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Imodium or diet or budenoside?
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mthoom

United States

Joined: 02 Dec 2017
Posts: 1
User's local time:
2017 Dec 17 - 5:32 PM




PostPosted: Mon Dec 04, 2017 10:17 pm    Post subject: Feeling overwhelmed Meds vs Diet Reply with quote

Wow! Am I thankful that I found this site!

I starting having ExPloSive diarrhea back in June... went through lots of tests & 3 docs before I was sent to a GI specialist, waited another month for an upper and lower scope, waited another month for results... June quickly turned into October when I was DX with MLC. I've now been on Uceris for 11 weeks, after starting it - it immediately stopped the D. I had more energy and was on cloud 9!! After a LONG, No energy summer I thought I hit the jackpot! The only diet advice that I got initially was follow a BRAT diet - Bananas, Rice, Applesauce & Toast. (of course I cut the toast out pretty quick!) With my own research, I found that GF was probably beneficial, along with no artificial sweeteners, & no caffeine. I also stopped smoking. (Yay!)
And, after reading many posts here - I'm thinking that Dairy needs to go (I do currently supplement with Lactase when I have dairy) and Soy needs to go too, oh, and eggs. Here I thought adding Lactase and using Soy milk was being proactive.

In recent weeks, I started blaming Uceris for my abdominal and low back pain, water retention, my knees feel like they fill up with fluid and it is cumbersome to walk, I continue to have bad abdominal distention, & gas pain (unable to move gas). My GI doctor doesn't seem to think these are from the medication. I didn't know what else it could be...
I guess my next step is to add DF, SF & no eggs to the list and see if that helps. I know there is a lot of inflammation going on in my tummy, just bc my stools are controlled now, I know it isn't healthy in there. I'm in discussion with my GI doc about beginning to taper off the 9mg of Uceris. I have a feeling the D will return if I do taper, but I'm so miserable now that I felt like I needed to try something.
I guess following a stricter diet plan is what I need to try.

A lot of this is new to me, I'm very appreciative of all this information! Thank You!

Adding Vit D3 and Mg is also new information to me. I'll continue to research that. I do take a multivitamin, B12, Xyzal or Zyrtec daily. I have mixed feelings about Probiotics - it was recommended that I take one... sometimes I think it contributes to the gas / bloating. So, I take it about 3 days a week.

I do feel like I'm starting at square 1 again... but, at least I have a square to start. :)

Thank you,
Melissa
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30861
User's local time:
2017 Dec 17 - 5:32 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Dec 04, 2017 10:33 pm    Post subject: Reply with quote

Hi Melissa,

Welcome to the forum. You seem to to be a quick learner and you're well on your way to recovery. Incidentally, while sugars such as lactose are a problem, the main problem with all dairy products is the casein, which is a protein. Those of us who are sensitive to it produce antibodies against it so it is highly inflammatory for us, similar to gluten.

Medications can suppress the inflammation, but they can't stop it from being regenerated with each meal. Only diet changes to avoid the problem foods can actually stop the inflammation and allow the intestines to heal.

Again, welcome aboard, and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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