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Lifetime of GI issues and here I am....
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Janet794

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Joined: 13 Sep 2017
Posts: 20
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2017 Dec 17 - 10:29 AM


Food Intolerances : Gluten, Wheat

PostPosted: Tue Sep 19, 2017 11:16 am    Post subject: Reply with quote

So, now I haven't pooped for two days. My diet lacks fiber, so not sure if this is an issue, or it will work itself out.
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Gabes-Apg
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Joined: 21 Dec 2009

Posts: 7274
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2017 Dec 18 - 1:29 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Tue Sep 19, 2017 3:17 pm    Post subject: Reply with quote

hi there Janet
not sure that the no pooping is lack of fibre,
more so the combo of the diet changes - removal of triggers couple with entocort has slowed motility.

I would reduce your entocort/budenside dosage and increase water intake.
if taking magnesium, increase the oral dosage a little bit (and very gradually) this will also help motility.

constipation is a sign of inflammation, and increasing fibre is not a solution, as this will 'bulk' the stool and make it harder to pass.

topical magnesium rubbed on stomach area will also help
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tex
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Joined: 24 May 2005

Posts: 30858
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2017 Dec 17 - 9:29 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Sep 19, 2017 4:35 pm    Post subject: Reply with quote

iagree You are probably very sensitive to Entocort and don't need as much as most people to do the job.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Janet794

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Joined: 13 Sep 2017
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2017 Dec 17 - 10:29 AM


Food Intolerances : Gluten, Wheat

PostPosted: Tue Sep 19, 2017 5:36 pm    Post subject: Reply with quote

Interesting thought. How do I establish that I am? I am not consuming my usual amount of vegetables and fruit, so not a big surprise to not go. Plus, pretty sure my entire bowel was empty after all the wd and colonoscopy prep. How long does it take to fill up enough to produce a bm? I am not eating very much. But, I am feeling much better.😬
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tex
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Joined: 24 May 2005

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2017 Dec 17 - 9:29 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Sep 19, 2017 8:52 pm    Post subject: Reply with quote

Refill can take 2 or 3 days.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Janet794

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Food Intolerances : Gluten, Wheat

PostPosted: Wed Sep 20, 2017 8:13 am    Post subject: Reply with quote

Woo Hoo!! My body formed a turd👏👏👏👏👏. I still have some abdominal tenderness and fatigue, but one week in on Entocort and controlled diet and I feel positive❤️
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tex
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Joined: 24 May 2005

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2017 Dec 17 - 9:29 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Sep 20, 2017 9:28 am    Post subject: Reply with quote

thumbs up

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Janet794

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Food Intolerances : Gluten, Wheat

PostPosted: Sun Oct 08, 2017 8:04 am    Post subject: Reply with quote

Almost done with my month on 9mg Entocort. I have had more good days than bad. But, I am not back to a full diet and am testing foods. Sometimes with success, sometimes not. Yesterday I cut my hand and required sutures and an antibiotic. What effect, in people's experiences do antibiotics have on collagenous colitis? Any helpful tips?
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tex
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Joined: 24 May 2005

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2017 Dec 17 - 9:29 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Oct 08, 2017 8:30 am    Post subject: Reply with quote

That depends on the antibiotic used. Most seem to cause an MC flare. The only one that never causes a flare (it even temporarily stops flares) is Cipro, but it has a lot of black box warnings, making it very risky to use. If you're still using Entocort, you may be able to dodge a flare.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Janet794

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2017 Dec 17 - 10:29 AM


Food Intolerances : Gluten, Wheat

PostPosted: Sun Oct 08, 2017 9:30 am    Post subject: Reply with quote

That was my gut reaction, boo! It is Keflex. It is a "dirty" laceration, so it seemed I had no option. Thanks!!
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tex
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Joined: 24 May 2005

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2017 Dec 17 - 9:29 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Oct 08, 2017 10:04 am    Post subject: Reply with quote

That one is definitely not colitis-friendly, but we're all different so maybe you'll luck out. Sometimes we just have to do what we have to do.

