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relatives with MC or Celiac Sprue

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options
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Do you or anyone in your immediate family, (including your parents), have an official diagnosis of celiac disease
I have it, and other members of my family have also been diagnosed.
9%
 9%  [ 3 ]
I have it, but no one else in my family has been diagnosed, but one of more of them shows some indications of possibly having it.
3%
 3%  [ 1 ]
I have it, but no one else in my family has been diagnosed, and none of them show any indications of having it.
12%
 12%  [ 4 ]
I have not been diagnosed with celiac disease, but other members of my family have been diagnosed.
9%
 9%  [ 3 ]
I have not been diagnosed with celiac disease, nor has anyone else in my family, but either myself or other members of my family show some indications of possibly having it.
30%
 30%  [ 10 ]
I have not been diagnosed with celiac disease, nor has anyone else in my family, and neither myself, nor any other members of my family show any indications of having it.
36%
 36%  [ 12 ]
Total Votes : 33

Author Message
maude

United States

Joined: 16 Sep 2009

Posts: 9
User's local time:
2017 Nov 21 - 1:58 AM


Food Intolerances : gluten

PostPosted: Wed Sep 16, 2009 10:59 am    Post subject: relatives with MC or Celiac Sprue Reply with quote

Hi
I am the oldest of 7 kids and 2 of my siblings have Celiac sprue. I have been checked and don't have it, but was diagnosed with MC. I seem to do better if I eliminate gluten.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:58 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Sep 16, 2009 11:58 am    Post subject: Reply with quote

Hi Maude,

This is an excellent topic, and it would be interesting to see what the statistics among members might be. Would you mind if I were to convert your post to a poll, and move it to the Main Message Board, so that more people will respond? If you would rather I didn't, no problem - I can start another thread.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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maude

United States

Joined: 16 Sep 2009

Posts: 9
User's local time:
2017 Nov 21 - 1:58 AM


Food Intolerances : gluten

PostPosted: Wed Sep 16, 2009 1:42 pm    Post subject: Reply with quote

Sure, put it where ever it will be best. I am brand new to any forum. So, thanks so much for your help.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:58 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Sep 16, 2009 2:13 pm    Post subject: Reply with quote

Thanks.

We'll see what we can learn.

Thank you for the idea, and for posting the topic.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:58 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Sep 16, 2009 8:47 pm    Post subject: Reply with quote

Incidentally, for some reason or other, I confused your username with someone else's, and I was in a hurry, and didn't even notice that this was your first post. Embarassed Please forgive me for not properly welcoming you.

welcome to our internet family. Are you newly diagnosed, or have you been dealing with MC for a while? Are you taking any drugs to treat it, or are you trying to control your symptoms by diet alone?

Again, welcome aboard, and please feel free to ask anything.

Tex (Wayne)
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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JLH
King Penguin
King Penguin


Joined: 17 Jun 2008

Posts: 4276
User's local time:
2017 Nov 21 - 3:58 AM


Food Intolerances : gluten, casein, soy, eggs, yeast; 3+ rice, chicken, corn, almond; 2+ tuna. oat, beef, cashew; 1+ white potato, walnut

PostPosted: Wed Sep 16, 2009 9:22 pm    Post subject: Reply with quote

welcome Maude, we're glad you found us.
_________________
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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maude

United States

Joined: 16 Sep 2009

Posts: 9
User's local time:
2017 Nov 21 - 1:58 AM


Food Intolerances : gluten

PostPosted: Thu Sep 17, 2009 11:25 am    Post subject: Reply with quote

Hi Thanks for the welcome!
I have had a diagnosis for about 6 months. I was given an Rx for Lomotil and sent on my way. Since I have 2 siblings with Celiac, and I had had symptoms for 1 1/2 years. I did a trial for a month of gluten-free and had much impovement. Then I was fully tested with a diagnosis of MC.
I'm very encouraged to find this group, as it appears that food sensitivity is a big part of the problem.
Mary Maude :-)
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:58 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Sep 17, 2009 12:26 pm    Post subject: Reply with quote

Mary Maude,

Wow! Your doc was pretty conservative with his prescription. Many members use Lomotil, for occasional "help", but, of course, it's simply an anti-diarrheal, (it slows down motility) - it does nothing to suppress the inflammation that causes the D. It's a good thing that you had a working knowledge of the effects of gluten sensitivity.

As Joan said, "we're glad you found us."

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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starfire
Moderator
Moderator


Joined: 25 May 2005

Posts: 5164
User's local time:
2017 Nov 21 - 4:58 AM


Food Intolerances : Gluten, Soy
Location: Pennsylvania

PostPosted: Thu Sep 17, 2009 4:08 pm    Post subject: Reply with quote

welcome from me too.

I'd like to kick your doctor in the kneecap.

Shirley
_________________
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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maude

United States

Joined: 16 Sep 2009

Posts: 9
User's local time:
2017 Nov 21 - 1:58 AM


Food Intolerances : gluten

PostPosted: Thu Sep 17, 2009 4:54 pm    Post subject: Reply with quote

How do the doctors get better educated about what works beyond the meds?
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:58 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Sep 17, 2009 5:48 pm    Post subject: Reply with quote

Maude wrote:
How do the doctors get better educated about what works beyond the meds?


Unfortunately, that's extremely difficult, because virtually all medical research is financed by the pharmaceutical companies, and they're not going to pay for research that proves that diet changes can control a disease. They're only interested in research that sells more pills. sigh

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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angy
Rockhopper Penguin
Rockhopper Penguin


Joined: 28 Jun 2008

Posts: 1053
User's local time:
2017 Nov 21 - 9:58 AM


Food Intolerances : gluten for sure!! dx cc 2008
Location: scotland,Edinburgh

PostPosted: Thu Sep 17, 2009 8:16 pm    Post subject: Reply with quote

Welcome to our family maude....srry you have had to find us...but now that your here read as much information as you can....Some docs may seem knowledgable about mc but finding a good one is striking a gold mine. Rolling Eyes sticking with a gf diet certainly was a huge difference for me. I thought I was celiac but the test for cd was negative. I was dx with collagenous colitis .
_________________
Angy ;)
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DJ
Gentoo Penguin
Gentoo Penguin


Joined: 01 Oct 2013

Posts: 472
User's local time:
2017 Nov 21 - 4:58 AM


Food Intolerances : gluten, dairy, eggs, soy, kidney beans (and most other legumes), nuts, especially almonds and peanuts, tapioca, xanthan gum, and chicken
Location: Upstate NY

PostPosted: Sun Oct 06, 2013 6:40 pm    Post subject: Reply with quote

Many people in my family have GI difficulties and I believe that some of them have MC.
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