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I Wonder How Many Of Us Have A Sleep Disorder
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Do you have a sleep disorder?
No.
32%
 32%  [ 25 ]
Yes, but I had it before my MC symptoms began.
46%
 46%  [ 35 ]
Yes, and it seemed to begin after my MC symptoms became noticeable.
19%
 19%  [ 15 ]
Yes, but it developed after my MC symptoms were already in remission.
1%
 1%  [ 1 ]
Total Votes : 76

Author Message
alclarkson
Adélie Penguin
Adélie Penguin


Joined: 28 May 2011

Posts: 54
User's local time:
2017 Nov 21 - 3:57 AM


Food Intolerances : To be determined
Location: Missouri

PostPosted: Tue Jul 19, 2011 10:58 pm    Post subject: Reply with quote

Karin- I did the pepto routine, 1 2x a day. I did it for about 3 weeks, started to get constipated and eventually tappered down to not taking any. I've flared up again, prob. 2 wks after stopping. I'm going to start back up in the next week. I worked really well. I think I might start with 1 2x a day this time.
_________________
Diarrhea, nausea, abd. pain 3/31/11. Confirmed gallstone/sludge 4/15/11. Confirmed Lymphocytic Colitis 5/6/11 via colonoscopy. Started Pepto 5/21/11 & stopped 6/21/11. Stopped Cymbalta 6/9/11- D stopped temporarily. 7-19-11- lap chole
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sarkin
Rockhopper Penguin
Rockhopper Penguin


Joined: 10 Mar 2011

Posts: 2313
User's local time:
2017 Nov 21 - 4:57 AM


Food Intolerances : Gluten, dairy, eggs (maybe more?)
Location: Brooklyn, NY

PostPosted: Tue Jul 19, 2011 11:01 pm    Post subject: Reply with quote

Oh my goodness, Denise, what an unfortunate form of sleep troubles for a teenager!

I don't think I have sleep issues, though I did have mild disruptions back around perimenopause. And I may have sleepwalked once, as a child. I honestly am not sure whether I dreamed that, but it hasn't been a typical thing for me in any case.

Sheila, if I screamed in my sleep or flew out of bed, I would definitely call that a problem - or at least my husband would! Thank goodness you haven't hurt yourself ;)

Sleep tight and sleep safe all,

Sara
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TooManyHats
Rockhopper Penguin
Rockhopper Penguin


Joined: 14 Jan 2011

Posts: 550
User's local time:
2017 Nov 21 - 5:57 AM


Food Intolerances : Gluten Soy Dairy Spices including cinnamon, cloves, and ginger
Location: New Jersey

PostPosted: Wed Jul 20, 2011 7:55 am    Post subject: Reply with quote

I did sleep walking as a child and had conversations I didn't remember having. I grew out of it. Now, on occasion, I'll wake up during the night and say something and when my husband tells me about it, I don't remember.

I seem to wake up at night and don't feel tired enough to get to sleep. I've had leg cramps for about 5 years or so. So very painful they wake me up and I have to walk them off.

My husband tells me I snore and stop breathing during the night.

I didn't answer the poll because I haven't been diagnosed with anything.
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Arlene

Progress, not perfection. devilangel
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:57 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Jul 20, 2011 9:34 am    Post subject: Reply with quote

Arlene,

A diagnosis isn't necessary. IMO, a diagnosis doesn't change the symptoms, nor the status of a problem - it merely adds medical acknowledgment, which amounts to a medically-defined collection of symptoms that is assigned an official, (medically-approved), name. Regardless of what they choose to call it, the effects on the patient are the same. shrug

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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sarkin
Rockhopper Penguin
Rockhopper Penguin


Joined: 10 Mar 2011

Posts: 2313
User's local time:
2017 Nov 21 - 4:57 AM


Food Intolerances : Gluten, dairy, eggs (maybe more?)
Location: Brooklyn, NY

PostPosted: Wed Jul 20, 2011 10:53 am    Post subject: Reply with quote

tex wrote:
IMO, a diagnosis doesn't change the symptoms, nor the status of a problem - it merely adds medical acknowledgment, which amounts to a medically-defined collection of symptoms that is assigned an official, (medically-approved), name.


