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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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22 Male, Lymphocitic Colitis Symptoms
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brandy
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 16 Oct 2011

Posts: 2074
User's local time:
2018 Jan 21 - 8:21 PM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Fri Dec 29, 2017 6:03 am    Post subject: Reply with quote

Diet is key. Those who are not on proper diet will relapse after taking their last budesonide.

If you are really struggling and depressed then budesonide will help. I was on it for 4.5 months. We find for those who take it it seems to work best for longer stints of 4.5 or 5 for 6 months or so. The American docs typically only prescribe it for only 3 months which forum members find is not long enough time. We recommend a very slow taper at the end. 1 pill every other day for a month, 1 pill every third day for a month etc before getting off.
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carolm
Rockhopper Penguin
Rockhopper Penguin


Joined: 02 Sep 2011

Posts: 1030
User's local time:
2018 Jan 21 - 8:21 PM


Food Intolerances : Gluten and soy.
Location: Kansas City

PostPosted: Mon Jan 08, 2018 6:35 am    Post subject: Reply with quote

Hi Joel,
Iím catching up on posts here and thought Iíd chime in and say that, like Brandy, I took Budesonide for 4 1/2 months and I did find it helpful. Basically it helped calm inflammation while I worked to get my diet gluten free, dairy free, and soy free. You do have to taper off slowly like Brandy described above. If you donít have your diet in order you will likely relapse when you stop the Budesonide. Itís the diet that heals.

When in a big flare like you described I also had to eliminate sugar, fat, caffeine, fiber, and any acidic foods . I also became aware that strenuous exercise, fatigue, and my seasonal allergies were irritants/triggers during that time.

Omega-3 supplements typically contain soy so if you havenít stopped those supplements I agree with the others that you should. Stay with the chelated magnesium and D3.

I hope you are doing better since your last posts.
Carol
_________________
ď.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.Ē Maya Angelou
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Joel

Canada

Joined: 24 Nov 2017
Posts: 14
User's local time:
2018 Jan 21 - 8:21 PM


Food Intolerances : ?

PostPosted: Mon Jan 08, 2018 7:20 pm    Post subject: Reply with quote

My GI Doc has said that I am in remission however am experiencing terrible GERD and Nausea, the loose watery stools are barely loose and maybe only once a week. Thoughts ?
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31008
User's local time:
2018 Jan 21 - 8:21 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jan 08, 2018 7:57 pm    Post subject: Reply with quote

8,000 to 10,000 IU of vitamin D per day should help to control the GERD. A week or so after you get it under control you can lower the dose to 4,000 to 5,000 IU per day. If you're still taking the fish oil, that's probably contributing to the GERD.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Joel

Canada

Joined: 24 Nov 2017
Posts: 14
User's local time:
2018 Jan 21 - 8:21 PM


Food Intolerances : ?

PostPosted: Mon Jan 08, 2018 7:59 pm    Post subject: Reply with quote

Is there a good Vitamin D you recommend that won't kill my stomach ?
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carolm
Rockhopper Penguin
Rockhopper Penguin


Joined: 02 Sep 2011

Posts: 1030
User's local time:
2018 Jan 21 - 8:21 PM


Food Intolerances : Gluten and soy.
Location: Kansas City

PostPosted: Mon Jan 08, 2018 8:05 pm    Post subject: Reply with quote

I take 10,000 of Drs. Best D3 and I do fine with it. If anyoneís stomach is ridiculously sensitive itís mine. I take that brand of chelated magnesium too.

Best of luck-
Carol
_________________
ď.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.Ē Maya Angelou
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31008
User's local time:
2018 Jan 21 - 8:21 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jan 08, 2018 10:13 pm    Post subject: Reply with quote

I agree with Carol ó that's the brand that I use.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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