dietary changes I should make? How do I keep this at bay? I am having a lot of D and stomach cramping.

Any advice would be much appreciated! Thank you!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Aug 08, 2017 2:00 pm    Post subject: Reply with quote

Hi Fletch,

Welcome to our Internet family. Yes, you can go back to the meds, but each time you restart them, they become a little less effective until they eventually quit working. We have found that the reason why the symptoms keep coming back is because of food sensitivities that develop as a result of the increased intestinal permeability (leaky gut) caused by gluten. Many doctors deny this, but they are wrong. We're not necessarily celiacs, but we all have non-celiac gluten sensitivity. And that leads to other food sensitivities. To permanently stop the inflammation from being regenerated each time we eat, we have to change our diet to avoid all our food sensitivities.

Again, welcome aboard, and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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fletch14

United States

Joined: 08 Aug 2017
Posts: 19
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : DAIRY

PostPosted: Tue Aug 08, 2017 2:23 pm    Post subject: Reply with quote

Hi Tex! Thanks for your response. This is helpful to know. I found a recommended diet to start with on this board - with various stages. Would you recommend going on that for now? I have been off dairy for years, but I was eating gluten. I am guessing I should try going off gluten too?

Thanks again!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Aug 08, 2017 3:00 pm    Post subject: Reply with quote

Yes, gluten is the main offender. And if the diet you found was in the following section, it should do the job.

Guidelines for Recovery

Good luck, you're on your way to recovery. thumbs up

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7070
User's local time:
2017 Sep 24 - 6:44 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Tue Aug 08, 2017 9:12 pm    Post subject: Reply with quote

Welcome Fletch

yes the guidelines to recovery section with the stage 1 and stage 2 eating plans is what most people find very helpful to minimising issues and optimising healing.

on the post about the stage 1 eating plan, is quite a bit of information (links to articles etc) about gluten and why it is so inflammatory to the body (not just those with MC or IBD's but for all the population)

hope this helps
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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fletch14

United States

Joined: 08 Aug 2017
Posts: 19
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : DAIRY

PostPosted: Wed Aug 09, 2017 6:57 am    Post subject: Reply with quote

Thank you both very much!
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fletch14

United States

Joined: 08 Aug 2017
Posts: 19
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : DAIRY

PostPosted: Wed Aug 09, 2017 7:48 am    Post subject: Reply with quote

Hi Tex and Gabes,

I have started the diet... at what point would you recommend starting to integrate new foods? How much time after feeling well do you start the new foods?

Thanks! Kim
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brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1921
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Wed Aug 09, 2017 9:48 am    Post subject: Reply with quote

Pick up Tex's book (upper right hand corner) if you have not already done so.

Welcome!
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brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1921
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Wed Aug 09, 2017 9:48 am    Post subject: Reply with quote

Early on narrow diet is better. Don't over rush to incorporate new foods. Stick to safe foods while you are healing.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Aug 09, 2017 10:03 am    Post subject: Reply with quote

Brandy is right about not rushing. My case might be unique because I was so sick, but even though I tried often, it took me about a year and a half of healing (following the adoption of a very restrictive diet) before I was able to successfully reintroduce any foods such as corn and raw vegetables. By trying unsuccessfully to reintroduce foods, I probably slowed down my healing. What you will be able to successfully reintroduce depends upon your personal genetics/situation.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 850
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Wed Aug 09, 2017 5:18 pm    Post subject: Reply with quote

Hi, Fletch. Nothing to add, just wanted to say hello and welcome to our group. It's the best one around for help on your journey to healing.
_________________
Marcia
------------
My mission in life is not merely to survive, but to thrive and to do so with some passion, some compassion, some humor and some style. - M. Angelou
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7070
User's local time:
2017 Sep 24 - 6:44 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Aug 10, 2017 12:29 am    Post subject: Reply with quote

only integrate new foods when;

- you have had good stable period of minimal symptoms ie at least 2 months of next to no symptoms
- when you are in a good place with life - sleep quality, family life, work life etc

the longer you stay on the 'safe eating plan' the better quality healing journey you will have. as we age and as we have more flares, the bodies ability to heal reduces. I strongly encourage you to make the most of the first healing journey..
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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fletch14

United States

Joined: 08 Aug 2017
Posts: 19
User's local time:
2017 Sep 24 - 2:44 AM


Food Intolerances : DAIRY

PostPosted: Thu Aug 10, 2017 7:26 am    Post subject: Reply with quote

Thank you everyone!
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