Good luck.

Tex
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Polly
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Joined: 25 May 2005

Posts: 5166
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2017 Dec 17 - 10:29 AM


Food Intolerances : gluten, dairy, soy, corn, yeast, chocolate, tomato, white potato, celery, sesame, carrot, yellow squash, lamb, pork, mango, strawberry, almond, cashew, vanilla, grapefruit, raspberry, avocado, mustard, paprika, cauliflower, cucumber, plum, and more!
Location: Maryland

PostPosted: Mon Oct 09, 2017 7:30 am    Post subject: Reply with quote

Janet,

Have you tried cholestyramine, a bile acid binder? According to studies, up to 60% of those with MC have an associated problem with bile acid diarrhea.
It is not diagnosed much in the U.S. because we have no ready test available for it. In the UK where they do, it is quite prevalent. My GI doc prescribes it even before budesonide, and says that she often sees results such that she never needs to prescribe budesonide.

I can relate to your story. I was diagnosed about 18 years ago with MC. Had multiple food sensitivities and was on a very restricted diet for much of that time. Was never able to achieve really consistent control of the D..... until about 18 mo. ago when my GI doc recommended a trial of cholestyramine. It changed my life! I can now eat anything, believe it or not, although I will never again knowingly eat gluten. I have normal, predictable BMs now for the first time in my life. And I think it has helped my gut biome tremendously that I can now eat so many different foods, including a lot of fiber (which is so important to feeding diverse and beneficial gut bacteria).

Just a thought. Of course, we are all different, but I would love to see many more MCers trying cholestyramine early on.

Polly
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Janet794

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Joined: 13 Sep 2017
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2017 Dec 17 - 10:29 AM


Food Intolerances : Gluten, Wheat

PostPosted: Mon Oct 09, 2017 8:10 am    Post subject: Reply with quote

My GI doctor mentioned the Bile Acid Malabsorption after my colonoscopy. Thinking if I am not well controlled after the Entocort, she will advise the Cholestyramine. I took it years ago when I was diagnosed with LC. I see her in another month. Thanks for the suggestion and your journey story.
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Janet794

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Joined: 13 Sep 2017
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2017 Dec 17 - 10:29 AM


Food Intolerances : Gluten, Wheat

PostPosted: Wed Oct 11, 2017 11:47 am    Post subject: Reply with quote

Weellll, Keflex does flare things up for me. Oh poop! A couple more days on the Keflex, sutures out on Monday. Back to the basics.
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Janet794

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Joined: 13 Sep 2017
Posts: 20
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2017 Dec 17 - 10:29 AM


Food Intolerances : Gluten, Wheat

PostPosted: Wed Nov 22, 2017 12:02 pm    Post subject: Now Pepto Bismol Reply with quote

So, within a week of dropping to one Entocort/day, I returned to watery diarrhea and pain. Called Gastro and was given several choices, more Entocort, or Pepto Bismol, and or Cholesteramine. I chose the Pepto. Wrong. I have just regular old diarrhea 4-5 times/day, which is tolerable, but my stomach! The pain, nausea, and vomiting urge is intolerable after a week. Called and left message. Done with Pepto until they look at my stomach.,.again. I have had several peptic and duodenal ulcers over the years and chronic Gastritis every time they have looked. Oh, and Barett’s Esophagus.
Question is this, anyone ever have stomach pain, nausea, vomiting, from Pepto Bismol? I am taking 9/day, 3 three times a day. I stopped taking Cymbalta a few weeks ago and had a few episodes of random vomiting. This is different. My diet includes, GF toast, butter, cinnamon sugar, smooth peanut butter, potatoes, chicken, fish, salmon, and sometimes green beans. Tea, weak coffee, water, and ginger ale for the nausea. Thanks😬
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