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MICROSCOPIC COLITIS SUPPORT
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No Thyroid Problems- sigh

 
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DebE13
Rockhopper Penguin
Rockhopper Penguin


Joined: 27 Nov 2011

Posts: 1586
User's local time:
2017 Oct 22 - 2:23 AM


Food Intolerances : Gluten, casein, soy, eggs
Location: Wisconsin

PostPosted: Tue Jun 26, 2012 6:39 pm    Post subject: No Thyroid Problems- sigh Reply with quote

Well, once again, my lab results are all normal and I'm even "amazing" in the cholesterol area as said by the nurse. How frustrating, I was hoping to figure out the eye pain/burning, scalloped tongue, hair loss, poor vision, fatigue issues, etc. but now I'm back on my own with food and slow recovery to blame. Any comments/suggestions would be appreciated. Of course, I was left with a brief message on my answering machine simply stating all my labs were normal and to call with any questions. Hmmm, I thougtht I was clear at my appointment that everything isn't all great so I'm wondering if I'm just supposed to ignore my daily plague of symptoms because everything is "normal?" I called back and left a message that requesting some numbers. Any comments would be appreciated since the numbers are meaningless to me.

The nurse seemed surprised that I asked for numbers but gave me this (of course I was just walking out the door from lunch to get back to work:

blood count- Normal
liver/kidney function- Normal
thyroid- 0.99
free T4- 1.1
free T3- they didn't check. How frustrating, I was very specific and was told it would be tested. Argh!!!
triglycerides- 43
HDL- 97
LDL- 88

I googled the cholesterol numbers and see they are in a good range but I'm undecided if I should push for other options to address my list of woes. I asked about it and was told to give the diet more time and if they persist I should not hesitate to make another appointment. I've had these issues for well over a year now and they really have no clue about my "diet" and I think another appointment would be a waste of my money. I most likely will make an appointment with my eye doc again just to get my RX adjusted since I'm not seeing very well lately. Last September I had numerous tests and was told everything was normal but that I have dry eye. I've used the drops for 4 months and they feel good but really don't do much for me. I can only wear my contacts on good days (not so often) for a limited time. It's very frustrating because I'm active outdoors and don't like kayaking, motorcyle riding, gardening, etc. with my glasses on. It may seem trivial but it's a big deal to me. I was once offered a steroid eye drop for inflamation but I declined. Maybe I need to reconsider.
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MBombardier
Rockhopper Penguin
Rockhopper Penguin


Joined: 14 Oct 2010

Posts: 1524
User's local time:
2017 Oct 22 - 12:23 AM


Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Tue Jun 26, 2012 7:09 pm    Post subject: Reply with quote

Why Do I Still Have Thyroid Symptoms? When My Lab Tests are Normal

http://www.thyroidbook.com
_________________
Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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TXBrenda
Gentoo Penguin
Gentoo Penguin
unknown IP

Joined: 04 Jul 2005

Posts: 408
User's local time:
2017 Oct 22 - 2:23 AM


Food Intolerances : gluten
Location: Amarillo, TX

PostPosted: Tue Jun 26, 2012 10:27 pm    Post subject: Reply with quote

I had the same issue with my lab results. I found a doctor that would treat based on my symptoms. Unfortunately I had to make a one way trip of 800 miles to get to them. I will post their address in case you or anyone else is interested.

http://www.hotzehwc.com/

Your first visit has to be in person. After that, they schedule you for phone visits so that you can get prescriptions updated. If you have questions or issues, you can call & leave a message for a phone nurse.

This is an amazing place. They share our "You can get your life back" slogan. I do not know if they could or would refer you to a doctor closer to your location. People from all over the country & world are treated here.

Also this person may know of someone in your area. His website is https://www.drfitt.com/ . This is the contact information for his administrative assistant, Jodi Bytheway at (806) 353-1447. Dr. Roby Mitchell does not practice medicine, write prescriptions, or accept insurance.

I am currently following a weight loss program or cure as he calls it. After I complete it, I plan to ask our class leader for a referral to a local doctor.

