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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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List Of Recommended Doctors
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tex
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Joined: 24 May 2005

Posts: 30858
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2017 Dec 17 - 9:27 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Aug 17, 2011 9:10 am    Post subject: List Of Recommended Doctors Reply with quote

Hi All,

I'm trying to create a list of doctors who are highly recommended by members, for treating MC, CC, LC, etc., and I'd like to maintain a separate list for doctors highly qualified to treat mast cell issues. Doctors who are truly qualified to treat this disease are still few and far between, but over the years, members have encountered a few, and more enlightened doctors seem to be showing up with increasing frequency, in the last year or two.

If you'd like to recommend one or more doctors, I would appreciate hearing about them, but keep in mind that this list should not include also-rans, or wannabes. I'm not interested in listing doctors who recognize the name of the disease, but that's about the extent of their expertise, or doctors who didn't cause you to end up in the emergency room, but didn't actually help you much, either. No, I'm looking for the names of doctors who are truly qualified to treat this disease - IOW, doctors who actually "get it".

I'm looking for the names of doctors who realize that 8 weeks of treatment with Entocort is not going to "cure" the disease, so if they prescribe it, they're willing to prescribe it as long as necessary, to accomplish and maintain remission. And, of course, I'm looking for the names of doctors who recognize the existence of non-celiac gluten-sensitivity, and the connection between food sensitivities and MC. I'm also looking for doctors who are willing to "think out of the box" and learn about the disease along with the patient. And, of course, I don't expect any recommended doctors to necessarily have all of these qualifications, but ideally, the best doctors will have all of them.

A number of doctors have been mentioned in the past, who are obviously qualified for listing, but tracking their names down in the archives is a pretty tedious job, so if anyone is aware of postings about such doctors in the past, please bring them to my attention, so that I can add them to the list.

I think that these lists could prove to be very beneficial, especially to newbies, if we can come up with enough qualified doctors to cover significant parts of the countries where most of our members live, provided that we don't list any doctors who demonstrate counterproductive tendencies concerning the treatment of MC and/or mast cell issues. As always, (IMO), quality is more important than quantity.

Thanks,
Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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mbeezie
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Joined: 29 May 2009

Posts: 1500
User's local time:
2017 Dec 17 - 9:27 AM


Food Intolerances : gluten, dairy, soy, tapioca
Location: Texas

PostPosted: Wed Aug 17, 2011 10:08 am    Post subject: Reply with quote

Tex,

Great idea!

The mast cell specialists I have seen and recommend are Marianna Castells at Brigham and Women's in Boston and Henry Legere In Austin, TX (he trained with Dr. Castells).

Mary Beth
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"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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tex
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Site Admin


Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:27 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Aug 17, 2011 11:19 am    Post subject: Reply with quote

Thanks.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MBombardier
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Joined: 14 Oct 2010

Posts: 1524
User's local time:
2017 Dec 17 - 7:27 AM


Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Wed Aug 17, 2011 9:32 pm    Post subject: Reply with quote

I like my GI--Duane Webb at The Vancouver Clinic in Vancouver, WA. He's a Fellow of the American College of Gastroenterology. Here is his page: http://www.tvc.org/Doctors/search/details.ashx?p=1102&prac=d4c316be-f2a7-40f8-b0e0-ab3ade35ca51&lname=webb&lang=eng.

Dr. Webb thinks he knows Dr. Fine, as I've mentioned before. He diagnosed me with gluten intolerance when I told him how well I was doing on a gluten-free diet. He's very knowledgeable, but also humble--he told me that GI's really don't know how to treat MC, and was very interested in what I had to say about what works for me. He has a son who is finishing up his medical degree and plans to go into colorectal disease research.
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Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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mbeezie
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Joined: 29 May 2009

Posts: 1500
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2017 Dec 17 - 9:27 AM


Food Intolerances : gluten, dairy, soy, tapioca
Location: Texas

PostPosted: Thu Aug 18, 2011 4:39 am    Post subject: Reply with quote

I guess I would add Scott Lewey to the list. He definitely knows MC and seems to understand mast cells as well, at least from a GI standpoint. He will only see residents of Colorado.

