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MICROSCOPIC COLITIS SUPPORT
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Ideas?

 
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owpain

United States

Joined: 04 Sep 2017
Posts: 3
User's local time:
2017 Oct 22 - 2:19 AM




PostPosted: Fri Sep 08, 2017 1:23 pm    Post subject: Ideas? Reply with quote

Hi All,
I was diagnosed with MC about two years ago and have since been on either Cholestyramine or Budesonide. Was on the C for about a year until too much stomach pain and I decided to go back on B. Now I am having a lot of stomach pain and watery diarrhea again- nowhere near what it was pre-diagnosis but pretty severe. Nothing has changed in terms of diet, etc. Anyway- wondering if you have any ideas what could be going on? Going to GI dr Tuesday. Thanks for your input!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:19 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Sep 08, 2017 3:07 pm    Post subject: Reply with quote

Hi.

Welcome aboard. Meds lose efficacy over time and they don't always work for everyone. Every time a budesonide treatment is ended and started again. it becomes less effective. That's verified by published research.

If you're looking for effective ideas, why not change your diet and put a stop to the inflammation? No inflammation = no symptoms.

Again, welcome aboard and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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owpain

United States

Joined: 04 Sep 2017
Posts: 3
User's local time:
2017 Oct 22 - 2:19 AM




PostPosted: Fri Sep 08, 2017 7:19 pm    Post subject: Reply with quote

Thanks Tex, that is probably what I should do. When I got diagnosed it was not the right time to try to fix my diet, but now things have settled a bit. Still, it makes me sad. I like food lol!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:19 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Sep 09, 2017 9:53 am    Post subject: Reply with quote

Trust me, we all like food. And there are many ways to prepare the foods that we can still eat so that they are more tasty, if we are a little creative. But no one likes to spend so much of their life in the bathroom. Life's too short to spend any more of it in the bathroom than is absolutely necessary.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1930
User's local time:
2017 Oct 22 - 2:19 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Sat Sep 09, 2017 10:56 am    Post subject: Reply with quote

Go GF and DF and stick with it.
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JFR
Rockhopper Penguin
Rockhopper Penguin


Joined: 30 Mar 2012

Posts: 1279
User's local time:
2017 Oct 22 - 3:19 AM


Food Intolerances : gluten, dairy, soy, eggs

PostPosted: Sun Sep 10, 2017 3:54 am    Post subject: Reply with quote

You have a choice to make, stay sick or change your diet. It's really that simple. As Tex says, we all like food. We just have to learn to like different food. It's easier than you think once you accept that it's the only way to go and so much better than life spent in a bathroom.

Jean
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owpain

United States

Joined: 04 Sep 2017
Posts: 3
User's local time:
2017 Oct 22 - 2:19 AM




PostPosted: Tue Oct 03, 2017 1:58 pm    Post subject: Reply with quote

well, a quick update. went to the doctor and tried diet with pepto, but it was worse. got some stools done and I have c-diff. doh!
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