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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:19 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Sep 21, 2017 4:20 pm    Post subject: Reply with quote

Sue,

Just for the record, magnesium deficiency and diabetes causes those same symptoms (except for the diarrhea, dizziness, and swelling). I had them all (except for the diarrhea, dizziness, and swelling) when I had a chronic magnesium deficiency. Not being able to take a deep breath and constantly feeling as if I needed to, and the almost constant urgent need to urinate (even during the night) was maddening.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Vanessa
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Mar 2014

Posts: 634
User's local time:
2017 Dec 14 - 9:19 AM


Food Intolerances : Gluten, Dairy, Soy, Eggs, Nuts, night shades, Garlic, SIgA deficient
Location: Des Moines, IA

PostPosted: Thu Sep 21, 2017 4:50 pm    Post subject: Reply with quote

Me too. I had every single symptom listed except for swelling. My hands get puffier around hormonal times where its harder to get my ring off etc. but I never had severe swelling....
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Vanessa
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 14 - 11:19 AM



Location: Connecticut

PostPosted: Thu Sep 21, 2017 11:04 pm    Post subject: Reply with quote

sunny wrote:
Sue....Every body's body is so different, and even if you are the only one in this group that is reacting to Vitamin B12, that doesn't mean it's NOT happening to you....plus you have now mentioned a possibility that many of us haven't heard of.... I share some of those symptoms also...hmmm...I think it's worth looking into...
I'll be interested in what comes of this in your life and if it could be the Vit B12 that's impacting your health....
Sunny


I will definitely keep you posted. x fingers
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 14 - 11:19 AM



Location: Connecticut

PostPosted: Mon Sep 25, 2017 6:00 pm    Post subject: OK, so I'm switching gears (again) Reply with quote

I've been off the B12 for a few days now and if anything, the tingling is worse. I started looking through all my medical documentation (I chart everything, especially the things I feel and the symptoms I notice when changing anything) and I'm having all the symptoms that I used to have whenever I changed doses of Synthroid. I was excited by that revelation but then quickly disappointed because I have NOT changed my Synthroid dose in over a year. Same dosage, same time, every day. But since I always have a lab slip in my car for when I suspect my thyroid (TSH) is off, I had blood drawn on the way to work this morning. I've just got too many of the symptoms for this NOT to be thyroid-related.

Tonight when I got home from the office I decided to check Dr. Google for "gluten free and Synthroid" and BINGO. It seems that when people who are on Synthroid go gluten free, they need much less Synthroid because now they are absorbing it better. One article actually stated "49% less needed" when not eating gluten.

This week will be 2 months since I gave up gluten. Definitely enough time for me to be absorbing more and more of my daily dose of Synthroid. I don't know if these symptoms are from the "change" in level or if I will possibly need to take less, but I hope to hell my lab results come back with a low TSH number!
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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Polly
Moderator
Moderator


Joined: 25 May 2005

Posts: 5166
User's local time:
2017 Dec 14 - 10:19 AM


Food Intolerances : gluten, dairy, soy, corn, yeast, chocolate, tomato, white potato, celery, sesame, carrot, yellow squash, lamb, pork, mango, strawberry, almond, cashew, vanilla, grapefruit, raspberry, avocado, mustard, paprika, cauliflower, cucumber, plum, and more!
Location: Maryland

PostPosted: Mon Sep 25, 2017 6:23 pm    Post subject: Reply with quote

Hi Sue,

I recall in the early days of the original MC forum, one of the members mentioned that she was able to reduce her thyroid med. after being GF for a while. You may be on to something......

Polly
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Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 14 - 11:19 AM



Location: Connecticut

PostPosted: Mon Sep 25, 2017 6:33 pm    Post subject: Reply with quote

Well bless you and your incredible memory and bless this forum! I will be devastated if my lab results come back in the "normal" range, and only people with chronic illnesses would be able to relate to a ridiculous comment like that. Shocked
Sue
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:19 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Sep 25, 2017 8:08 pm    Post subject: Reply with quote

Sue, magnesium deficiency or sufficiency can also (sometimes) affect/change the efficiency with which you are able to utilize your synthroid, so if you've changed your magnesium intake recently that might have affected your synthroid needs. I'm normally hypothyroid and I take armour. I had hyperthyroid symptoms (and labs) when my magnesium crashed, but they reverted when I resolved the magnesium deficiency. Just thought I'd mention how other issues may affect thyroid status. But this may not matter in your case.

Also note that glucocorticoids (corticosteroids) suppress TSH, while low cortisol levels elevate it, but that wouldn't apply to you if you're not taking budesonide.

IOW a magnesium deficiency does the same thing as a corticosteroid —it suppresses the TSH which can cause hyperthyroid symptoms.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sue777
Gentoo Penguin
Gentoo Penguin


Joined: 19 Jun 2005

Posts: 381
User's local time:
2017 Dec 14 - 11:19 AM



Location: Connecticut

PostPosted: Mon Sep 25, 2017 9:04 pm    Post subject: Reply with quote

tex wrote:
Sue, magnesium deficiency or sufficiency can also (sometimes) affect/change the efficiency with which you are able to utilize your synthroid, so if you've changed your magnesium intake recently that might have affected your synthroid needs. I'm normally hypothyroid and I take armour. I had hyperthyroid symptoms (and labs) when my magnesium crashed, but they reverted when I resolved the magnesium deficiency. Just thought I'd mention how other issues may affect thyroid status. But this may not matter in your case.

Also note that glucocorticoids (corticosteroids) suppress TSH, while low cortisol levels elevate it, but that wouldn't apply to you if you're not taking budesonide.

IOW a magnesium deficiency does the same thing as a corticosteroid —it suppresses the TSH which can cause hyperthyroid symptoms.

Tex


Well, damn, Sam.... I've got all kinds of valid reasons why my TSH levels are fluctuating! I gave up gluten 8 weeks ago, I gave up soy 8 weeks ago, I added in B12 and magnesium about 6 weeks ago..... my poor body doesn't know what it's in for next! So basically I don't know if I should just stick with a consistent diet and regimen and wait for the TSH to "level off" or if I should adjust my Synthroid dose to match all my changes. I guess I'll cross that bridge when I get the blood results. And of course I'll be begging for help with that on here. Confused
_________________
Sue
Diagnosed November 2004, Used Asacol and Lialda, sometimes worked, sometimes made it worse. Entocort always works but hate it. Remission only lasts 3-6 months and then back on Entocort. Enterolab test July 2017, now gluten free. Time will tell!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:19 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Sep 25, 2017 9:32 pm    Post subject: Reply with quote

TSH usually reaches a new position of equilibrium about 2 or 3 weeks after any change is made.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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