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Am I hindering healing?
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Kari
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Sep 2010

Posts: 1218
User's local time:
2017 Dec 11 - 1:37 AM


Food Intolerances : gluten, dairy, soy
Location: Colorado

PostPosted: Sun Sep 03, 2017 7:38 am    Post subject: Reply with quote

Sue - it sounds like you're off to a great start on your visit. The difficult part is behind you and you can now settle in and relax Very Happy . It was inspiring to hear how well you did on your trip, as I'm about to embark on a loooong trip to Norway (from Colorado).

Have a wonderful time with your family and grandson. Perhaps you'll be able to shed the fast paced life style of the East Coast, and sink into a more relaxed state of mind in Oregon..... Enjoy!!!

Love,
Kari
_________________
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Dec 11 - 1:37 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Sun Sep 03, 2017 10:31 am    Post subject: Reply with quote

Thank you Sue and Kari,

Your stories of taking trips and living life gives all of us the courage to do the same. Let us know how your Norway trip goes!
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Vanessa
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sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 694
User's local time:
2017 Dec 10 - 11:37 PM



Location: Washington

PostPosted: Sun Sep 03, 2017 2:13 pm    Post subject: Reply with quote

Sue...that's quite a accomplishment! Glad you could calm your mind and not add to your stress....all that time traveling was a big challenge for anyone, but someone with MC it's a huge challenge!
Sunny
_________________
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
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May2yuk!
Little Blue Penguin
Little Blue Penguin
unknown IP

Joined: 15 Aug 2017
Posts: 31
User's local time:
2017 Dec 11 - 3:37 AM


Food Intolerances : unsure at this time

PostPosted: Sun Sep 03, 2017 2:59 pm    Post subject: Reply with quote

Thank you all,

Reading these posts gave me more to consider and think about. My stress over healing and healing fast is probably not helping. I'll try to relax and accept my new diet and way of life.

Good days to all,
_________________
Retta
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Dec 11 - 1:37 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Sat Sep 23, 2017 6:16 am    Post subject: Reply with quote

Sue,

Just wondering how your trip back from Oregon was. I'm trying not to stress myself out before our San Diego trip on October 15th. Haven't been on a plane in over a decaded Shocked let alone on a vacation in 4 years. I'll be on that plane thinking if Sue can do it without a cooling system....so can I! Anxiety is a real B*cth! Extra mag for me Wink I'm using all the tricks I've collected over the years to stay calm but I'm hoping the anticipatory anxiety is the worst of it.

You should feel proud and victorious after going to see your fam!
_________________
Vanessa
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 11 - 3:37 AM



Location: Connecticut

PostPosted: Sat Sep 23, 2017 11:23 am    Post subject: Reply with quote

Vanessa wrote:
Sue,

Just wondering how your trip back from Oregon was. I'm trying not to stress myself out before our San Diego trip on October 15th. Haven't been on a plane in over a decaded Shocked let alone on a vacation in 4 years. I'll be on that plane thinking if Sue can do it without a cooling system....so can I! Anxiety is a real B*cth! Extra mag for me Wink I'm using all the tricks I've collected over the years to stay calm but I'm hoping the anticipatory anxiety is the worst of it.

You should feel proud and victorious after going to see your fam!


Hi Vanessa. Trip back was even better than the trip out there. For the return I booked two flights with a layover in between which I like much better. It breaks up the monotony, gives me a chance to stretch my legs, check out some "safe" snacks, and know that there is a REAL bathroom available should I need it. Armed with safe snacks you don't feel so "deprived" having to pass on the freebies they hand out on the plane.

I'll be totally honest, both on the way to Oregon and on the way back I took a tranquilizer about 2 hours before the flight and a Dramamine about 30 minutes before the flight.... I really think that was key for me. I have a real issue with vertigo and during take off and whenever the plane turns or changes altitude I normally get dizzy, which sets off anxiety, which then sets off panic attacks, stomach issues, etc. As part of my "acceptance" plan I accepted that I've had anxiety issues all my life, probably always will, and that it's OK to take a little "help" during especially stressful times. I think traveling, especially when you haven't done it in a while (as in your case) definitely qualifies as stressful. I accepted that I have stomach issues and can't always eat what everyone else is eating, and since anxiety triggers the stomach issues, I don't beat myself up anymore for taking a tranq. It's not a sign of weakness - it's using the tools in our toolbox. And taking the Dramamine has made flying SO MUCH more pleasant! No more vertigo, no more nausea, no more stomach clenching.

Accept that you will be anxious, accept that we have the tools and the wisdom to do what we need to do to have the fullest life possible, and realize that there are no prizes or rewards for "white knuckling it" or toughing it out.

And if you find yourself starting to get yourself worked up a week or two before the trip, try meditation, or yoga, or take medication if you have a prescription for some, and nip it in the bud because you don't want to be working yourself up more and more as the departure date gets closer.

