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Casein/Lactose Q

 
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MBombardier
Rockhopper Penguin
Rockhopper Penguin


Joined: 14 Oct 2010

Posts: 1524
User's local time:
2017 Sep 24 - 12:41 AM


Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Fri Dec 10, 2010 4:17 pm    Post subject: Casein/Lactose Q Reply with quote

Here's some background before my Q: I began my GF journey in late September, and also went (what I thought was) lactose-free at the same time. I didn't understand then that just because something is made of goat or sheep milk doesn't mean it is LF, especially if it's a soft cheese, so the D continued unabated. Someone mentioned that I might be allergic to casein, so I quit cheese, and the D gradually stopped.

Then I ran across a website saying that LF people can eat cheese made with cultured milk and/or cheese with zero carbohydrates. I discovered that the cheddar that I buy qualifies on both counts, so I began to eat it again, and a hard goat cheese. Since then, I have even begun to eat mozzarella sticks with less than 1 g of carbohydrate without a problem.

So my question is: Is it likely that I am not lactose intolerant or allergic to casein? Or just not lactose-intolerant but the jury is still out on casein? I realize that testing will provide the ultimate answer, but in the meantime, is there a likelihood that am I goofing things up by continuing to eat cheese? Or... would the SCD be a good option for me?

Sorry, that was more than one question. Smile
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Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:41 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Dec 10, 2010 6:54 pm    Post subject: Reply with quote

Marliss,

Most aged cheeses can be tolerated by someone who is lactose-intolerant, because they contain very low amounts of lactose. (You are correct - the soft cheeses contain much higher amounts of lactose). Even the aged cheeses are loaded with casein, though, so if you can eat cheddar cheese without any problems, then you are apparently not casein-sensitive. Only proteins can cause an autoimmune reaction, so lactose cannot cause an autoimmune reaction, (since it is a sugar). What doctors refer to as "lactose intolerance" is not really an intolerance, (at least not in the same sense as food sensitivities that can cause autoimmune reactions). The commonly-accepted medical definition of "lactose intolerance" simply implies the inability to digest lactose in a normal manner. In lactose-intolerant people, instead of lactose being digested in the small intestine, it passes into the colon, where it is "digested" by the process of fermentation, resulting in gas, bloating, foul-smelling flatus, etc. Of course, if it is digested in the colon, then virtually all of the nutrients are lost to the bacteria, gases, etc, since they cannot be absorbed from the colon, anyway. (Only water and electrolytes can be absorbed by the colon).

Here's the way that "lactose intolerance" enters into the picture for someone with MC:

Any type of enteritis, (whether due to an IBD, celiac disease, or even the flu, causes the brush border region of the small intestine to lose the capacity to produce lactase enzyme. (Lactase is necessary to digest lactose). As the production capacity for lactase diminishes, the individual will be able to digest smaller and smaller amounts of lactose, before developing the symptoms of lactose intolerance, (bloating, diarrhea, etc.). If the enteritis is severe enough, or if it lasts long enough, lactase production can almost totally cease. The result is what everyone calls "lactose intolerance", but it is a temporary condition, because as soon as the enteritis passes, the small intestine will regain it's ability to produce lactase enzyme in normal amounts, again, (assuming that the patient was not "lactose intolerant" to begin with, because of a genetic problem). With the flu, "lactose intolerance" usually lasts from a few days to a few weeks. With MC, lactose intolerance can last indefinitely, (as long as the inflammation is present). Once remission is achieved, though, the ability to produce normal, (or close to normal), amounts of lactase enzyme should slowly return.

IOW, that is why you may be currently "lactose-intolerant", even though you apparently are not casein-sensitive.

Goat and sheep milk lactose and casein amino acid chains are very similar to the corresponding amino acid chains for cow's milk, but there are slight differences in certain locations in the chains, resulting in slightly different peptides. This means that some people who cannot use cow's milk, can safely use sheep or goat milk. In general, though, most people find little difference in their response to sheep or goat milk, compared with cow's milk.

Since you don't appear to be casein-sensitive, that suggests that you should be able to utilize the SCD. If you decide to do that, please keep us posted on your progress.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MBombardier
Rockhopper Penguin
Rockhopper Penguin


Joined: 14 Oct 2010

Posts: 1524
User's local time:
2017 Sep 24 - 12:41 AM


Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Fri Dec 10, 2010 9:19 pm    Post subject: Reply with quote

Aha, so I had it just backwards. I will likely be lactose-intolerant at least until remission, but at this point, apparently I am not casein-sensitive.

The SCD seems to have many similarities to the Paleo diet, which I am also researching. I will let y'all know. Like Mary Beth, it's hard for me to live without cheese...

Thanks so much, Tex!!

Just for the record, it's hard to type with a sleeping grandbaby on my arm. Very Happy
_________________
Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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Gloria
King Penguin
King Penguin


Joined: 07 Jul 2007

Posts: 4754
User's local time:
2017 Sep 24 - 2:41 AM


Food Intolerances : gluten, soy, casien, eggs, legumes, Pepto Bismol, all fruit (incl. tomatoes), all root vegetables, onions, peppers, carrageenan, chicken, beef, orange roughy, cucumber, vinegar, all squash, chocolate, olives, buckwheat, millet, tapioca, sorghum, rice
Location: Illinois

PostPosted: Fri Dec 10, 2010 9:50 pm    Post subject: Reply with quote

Marliss wrote:
Just for the record, it's hard to type with a sleeping grandbaby on my arm.