Good luck!
_________________
Brenda
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Deb
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 20 Nov 2010

Posts: 1543
User's local time:
2017 Oct 22 - 2:23 AM


Food Intolerances : Gluten, still determining others
Location: Minnesota

PostPosted: Wed Jun 27, 2012 6:49 am    Post subject: Reply with quote

I know Marliss has mentioned this site before. There's a lot of information about thyroid here. http://www.stopthethyroidmadness.com/
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Zizzle
King Penguin
King Penguin


Joined: 22 Jul 2010

Posts: 3483
User's local time:
2017 Oct 22 - 3:23 AM


Food Intolerances : gluten, dairy, soy, sesame seeds, buckwheat, amaranth, walnuts, peppers, CORN!

PostPosted: Wed Jun 27, 2012 8:56 am    Post subject: Reply with quote

It seems we should all have a scalloped tongue. There are more causes beyond thyroid, including D. My acupuncturist noticed it on me, and I have it now.

http://www.buzzle.com/articles/scalloped-tongue.html
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:23 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Jun 27, 2012 9:06 am    Post subject: Reply with quote

Zizzle wrote:
It seems we should all have a scalloped tongue.


I have a hunch that most of us do -- we just don't normally notice it because there's no reason to carefully inspect the edges of our tongue. Laughing

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Deb
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 20 Nov 2010

Posts: 1543
User's local time:
2017 Oct 22 - 2:23 AM


Food Intolerances : Gluten, still determining others
Location: Minnesota

PostPosted: Wed Jun 27, 2012 9:27 am    Post subject: Reply with quote

I'd never heard of scalloped tongue. I found this video which showed some pictures and I appear to have it (mostly on one side). I'm becoming more and more convinced of my thyroid issues.
http://www.youtube.com/watch?v=D2nkqXc4uBE
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DebE13
Rockhopper Penguin
Rockhopper Penguin


Joined: 27 Nov 2011

Posts: 1586
User's local time:
2017 Oct 22 - 2:23 AM


Food Intolerances : Gluten, casein, soy, eggs
Location: Wisconsin

PostPosted: Wed Jun 27, 2012 11:12 am    Post subject: Reply with quote

When mine acts up, it's painful. My dentist says it is caused by my overbite. I'd agree that it doesn't help but is not the cause. I also get irrirated and inflamed tastebuds. Go figure.
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Leah
King Penguin
King Penguin
United States

Joined: 02 Feb 2012

Posts: 2527
User's local time:
2017 Oct 22 - 12:23 AM


Food Intolerances : gluten, dairy, coffee, tea,fruits..... IgA deficient, so I can't be tested
Location: San Francisco Bay Area

PostPosted: Wed Jun 27, 2012 5:25 pm    Post subject: Reply with quote

No scalloped tongue, but I have what they call a "geographic" tongue and like Deb, my taste buds get irritated easily. ( I do take thyroid meds)

Leah
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janden143

unknown IP

Joined: 27 Jul 2016

Posts: 24
User's local time:
2017 Oct 22 - 8:23 AM


Food Intolerances : Tramadol, scallops. Don't know about the others yet.

PostPosted: Mon Sep 18, 2017 12:12 pm    Post subject: Geographic Tongue Reply with quote

I decided to ask you all if any of you has geographic tongue. I've had this condition for several years now, possibly before I started to get the colitis symptoms (I have collagenous colitis). My dentist says that no-one knows what causes it but could it be related to our IBD?
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Oct 22 - 2:23 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Thu Sep 21, 2017 8:49 am    Post subject: Reply with quote

My husband has geographic tongue. It looks like he's eaten a scalding piece of pizza. So far he has a stomach made of iron....
_________________
Vanessa
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janden143

unknown IP

Joined: 27 Jul 2016

Posts: 24
User's local time:
2017 Oct 22 - 8:23 AM


Food Intolerances : Tramadol, scallops. Don't know about the others yet.

PostPosted: Thu Sep 21, 2017 2:07 pm    Post subject: Bile acid malabsorption Reply with quote

Had to see my gastroenterologist last night to get the results of my SeHCat scan. Turns out I'm positive and I have bile acid malabsorption. He's prescribed medication but it's really up to me to decide when to start it. I'm on long term 3mg Budesonide. Anyone else have this?
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