Positive imagery seems to work for me, too. When I start getting the "what if's" and picturing a bad situation, I visualize a big red "X" through it and quickly replace it with an image of me relaxed and happy. The mind is a powerful thing.

You're going to be stressed - it's only natural, but trying to keep it to a minimum is key. You can do this!!! :)
Sue
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Dec 11 - 1:37 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Sat Sep 23, 2017 1:59 pm    Post subject: Reply with quote

Thanks for the pep talk Sue! I needed it.

Unfortunately for me, I haven't had great experience with the benzos and I add on to the anxiety by taking it. Looks like I'm white knuckling it. My problem is that I'm so hyper aware of my body that the change the med brings on brings more of the feelings I don't want like dizziness, etc. I had a hellish time getting of Clonazepam also, which doesn't help me ever wanting to take it again. I too have had anxiety pretty much all my life.

Its so weird when it comes calling. Its been years since I've been like this and now since the tickets are bought, I'm toeing that line again with moments of sheer terror. I just sit with it and invite it in. No running this time. I imagine looking at it and tickling it and messing back with it. Even hugging "it" (which is hard to do when your hyperventilating and your heart is pounding). Hopefully it will get bored with me and leave.

The big red X is a good visualization. I only allow myself 10 minutes a day to totally freak out thinking about the plane ride then I give myself a stop sign when the thought comes creeping in again. Then I must put it away.

I am concentrating on how proud I will be of myself when I did some of the things that scare me the most. Thanks again for the update. Hopefully you won't see me on social media being drug off the plane screaming!
Cool
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Vanessa
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 11 - 3:37 AM



Location: Connecticut

PostPosted: Sat Sep 23, 2017 4:55 pm    Post subject: Reply with quote

Friggin' anxiety.... it can take a perfectly happy, healthy person and make them miserable (physically and mentally) and attempt to keep them trapped in their homes. Fortunately you and I have dealt with it long enough to learn some of the things we should and shouldn't do when it decides to make an appearance and it will never attack us as badly as it used to. Yes, we'll probably deal with it for the rest of our lives, but it won't control us anymore and it won't keep us from doing things we want to do.

I've read all the suggestions to invite it in and sit with it.... just let it happen and not resist, but BOY that is a hard one for me to accomplish. Old habits die hard and when I feel it starting my mind and body lock up and and make me either want to get up and run somewhere or I feel as if I'm going to pass out. I've learned to not run and keep reminding myself that I have never actually fainted and won't now, either.

I actually tried Xanax a few times and didn't like it - it makes me feel dizzy which made the anxiety worse. I'm glad I tried another because it takes longer to kick in but does it gradually and then lasts longer. How about just trying a Dramamine? I've read that those have a relaxing affect on some people. Try one BEFORE your trip to see if you have any negative reaction to it but I doubt you will. At least it will keep you from feeling dizzy or sick to your stomach on the plane. Or hell, if that doesn't work, fly drunk. LOL I don't like to drink but I see lots of people chugging them down before they can get on a plane.

I've often asked myself if I had a choice, which I'd like to give up: the anxiety or the colitis. And would you believe it would be the anxiety? No one knows how horrible or life-altering it is unless they're dealing with it. You're a smart cookie and have the tools..... you've got this.
Sue
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30822
User's local time:
2017 Dec 11 - 1:37 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Sep 23, 2017 6:08 pm    Post subject: Reply with quote

Are you aware that dramamine is an antihistamine? It's very similar to Benedryl. It even has anticholinergic properties similar to Benedryl.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 11 - 3:37 AM



Location: Connecticut

PostPosted: Sat Sep 23, 2017 8:07 pm    Post subject: Reply with quote

tex wrote:
Are you aware that dramamine is an antihistamine? It's very similar to Benedryl. It even has anticholinergic properties similar to Benedryl.

Tex


No, didn't realize that. So does that mean I don't need to use Afrin the morning of my flights anymore?
Sue
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30822
User's local time:
2017 Dec 11 - 1:37 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Sep 23, 2017 9:08 pm    Post subject: Reply with quote

I don't understand. Afrin is a decongestant, not an antihistamine.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 11 - 3:37 AM



Location: Connecticut

PostPosted: Sat Sep 23, 2017 9:34 pm    Post subject: Reply with quote

tex wrote:
I don't understand. Afrin is a decongestant, not an antihistamine.

Tex


You're right - my bad. I always use those two interchangeably since they both apply to allergies and congestion.
Sue
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Dec 11 - 1:37 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Sun Sep 24, 2017 6:30 am    Post subject: Reply with quote

Very interesting about the Dramamine....very good suggestion I would not have thought of! No drinking for me....sure fire way to poop these pants Shocked
Thanks again for the suggestions.
_________________
Vanessa
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