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Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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new skin condition and mast cells?
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Alicegf
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 17 Aug 2012

Posts: 89
User's local time:
2017 Oct 22 - 3:20 AM


Food Intolerances : gluten
Location: cincinnati

PostPosted: Sat Oct 25, 2014 8:00 am    Post subject: Reply with quote

I looked at the info sheet closely and it said "low steroid" content. Not sure exactly what that means but I guess it's better than "high"? My rash is getting better (less showing) and I'm due to quit the anti-histamine on Monday.
Does anyone know what I might expect then? Will the rash return or stay as it is that day?

Alice
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Zizzle
King Penguin
King Penguin


Joined: 22 Jul 2010

Posts: 3483
User's local time:
2017 Oct 22 - 3:20 AM


Food Intolerances : gluten, dairy, soy, sesame seeds, buckwheat, amaranth, walnuts, peppers, CORN!

PostPosted: Mon Oct 27, 2014 8:35 am    Post subject: Reply with quote

Quote:
Does anyone know what I might expect then? Will the rash return or stay as it is that day?


It's anyone's guess. If your rash started as a result of an environmental trigger and you're now somehow avoiding that trigger, you might be fine. On the other hand, if your meds are only suppressing the rash, it could flare back.

I hope your skin stays calm!
_________________
1987 Mononucleosis (EBV)
2004 UCTD post-partum
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2012 Dermatomyositis
2013 Modified Paleo Diet
2014 Low Dose Naltrexone
2015 Megaspore and Culturelle probiotics
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hazel
Rockhopper Penguin
Rockhopper Penguin


Joined: 21 Jun 2005

Posts: 1032
User's local time:
2017 Oct 22 - 3:20 AM



Location: OH

PostPosted: Mon Oct 27, 2014 8:11 pm    Post subject: Reply with quote

Hope this is getting better, Alice! Smile
_________________
kathy
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Alicegf
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 17 Aug 2012

Posts: 89
User's local time:
2017 Oct 22 - 3:20 AM


Food Intolerances : gluten
Location: cincinnati

PostPosted: Tue Oct 28, 2014 8:22 am    Post subject: rash Reply with quote

Thanks, Kathy and Zizzzle! That's the frustrating thing - I have no idea what triggered my dermatographia. The only possible trigger that I can think of would be stress, which I've been having in higher doses than usual. I know that is a huge factor in our illness.

Love,
Alice
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Zizzle
King Penguin
King Penguin


Joined: 22 Jul 2010

Posts: 3483
User's local time:
2017 Oct 22 - 3:20 AM


Food Intolerances : gluten, dairy, soy, sesame seeds, buckwheat, amaranth, walnuts, peppers, CORN!

PostPosted: Thu Oct 30, 2014 3:57 pm    Post subject: Reply with quote

Great overview:

http://www.worldallergy.org/professional/allerg...cariasynopsis.php
_________________
1987 Mononucleosis (EBV)
2004 UCTD post-partum
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2012 Dermatomyositis
2013 Modified Paleo Diet
2014 Low Dose Naltrexone
2015 Megaspore and Culturelle probiotics
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Oct 30, 2014 4:45 pm    Post subject: Reply with quote

Zizzle,

You weren't just whistlin' Dixie when you labeled that as a "Great overview". It is indeed an excellent overview. thumbs up

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Alicegf
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 17 Aug 2012

Posts: 89
User's local time:
2017 Oct 22 - 3:20 AM


Food Intolerances : gluten
Location: cincinnati

PostPosted: Fri Oct 31, 2014 7:39 am    Post subject: Reply with quote

Thanks for that, Zizzle! Very interesting. Although I do wonder about his statement that "dermatographia rarely requires treatment." Am I then one of the "rare" ones? Also, the picture and description was a little different from
mine. Mine is red and not raised.

Alice
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1232
User's local time:
2017 Oct 22 - 12:20 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Fri Sep 15, 2017 2:25 pm    Post subject: Reply with quote

I came across this conversation while trying to figure out why I keep having sporadic wheals appear out of no where, and in random spots. So far its appeared on my buttocks, tops of my shoulders, the fleshy part on top of my hand near my thumb, and my hip/groin area. I am so over this...and the worse part is I never know when it will appear next or where.

I read the over view shared by Zizzle and printed it off. I'm sure there may be better information out there by now as this overview is 3 years old already.

I'm wondering if after a period of healing we go thru a protocol of sorts because it appears I have been following a pattern after listening to many who are just starting to heal to those that have 7 or more years of healing under their belt....

It's like we could almost number the things in order as they are about to happen (in a fairly normal MC situation)...

This Uticaria thing seems to have hit people and then the next thing in line with this healing will take its place (which I am not sure what that is yet...but I'm sure there's something).

Please someone tell me what happened to them after this phase Shocked I can't wait to know what is in store for me after this.
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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Zizzle
King Penguin
King Penguin


Joined: 22 Jul 2010

Posts: 3483
User's local time:
2017 Oct 22 - 3:20 AM


Food Intolerances : gluten, dairy, soy, sesame seeds, buckwheat, amaranth, walnuts, peppers, CORN!

PostPosted: Sat Sep 16, 2017 10:16 pm    Post subject: Reply with quote

Might be total coincidence, but the locations you describe are precisely where my Dermatomyositis skin rashes appear the most: shoulders, buttocks, hips, knuckles. But they don't come and go like hives, my rash is always with me, just varies in severity and itch.
_________________
1987 Mononucleosis (EBV)
2004 UCTD post-partum
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2012 Dermatomyositis
2013 Modified Paleo Diet
2014 Low Dose Naltrexone
2015 Megaspore and Culturelle probiotics
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1232
User's local time:
2017 Oct 22 - 12:20 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Mon Sep 18, 2017 4:22 pm    Post subject: Reply with quote

Oh dear me Zizzle....

If I had to endure the wheals on an ongoing basis such as yourself, I may slip a gear and freak out! How do you maintain?

I'm trying to pay attention to how they come on, and what I ate a few hours before hand....I have not had another one since I posted on the 15th and now it is the 18th....cross my fingers I may have been over doing things and it is a stress to the body. If that is the case perhaps I can figure this out, but it is going to take antihistamines for a while it seems.

Hugs to you, I wish you didn't have to deal with this type of thing on a daily basis.
Erica
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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