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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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Gabes-Apg
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Joined: 21 Dec 2009

Posts: 7276
User's local time:
2017 Dec 18 - 9:33 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Tue Dec 05, 2017 8:49 pm    Post subject: Reply with quote

Welcome Kathyrn

one thing i have done over hte years is copy and pasted the text I wanted from various discussions/ posts and the put them into word documents.
for recipes etc i have printed those pages

I also did the same with the list of ingredients information ie all the names for soy copy the text from the post on here, pasted it into a word document, edited it to the font size and layout i wanted, then printed it and keep it in my wallet.

happy healing!
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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annaluigia

United States

Joined: 12 Nov 2017
Posts: 7
User's local time:
2017 Dec 17 - 6:33 PM


Food Intolerances : dairy

PostPosted: Thu Dec 07, 2017 7:20 pm    Post subject: Reply with quote

Hello fellow sufferers and all the supporters! I'm still a bit new here, but already I learned more than I ever knew before. It can be overwhelming, but as Gabes told me, take a deep breath and just start a little at a time. I previously complained that I often have constipation and diarrhea on the same day and same time. For that I was advised to try magnesium and Vitamin D3, which I have started. I still have to start the stage one on the diet plan. I often have the problem of not finishing bowel movements, and this can go on all day! Today I had to take Pepto Bismol so I could go to an appointment. Of course, that can lead to constipation. It's been a catch 22 for some time now! I get bloated and my stomach feels hard. I think you all get my drift, and I have no other way to explain it all.
Monday I'm going to my gastroenterologist. In the past he has written prescriptions for Budesonide (?) and another medication that sounds like Cholesty- like cholesterol. Bottom line, the meds of choice are unaffordable. I've changed my Rx insurance plan which starts in January, so maybe there's hope there.
I would really appreciate any advice on what questions to arm myself with when I see the doctor Monday! I normally just give him my symptoms and a list of meds I've been taking. Maybe there's something I should ask that hasn't occurred to me yet.
Thank you in advance for being there, and I hope my fellow "potty people" are doing better, and great! I also am so thrilled that I don't have to wait days for answers! This website is a Godsend. Oh, and I've ordered the book by Mr. Persky!!
Blessings,
Anna
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Gabes-Apg
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Joined: 21 Dec 2009

Posts: 7276
User's local time:
2017 Dec 18 - 9:33 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Dec 07, 2017 7:46 pm    Post subject: Reply with quote

Quote:
Monday I'm going to my gastroenterologist. In the past he has written prescriptions for Budesonide (?) and another medication that sounds like Cholesty- like cholesterol. Bottom line, the meds of choice are unaffordable. I've changed my Rx insurance plan which starts in January, so maybe there's hope there.
I would really appreciate any advice on what questions to arm myself with when I see the doctor Monday!


the medication is cholestryamine - or brand name questran this has been used successfully by quite a few here, if you use search function look for word 'bile' and you will narrow down some of the recent discussions by various users.

so far as quesitons for your doctor - given that most doctors do not fully understand/appreciate the complexity of life with MC and do not acknowledge the importance of diet and lifestyle for reducing inflammation.

A vitamin D3 test would be good request.
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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annaluigia

United States

Joined: 12 Nov 2017
Posts: 7
User's local time:
2017 Dec 17 - 6:33 PM


Food Intolerances : dairy

PostPosted: Thu Dec 07, 2017 8:17 pm    Post subject: Reply with quote

Thank you Gabes! My favorite line is "what do doctors know?" They basically don't take the time to learn what really goes on in real life!
Ok. I will search "bile". As for the D3 test, what would they be looking for?
Be back soon!
Anna
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7276
User's local time:
2017 Dec 18 - 9:33 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Dec 07, 2017 8:44 pm    Post subject: Reply with quote

its not the doctors fault per say - it is a fault of the medical system that pays them.
Doctors only do one semester of training on nutrition etc. once the leave university, majority of their ongoing training is provided by Big Pharma. Only functional doctors with keen interest in functional ' treat root cause' health do the study and research in that approach.

knowing what your Vit D3 level is, is key to knowing what dosage your supplementation should be.
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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