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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7127
User's local time:
2017 Oct 18 - 10:42 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Jul 09, 2016 9:16 pm    Post subject: Reply with quote

a bit like a google search use the right key words,

the word 'Doctor' as the keyword in the search

and then as you scan the results the forum section is on the left, the doctors section of the forum was one of the top 20 results
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Jumpindogs
Adélie Penguin
Adélie Penguin


Joined: 12 May 2016

Posts: 124
User's local time:
2017 Oct 18 - 6:42 AM


Food Intolerances : Gluten, blueberries, spinach and undoubtedly more to come...
Location: Wisconsin

PostPosted: Sat Jul 09, 2016 10:02 pm    Post subject: Reply with quote

Gabes-Apg wrote:
a bit like a google search use the right key words,

the word 'Doctor' as the keyword in the search

and then as you scan the results the forum section is on the left, the doctors section of the forum was one of the top 20 results


K. I had tried "list of doctors". Thanks.
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Joanne and the Recycled Aussies
LC May 2016
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7127
User's local time:
2017 Oct 18 - 10:42 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Jul 09, 2016 10:08 pm    Post subject: Reply with quote

when doing this type of searching using key words rather than key phrases tends to work a bit better.

I also find that as it is a global site, using words rather than phrasing provides slightly better results..

hope you are having a good weekend and enjoying your paleo muffins etc.
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Jumpindogs
Adélie Penguin
Adélie Penguin


Joined: 12 May 2016

Posts: 124
User's local time:
2017 Oct 18 - 6:42 AM


Food Intolerances : Gluten, blueberries, spinach and undoubtedly more to come...
Location: Wisconsin

PostPosted: Sun Jul 10, 2016 7:46 am    Post subject: Reply with quote

Gabes-Apg wrote:
when doing this type of searching using key words rather than key phrases tends to work a bit better.

I also find that as it is a global site, using words rather than phrasing provides slightly better results..

hope you are having a good weekend and enjoying your paleo muffins etc.


Thanks, Gabes. :-)

I adore my Paleo muffins! Added a little salt to the recipe which enhanced the taste. Your excellent suggestion, coupled with Tex's assurance that the ingredients were on the safe side for most, saved my sanity. Hugs of gratitude to both of you!

Enjoy your weekend, Gabes, and blessings to all. Smile
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Joanne and the Recycled Aussies
LC May 2016
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Robin519



Joined: 25 Jul 2017
Posts: 12
User's local time:
2017 Oct 18 - 7:42 AM


Food Intolerances : Gluten, not sure what else yet

PostPosted: Tue Jul 25, 2017 7:45 pm    Post subject: enterolab tests Reply with quote

Tex,
I read that in NYS and Maryland that an individual cannot order the Enterolab tests. Would my doctor be able to do this? I live in NYS.
Thanks,
Robin
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30583
User's local time:
2017 Oct 18 - 6:42 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Jul 25, 2017 8:45 pm    Post subject: Reply with quote

Yes, your doctor could order the test if she or he is willing. Many members end up having a relative or a friend across state lines order the test for them, then they drive over and pick it up, collect the sample and then drive out-of-state again to send it to the lab.

When a family member or friend isn't available, another member of this forum would be willing to do it.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Robin519



Joined: 25 Jul 2017
Posts: 12
User's local time:
2017 Oct 18 - 7:42 AM


Food Intolerances : Gluten, not sure what else yet

PostPosted: Wed Jul 26, 2017 5:17 am    Post subject: Reply with quote

Thank you so much for your quick reply! I may need to ask someone to do that for me. Do you know approximate cost for the testing?
Robin
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30583
User's local time:
2017 Oct 18 - 6:42 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Jul 26, 2017 8:50 am    Post subject: Reply with quote

A complete combination of the A1 + C1 panels is $539, including return shipping for the sample (inside the U. S. — return shipping for the sample is extra, outside the U. S.) If that's more than you can justify fight now, you can order the A1 Panel for $269 to test for sensitivity to gluten. casein, soy, and eggs. The C1 Panel adds testing for chicken, beef, pork, almonds, walnuts, cashews, rice, oats, corn, tuna, and white potato.

https://www.enterolab.com/StaticPages/TestInfo.aspx#PanelA1C1

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Robin519



Joined: 25 Jul 2017
Posts: 12
User's local time:
2017 Oct 18 - 7:42 AM


Food Intolerances : Gluten, not sure what else yet

PostPosted: Wed Jul 26, 2017 9:04 am    Post subject: Reply with quote

HI Tex,
Thats a small price to pay to find out what is making me feel like crap!! I have been gluten free for a year. Do I need to go back on gluten before doing the tests?
Robin
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30583
User's local time:
2017 Oct 18 - 6:42 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Jul 26, 2017 9:30 am    Post subject: Reply with quote

No, unlike the blood tests (which are only good for a month or so after starting a GF diet), EnteroLabs stool tests will normally detect gluten sensitivity up to about 2 years after adopting a GF diet. That doesn't apply to the other foods, it only applies to gluten because anti-gliadin (anti-gluten) IgA antibodies have such a long half-life (120 days). By contrast, the half-life of most other food antibodies is only about 6 days

The only hitch would be if you have selective IgA deficiency. People who have selective IgA deficiency (about 1 in 500 in the general population) aren't capable of producing normal amounts of Immunoglobulin A. For such individuals, neither the celiac blood tests nor the stool tests are reliable. They may provide false negative results. This possibility can be ruled out with a simple blood test. Just ask your PCP to test you for selective IgA deficiency. Or, look at your previous test results, you may have already been tested if your GI specialist or your PCP tested you for celiac disease.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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