Amen, Tex. When I first got my Enterolab results I wondered whether I 'have celiac disease' or 'am truly celiac' - and then I realized, it's probably the diagnostic criteria that are confused. I know everything I need to know about my genetics & antibodies & empirical response to gluten, and it doesn't matter what I or anyone else want to call it. If endoscopy showed I don't have villous atrophy, I wouldn't eat gluten anyway. If blood tests show I don't have the antibodies - hallelujah, my gut did not sustain enough damage to allow those antibodies to start showing up in blood! Lucky me, I found out in the nick of time.

I am preparing a 'doctor card' - kind of like a chef card, but for the eventuality that someone is trying to talk me into an unnecessary procedure one day. Just a few questions, like: "How will knowing this test result affect my treatment options?" I don't think I'll need to show it to them - just clutching it in my hand should do the trick Very Happy

Sara
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Sheila
Rockhopper Penguin
Rockhopper Penguin


Joined: 18 May 2011

Posts: 1129
User's local time:
2017 Nov 21 - 4:57 AM


Food Intolerances : gluten, eggs, cow's milk, soy, guar gum, whey, goat's milk, cocoa, crab, carrot, amaranth, kamut,
Location: Palm Beach Gardens, Fl

PostPosted: Wed Jul 20, 2011 3:00 pm    Post subject: sleep disorder Reply with quote

Well, Tex, I've always had nightmares. I no longer sleepwalk and infrequently fly or dive out of bed any more. I do cry out if a dream is especially bad but that doesn't happen too often anymore. I guess I have nightmares a couple of times a month now and wake up terrorized only occasionally now. I once punched my mother when she woke me from a nightmare. She was pretty careful after that!! This is normal for me and I never thought of it as dysfunctional. I did not know that the body isn't supposed to move during REM sleep. So, you might categorize my sleep habits as a disorder but for me it's normal.
_________________
To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
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maestraz
Gentoo Penguin
Gentoo Penguin
United States

Joined: 27 Feb 2011

Posts: 459
User's local time:
2017 Nov 21 - 4:57 AM


Food Intolerances : Gluten, dairy, soy, plus histamine issues
Location: CT

PostPosted: Mon Jul 25, 2011 11:28 am    Post subject: Reply with quote

Hello all,
I have had sleep issues all my adult life, though will not do a sleep study b/c I wouldn't sleep with an appliance on my face even if told I needed one.

During my childbearing years, my insomnia very closely mirrored the full moon and my ovulation cycle. I had great trouble falling asleep. I continued to sleep poorly, and when I got to be peri-menopausal, all hell broke loose; I would fall asleep easily, but wake up like clockwork at +\-3AM and very often not get back to sleep. That was accompanied by what I call "the hamster wheel" of rumination that will not stop (needless to say, not a good situation for a teacher to be in the classroom on 3-4 hours of sleep). In the last year, drenching sweats, and I am well past menopause. Wakefulness is accompanied by ruminating. Recently, leg cramps have been a problem.

I have not slept unmedicated in years, but even the meds don't give me consistently good sleep. A lot of my problem is anxiety, and I am currently almost weaned off the SSRI that had been helping, but probably also
contributed to the LC issue.

And, it's no secret the effect that sleeping poorly has on many other aspects of health...
_________________
Suze
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:57 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jul 25, 2011 11:57 am    Post subject: Reply with quote

Suze,

I'm not sure exactly what you mean by "the hamster wheel" of rumination, but if it's what I think it is, I've been stuck in that mode many times, in a seemingly semi-conscious state, during the wee hours of the morning. sigh I've never taken an SSRI, or any type of sleep aid.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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maestraz
Gentoo Penguin
Gentoo Penguin
United States

