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I am lost! Help!

 
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Sunseaker

United States

Joined: 24 Nov 2017
Posts: 5
User's local time:
2018 Jan 21 - 8:17 PM


Food Intolerances : Lactose, meat
Location: Harlingen, TX

PostPosted: Sat Dec 30, 2017 10:32 am    Post subject: I am lost! Help! Reply with quote

I just got back from a visit with my gi. I am looking at the test results I received from my last visit. Just some of them...I can't figure out what they mean. I know these and my biopsies got be to my cc diagnosis but, what does it mean something else could go wrong because I have some of the variants and inflammation markers? My doc explained in what I will sware was Latin and the more I Google the less I understand. Is there somewhere I can look these up that is understandable? Or is their someone I can ask? I am so lost I just want to cry. Any help will be greatly appreciated. Thanks!
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31008
User's local time:
2018 Jan 21 - 8:17 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Dec 30, 2017 1:13 pm    Post subject: Reply with quote

Sure, I can read some "doctorspeak". I say "some", because every medical specialty seems to have it's own preferred lexicon and syntax. If you don't want to post it for public viewing, copy it into a PM and send it to me, or attach it to an email and send it to me. You can open a form to use for either one by clicking on the appropriate button at the bottom of this post.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sunseaker

United States

Joined: 24 Nov 2017
Posts: 5
User's local time:
2018 Jan 21 - 8:17 PM


Food Intolerances : Lactose, meat
Location: Harlingen, TX

PostPosted: Sat Dec 30, 2017 6:32 pm    Post subject: Reply with quote

It's these test results I don't get. I can't even tell if they should be meaningful to me but, somehow they seem to be important. But no one can explain them???? It might be because I am so overwhelmed right now but, I just can't seem to understand anything I am reading about them. Thanks for your help.
Result. Range
C reactive protein. 0.43 0.00-0.50
Sedimentation rate 16 0-20

Anti-A4-Fla2 lgG 48.8 <32.4
ELISA

VEGF. 403. <393

SAA 30.4 <22.9

EMC1 Variant Detected - Heterozygous rs3737240(C;T)

NKX2-3 Variant Detected - Heterozygous rs10883365(A;G)

STAT3 Variant Detected - Heterozygous rs744166(A;G)

there are more tests but they all came back with in range. I will gladly share them if they would help in understanding all this. Thank you for any insight.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31008
User's local time:
2018 Jan 21 - 8:17 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Dec 30, 2017 9:05 pm    Post subject: Reply with quote

These first five are all measures of inflammation and the last three are gene mutations.

Your CRP result is normal (rarely is it elevated for an MC patient) and so is your SED rate. As I recall, my SED rate was slightly elevated at one point during my recovery.

The anti-A4-Fla2 test detects antibodies (IgG antibodies) to the particular flagellin named in the test (A4-Fla2). A flagellin is the whisker-like external appendage on many types of bacteria. They're made of a protein that causes an immune system reaction for many IBD patients, so it's not surprising that your result would be elevated.

VEGF stands for Vascular endothelial growth factor, which may be elevated for many types of IBDs, injury, infection, autoimmune disease, or tumors but it primary indicates inflammation.

SAA stands for Serum amyloid A, and it's just another way to detect tissue injury and inflammation and it's often elevated in IBD patients.

I don't know anything about the gene tests. Those results just represent certain SNPs. I would be surprised if they actually mean anything, because gene mutations simply affect risks, they don't really indicate any disease or a particular problem.

So really all these tests measure inflammation they just confirm that you have an IBD. I don't understand why your doctor would order all these inflammation tests when he already knows that you have an IBD.

I hope this is helpful.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sunseaker

United States

Joined: 24 Nov 2017
Posts: 5
User's local time:
2018 Jan 21 - 8:17 PM


Food Intolerances : Lactose, meat
Location: Harlingen, TX

PostPosted: Sat Dec 30, 2017 11:39 pm    Post subject: Reply with quote

Thank you. Maybe the reason he did all the double speak that made no sense is these are tests that said what we already knew. You lifted a great weight from me. Thank you! I knew the more I stayed in my head with this the less sense anything I read was going to make. Now I can sleep. Thank you again!
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brandy
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 16 Oct 2011

Posts: 2074
User's local time:
2018 Jan 21 - 8:17 PM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Sun Dec 31, 2017 9:51 am    Post subject: Reply with quote

Sunseaker welcome to the forum! Tex has written a great book if you don't already have it. The link to get it is the upper right hand corner of the website. It is the only book on MC that has ever been written.
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