Mary Beth
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"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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Sheila
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Joined: 18 May 2011

Posts: 1129
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2017 Dec 17 - 10:27 AM


Food Intolerances : gluten, eggs, cow's milk, soy, guar gum, whey, goat's milk, cocoa, crab, carrot, amaranth, kamut,
Location: Palm Beach Gardens, Fl

PostPosted: Thu Aug 18, 2011 6:06 am    Post subject: Reply with quote

I would recommend my gastroenterologist, Dr. Bernie Stein of Jupiter, Fl. He is a partner in the largest GI group in our area. He diagnosed my mother with CC more than 10 years ago. He began treating me last December, diagnosed me with CC in March. He is in agreement that GF is the way to go. All in all, he's intelligent and open minded.
Sheila
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To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
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tex
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Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:27 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Aug 18, 2011 10:17 am    Post subject: Reply with quote

Thanks Marliss, Mary Beth, and Sheila,

I've added them to the list.


Mary Beth,

Actually, I had already added Dr. Lewey to both lists, yesterday, right after I set it up, since he came to mind immediately, due to his strong internet presence. So far, he's the only one on both lists, since most of the doctors on the "mast cell" list are allergists.

Thanks again,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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barbaranoela
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Joined: 25 May 2005

Posts: 5402
User's local time:
2017 Dec 17 - 9:27 AM



Location: New York

PostPosted: Mon Aug 22, 2011 10:28 am    Post subject: and I add Reply with quote

Dr. Chapman ---New York City----
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the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:27 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Aug 22, 2011 12:17 pm    Post subject: Reply with quote

Hi Barbara,

Is this the right Dr. Chapman?

http://www.mountsinaihospital.org/profiles/mark-l-chapman

I hope so, because he's the first one on my list.

Thanks.

Luve,
Galahad
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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barbaranoela
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2017 Dec 17 - 9:27 AM



Location: New York

PostPosted: Mon Aug 22, 2011 5:31 pm    Post subject: Reply with quote

Galahad~~~~~~~ yup---thats the man----I owe him my life and sanity ---think I drove him crazy but he well understood--- Smile

luve---columbo Very Happy
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grannyh
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Joined: 29 May 2005

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2017 Dec 17 - 11:27 AM




PostPosted: Tue Aug 23, 2011 9:45 pm    Post subject: Reply with quote

This is my favorite gastro doc..
Peter J Schwarz MD PC
6560 Fannin Street Suite 1008
Houston, TX 77030
Phone: (713) 795-8282

He had no problem with me referring to this site, trying things my own way.. and when I was ready for entocort ec when it came back on the market.. he prescribed it.
grannyh
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:27 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Aug 24, 2011 8:22 am    Post subject: Reply with quote

GrannyH,

Excellent!

Thanks,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Joefnh
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Joined: 21 Apr 2010

Posts: 2472
User's local time:
2017 Dec 17 - 10:27 AM


Food Intolerances : Gluten, Soy, Dairy, Onions
Location: Southern New Hampshire

PostPosted: Tue Aug 30, 2011 9:25 pm    Post subject: Reply with quote

Tex I have been going to Dr Nagri in Nashua NH


Dartmouth Gastroenterology: Nagri Srikrishna MD
21 East Hollis Street, Nashua, NH 03060-2928
603-577-4081

I believe 'NancyL' has been enjoying working with him as well.


Joe
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Joe
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tex
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Site Admin


Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:27 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Aug 31, 2011 7:42 am    Post subject: Reply with quote

Joe,

Thanks for the info.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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nancyl
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Joined: 29 Dec 2010

Posts: 762
User's local time:
2017 Dec 17 - 10:27 AM


Food Intolerances : dairy, not sure about anything else yet
Location: Massachusetts

PostPosted: Fri Sep 02, 2011 3:03 pm    Post subject: Reply with quote

Tex,
Yes, Dr. Nagri is good. I like him very much.

Nancy
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