Awww - I'm jealous. They are infants for such a short time. Enjoy it to the fullest.

Gloria
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You never know what you can do until you have to do it.
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Merry

unknown IP

Joined: 02 Sep 2017
Posts: 1
User's local time:
2017 Sep 24 - 12:41 AM


Food Intolerances : newby, as yet unsure
Location: California

PostPosted: Sun Sep 03, 2017 10:41 am    Post subject: Reply with quote

NEWBY here...I have had unrelenting diarrhea for four and a half months. Now on my second GI doc as the first was a disappointment. I've now undergone a plethora of the usual screening tests with my new doc finding nothing. I have a colonoscopy scheduled for later this month; it's looking more and more like this will confirm MC. My life is utterly changed and I am impatient to begin to try to minimize symptoms because tiny meals are not failsafe and Imodium is clearly not a magic bullet. I'm in my early 70s and have had IBS for many years, a couple of intestinal surgeries over my lifetime, but never with life changing symptoms. After reading on this site I am both ecstatic to find community, and depressed as to what my future may hold.
I was on Sertraline (for Zoloft) for years before my then doc, switched me to 10mg. of Escitalopram (for Lexapro). She said it was just good to switch it up however they are both SSRIs. Exactly coinciding with onset of D, I was switched to 20mg. of Escitalopram by a psychiatrist with whom I was consulting to help me wean from Klonopin 2mg./bedtime which I've been taking for years. (I'm now at a very low dose of .25mg Klonopin) wondering if the switch to 20mg.of Escitalopam to compensate for the wean process of the Klonopin, kicked me over the top and could have been a causative factor in the MC, and whether my years on Zoloft could be a major causative factor as well. (Do symptoms sometimes delay?) Because of the change from 10 to 20 mg. coinciding with the D, I went back to 10mg. which the shrink said was a very low dose and can be stopped without a lot of fanfare. As of this morning, I am cutting those in half and plan to stop altogether in about a week. Doctors do not pay much attention to the role of meds or diet in all of this and I am prepared to take a major role in my treatment and to stay respectful of docs who seem to know or care less about these aspects than is helpful and appropriate. For example, because I have been losing about a pound a week over these last months, my GI guy told me to eat lots of sugar which is contraindicated for my osteo-arthritis. I did, however, put a generous heaping of sugar into a morning shake (8oz.Lactose free milk, strawberries and banana.) I know this post is long and I'm uncertain as to how exactly to use this site. I will check back to reread the FAQs etc. later today as I'm pretty much obsessed and eager for your advice and experience. Also how does one ever travel again?? I'm finally retired, widowed a year and a half ago, had begun to do some traveling. I've recently had to cancel just about everything! Thank you so much for being here. I don't know if this matters but I do not drink or smoke and was a regular exerciser till this happened. (My muscle strength is greatly decreased, and I'm now testing somewhat low in protein.) Yikes!
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If you want others to be happy, practice compassion. If you want to be happy, practice compassion.

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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:41 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Sep 03, 2017 11:31 am    Post subject: Reply with quote

Hello Merry,

Welcome to our Internet family. Yes, many members here blame their MC on an SSRI or some other antidepressant. But depression is a symptom of chronic magnesium deficiency and although this has not yet been proven by a research team, in the book I'm writing I show how a chronic magnesium deficiency can cause the type of inflammation that leads to the development of MC. That's probably why so many MC patients are on or have been on antidepressants. Magnesium deficiency may be the link between the two syndromes. At any rate, although it may be difficult, you may have to stop taking an SSRI (or some other antidepressant) in order to resolve the MC symptoms. There is a chance that doing so may stop the symptoms before you develop any food sensitivities, in which case you might not have to change your diet. Magnesium can be used to treat depression symptoms. Otherwise, it's necessary to change the diet to avoid certain foods in order to stop creating the inflammation that causes the symptoms. Once triggered, it's almost impossible to reverse a sensitivity, whether it be food or a medication.

A high-protein diet (being careful to avoid certain proteins) is the key to healing the intestines. Most of the sugar we ingest typically just ferments in the colon (causing gas, bloating, cramps, and diarrhea), because when our intestines are inflamed, we are unable to produce enough of the proper enzymes to digest more than small amounts of most sugars. Besides, sugar is either immediately burned for energy or turns into fat. Fat is not the ideal way to gain weight. If we eat protein, it can be utilized to make new muscle cells. It's much healthier to gain weight by forming muscle rather than by adding fat. Your GI doc's advice leaves a lot to be desired. It's common to lose weight with MC. The inflammation has to be stopped so that the gut can heal. You'll regain the weight after you begin to heal.

Don't worry about traveling now. By the time you recover from the disease (if you have it), you'll have learned how to go about it. It may require a few preparations and precautions, but you'll be able to travel again. You need to recover first, by stopping the inflammation and allowing your digestive system to heal.

Again, welcome aboard, and please feel free to ask anything.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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