Joined: 27 Feb 2011

Posts: 459
User's local time:
2017 Nov 21 - 4:57 AM


Food Intolerances : Gluten, dairy, soy, plus histamine issues
Location: CT

PostPosted: Mon Jul 25, 2011 4:49 pm    Post subject: Reply with quote

Hi Tex,
I think you are on the right wave length with my "hamster wheel" idea...that the mind just will not quit, going round and round the same dumb s--- over and over, getting nowhere: things from the past, stressors from work or family, etc.
_________________
Suze
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NJ
Little Blue Penguin
Little Blue Penguin


Joined: 10 Sep 2009

Posts: 27
User's local time:
2017 Nov 21 - 4:57 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Oats, Garlic, Banana, Vanilla
Location: Northern California

PostPosted: Mon Jul 25, 2011 6:57 pm    Post subject: Reply with quote

Is it possible to have sleep apnea, or something very similar, w/out fitting the traditional stereotype of being overweight with a tendency towards snoring? I ask because I sleep terribly--waking up many times a night--but have never been told I snore and am actually quite underweight. It seems no matter what I do, I sleep terribly and yet I'm convinced my doctors won't take me seriously if I bring up the idea of a sleep study.
_________________
"Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game." ~Voltaire
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:57 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jul 25, 2011 10:22 pm    Post subject: Reply with quote

Yes, it's certainly possible to have sleep apnea without snoring, and without being overweight. If you want to show your doctors some proof, here's a discussion on that very topic, on a sleep apnea support forum:

http://www.apneasupport.org/about5355.html

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:57 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jul 25, 2011 10:27 pm    Post subject: Reply with quote

Suze wrote:
I think you are on the right wave length with my "hamster wheel" idea...that the mind just will not quit, going round and round the same dumb s--- over and over, getting nowhere: things from the past, stressors from work or family, etc.


Yep, that used to be a common problem for me. Fortunately, it hasn't happened in a long, long time.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Stanz
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2009

Posts: 947
User's local time:
2017 Nov 21 - 1:57 AM


Food Intolerances : Genetically GS via Enterolab, Tapioca
Location: Oregon

PostPosted: Tue Jul 26, 2011 12:23 pm    Post subject: Reply with quote

maestraz wrote:
Hi Tex,
I think you are on the right wave length with my "hamster wheel" idea...that the mind just will not quit, going round and round the same dumb s--- over and over, getting nowhere: things from the past, stressors from work or family, etc.


I love this analogy, Suze, this is truly what I do non-stop for hours. I am usually "at work" and have forgotten something important or have done something wrong and I'm trying to "fix" it - over and over and over again.

I've done a sleep study and the results were that I NEVER was fully asleep. I would approach it and then would fight it and wake myself up. The doctor believes this relates to my PTSD. DH says I snore, and I also have apnea. I could never use a CPAP, although using one has greatly helped my DH. Gave some thought to using a dental device, but never followed up on it. I prop pillows against my back to keep me from rolling over onto my back, as that will always shut off the air and wake me up with a snort.
_________________
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 3:57 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Jul 26, 2011 3:28 pm    Post subject: Reply with quote

Connie wrote:
I've done a sleep study and the results were that I NEVER was fully asleep.


I've never done a sleep study, but that's the impression I get, also, that I'm not fully asleep, when it happens.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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sarkin
Rockhopper Penguin
Rockhopper Penguin


Joined: 10 Mar 2011

Posts: 2313
User's local time:
2017 Nov 21 - 4:57 AM


Food Intolerances : Gluten, dairy, eggs (maybe more?)
Location: Brooklyn, NY

PostPosted: Tue Jul 26, 2011 4:34 pm    Post subject: Reply with quote

Interesting... I read once that in some sleep studies, people with terrible insomnia go to sleep, wake up in the morning and say - "see, I didn't sleep a wink!" But that was a superficial observation, and I bet there was little to no truly restful sleep.

My husband read that some people get up in the morning, and can be up for even a few hours, but an EEG will show that their brains are still asleep. This filled him with compassion and understanding for me...

I have been waking up refreshed and ready to go much more often since I fixed my diet. I am definitely sleeping somewhat less overall, and am less fatigued in the evenings. YAY!

Sara
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