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MICROSCOPIC COLITIS SUPPORT Forum Index

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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1232
User's local time:
2017 Oct 22 - 12:20 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Mon Jan 25, 2016 4:09 pm    Post subject: Reply with quote

Hi Linda,
I'm sorry to hear that is your Dr's thoughts about MC, LC or CC. So far there are plenty of people here that say and feel otherwise. The info at this site would Blow Dr's Minds Away, wouldn't it? Wink
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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Adelaide
Adélie Penguin
Adélie Penguin


Joined: 14 Dec 2015

Posts: 166
User's local time:
2017 Oct 22 - 5:50 PM


Food Intolerances : Gluten
Location: South Australia

PostPosted: Mon Jan 25, 2016 10:36 pm    Post subject: Reply with quote

Erica
All the information on here gives me hope for a better future.
_________________
Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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jcml12
Little Blue Penguin
Little Blue Penguin
unknown IP

Joined: 24 Apr 2015

Posts: 33
User's local time:
2017 Oct 22 - 12:20 AM


Food Intolerances : gluten, dairy, soy, casein, grains, gums, sugar, corn
Location: PORTLAND, OR

PostPosted: Thu Apr 14, 2016 7:57 am    Post subject: Reply with quote

I would recommend Dr Steven Sandberg-Lewis NT in Portland, OR. You can see him in his private practice or at the College for Naturopathic Medicine. He can prescribe RX and knows it takes longer that 6 weeks. He also knows diet change is a must. I was on the lowest dose for 1 yr. Have been off since Nov 2015 and have been great. Of course I still follow grain free, gluten free, soy free etc.
_________________
Collagenous Colitis, Benign Cramp Fasciculations in lower legs, Thyroid and High Cholesterol
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terry313401

United States

Joined: 10 May 2016

Posts: 1
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : dairy, raw leafy greens, caffeine over a small amount,others unknown

PostPosted: Mon May 23, 2016 11:40 am    Post subject: Excellent physician Reply with quote

the dr. who diagnosed my CC is:

Timothy Mecredy, Belair Rd, Evans, GA

He's an excellent physician, very kind, patient, and although he wasn't highly experienced with CC in 2004-2005, he did a lot of research and reading on my behalf. Staff in his office were also excellent. I would recommend him without reservation and wish I still lived there and could have him again.

My current physician, S. Chandrahasagowda is also very good. He's more experienced with CC and I've been seeing him for five years. He is at Gastrointestinal Clinic of Quad Cities. 4340 7th Street. Moline, IL 61265
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon May 23, 2016 12:29 pm    Post subject: Reply with quote

JCML,

I must have somehow missed your post earlier, but all is well because Dr. Sandberg-Lewis was apparently recommended by another member earlier, because he has been on the list for a while.

Thank you for recommending him, however.


Terry,

I've added both of the doctors you recommended to the list.

Thanks. Our list continues to slowly grow.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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weeZ



Joined: 27 Apr 2016

Posts: 2
User's local time:
2017 Oct 22 - 3:20 AM


Food Intolerances : ??
Location: Jacksonville, FL

PostPosted: Mon May 23, 2016 3:03 pm    Post subject: Enterolab Testing Reply with quote

I have been out to the EnteroLab site and note a large variety of tests available - Do you believe the Panel A1 + C1: Comprehensive Gluten/Antigenic Food Sensitivity Stool Panel to be a "Good Start" in identifying potential issues?

Quote:
Always remember that you are absolutely unique. Just like everyone else. Margaret Mead

_________________
weeZ
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon May 23, 2016 3:41 pm    Post subject: Reply with quote

Yes, those 2 panels are the ones that most members order because they cover most of the foods that are likely to be a problem for MC patients.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Disappointed

unknown IP

Joined: 18 May 2016

Posts: 16
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : MSG

PostPosted: Wed Jun 01, 2016 10:01 pm    Post subject: Lists of best gastroenterologists for LC Reply with quote

Tex

Do you have one near San Antonio, Texas?[/i]
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Jun 02, 2016 9:57 am    Post subject: Reply with quote

I'm sorry to have to report that no one has recommended any doctors in that area, or even anywhere close. Good GI specialists who are qualified to treat MC are still tough to find.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Disappointed

unknown IP

Joined: 18 May 2016

Posts: 16
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : MSG

PostPosted: Mon Jun 06, 2016 2:08 pm    Post subject: GI's Reply with quote

Thanks, tex. Any in Houston?
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jun 06, 2016 2:34 pm    Post subject: Reply with quote

Yes, we have a listing in Houston, and he is accepting new patients:

Dr. Peter Schwarz
6560 Fannin Street Suite 1008
Houston, TX 77030
(713) 795-8282

http://www.houstonmethodist.org/doctor/peter-schwarz

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Kpietryka

United States

Joined: 18 May 2016

Posts: 13
User's local time:
2017 Oct 22 - 3:20 AM


Food Intolerances : No known allergies

PostPosted: Wed Jun 15, 2016 5:16 pm    Post subject: Reply with quote

I went to a physical medicine doctor today that prescribed low dose naltrexone for me. Her name is Dr. Yenchick. In Roseville, Michigan.
She said the low dose naltrexone will help with the auto immune aspect of the disease. I also have Hashimotos thyroiditis. You can look up lowdosenaltrexone.org to see what it's all about. It also helps with Chrohns as well
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Jumpindogs
Adélie Penguin
Adélie Penguin


Joined: 12 May 2016

Posts: 124
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : Gluten, blueberries, spinach and undoubtedly more to come...
Location: Wisconsin

PostPosted: Sat Jul 09, 2016 7:34 pm    Post subject: Where is this list please? Reply with quote

I've looked all over the forum and cannot find the actual list of doctors. I know it's here...I found it once before. Did a search and couldn't find it that way either. Sorry but could someone please point me to it? Thanks!
_________________
Joanne and the Recycled Aussies
LC May 2016
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7136
User's local time:
2017 Oct 22 - 6:20 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Jul 09, 2016 7:49 pm    Post subject: Reply with quote

http://www.perskyfarms.com/phpBB2/viewforum.php?f=40
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Jumpindogs
Adélie Penguin
Adélie Penguin


Joined: 12 May 2016

Posts: 124
User's local time:
2017 Oct 22 - 2:20 AM


Food Intolerances : Gluten, blueberries, spinach and undoubtedly more to come...
Location: Wisconsin

PostPosted: Sat Jul 09, 2016 9:09 pm    Post subject: Reply with quote

Gabes-Apg wrote:
http://www.perskyfarms.com/phpBB2/viewforum.php?f=40


Thanks Gabes! How should I have searched to find this? I sorta feel like a dork for not being able to.
_________________
Joanne and the Recycled Aussies
LC May 2016
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