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List Of Recommended Doctors
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:35 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Apr 08, 2015 7:50 pm    Post subject: Reply with quote

Thanks. I've added him to the list. If you see anything wrong with the information that I listed, please let me know what I need to update.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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drdebc
Adélie Penguin
Adélie Penguin


Joined: 08 Nov 2012

Posts: 147
User's local time:
2017 Dec 17 - 10:35 AM


Food Intolerances : Gluten 67, Anti-Casein 14, chicken egg 13, Soy 10, Oats, Peanuts.
Location: On a lake in the N GA mountains

PostPosted: Mon Apr 20, 2015 6:23 pm    Post subject: Recommended MD Reply with quote

Hey Tex,
I highly recommend:

Michael R. Galambos, M.D.
Gastroenterologist

Practice Location:

Digestive Healthcare of Georgia, P.C.
Piedmont Hospital
95 Collier Road
Suite 4085
Atlanta, GA 30309
404-355-3200

Digestive Healthcare of Georgia, P.C.
Mountainside Village Complex
134 Mountainside Village Parkway
Building 500
Jasper, GA 30143
706-253-7340

He also practices in Blue Ridge, GA

Deb
_________________
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC and Barrett's Esophagus.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:35 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Apr 20, 2015 7:37 pm    Post subject: Reply with quote

Hi Deb,

I thought the name sounded familiar. He's already on our list, so apparently he comes highly recommended.

Thanks,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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drdebc
Adélie Penguin
Adélie Penguin


Joined: 08 Nov 2012

Posts: 147
User's local time:
2017 Dec 17 - 10:35 AM


Food Intolerances : Gluten 67, Anti-Casein 14, chicken egg 13, Soy 10, Oats, Peanuts.
Location: On a lake in the N GA mountains

PostPosted: Mon Apr 20, 2015 8:02 pm    Post subject: Tex, I might have already added him Reply with quote

or, others might know him. He has your book and he did not force the PPI's for my Barrett's esophagus. Instead, I take melatonin and check in with him X 2 per year.
_________________
Retired marketing Higher Ed PhD striving to heal myself with a minimal amount of prescription meds.
Diagnosed w/collagenous MC and Barrett's Esophagus.
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jcml12
Little Blue Penguin
Little Blue Penguin
unknown IP

Joined: 24 Apr 2015

Posts: 33
User's local time:
2017 Dec 17 - 7:35 AM


Food Intolerances : gluten, dairy, soy, casein, grains, gums, sugar, corn
Location: PORTLAND, OR

PostPosted: Fri Apr 24, 2015 10:43 am    Post subject: Re: List Of Recommended Doctors Reply with quote

tex wrote:
Hi All,

I'm trying to create a list of doctors who are highly recommended by members, for treating MC, CC, LC, etc., and I'd like to maintain a separate list for doctors highly qualified to treat mast cell issues. Doctors who are truly qualified to treat this disease are still few and far between, but over the years, members have encountered a few, and more enlightened doctors seem to be showing up with increasing frequency, in the last year or two.

If you'd like to recommend one or more doctors, I would appreciate hearing about them, but keep in mind that this list should not include also-rans, or wannabes. I'm not interested in listing doctors who recognize the name of the disease, but that's about the extent of their expertise, or doctors who didn't cause you to end up in the emergency room, but didn't actually help you much, either. No, I'm looking for the names of doctors who are truly qualified to treat this disease - IOW, doctors who actually "get it".

I'm looking for the names of doctors who realize that 8 weeks of treatment with Entocort is not going to "cure" the disease, so if they prescribe it, they're willing to prescribe it as long as necessary, to accomplish and maintain remission. And, of course, I'm looking for the names of doctors who recognize the existence of non-celiac gluten-sensitivity, and the connection between food sensitivities and MC. I'm also looking for doctors who are willing to "think out of the box" and learn about the disease along with the patient. And, of course, I don't expect any recommended doctors to necessarily have all of these qualifications, but ideally, the best doctors will have all of them.

A number of doctors have been mentioned in the past, who are obviously qualified for listing, but tracking their names down in the archives is a pretty tedious job, so if anyone is aware of postings about such doctors in the past, please bring them to my attention, so that I can add them to the list.

I think that these lists could prove to be very beneficial, especially to newbies, if we can come up with enough qualified doctors to cover significant parts of the countries where most of our members live, provided that we don't list any doctors who demonstrate counterproductive tendencies concerning the treatment of MC and/or mast cell issues. As always, (IMO), quality is more important than quantity.

Thanks,
Tex


Tex,
I am new to this posting thing but not to the site as I have been coming and reading for many months now. I wanted to tell you for your doctors list that Steven Sandberg-Lewis ND at the Sibo Center for Digestive Issues in Portland, OR has been a life saver for me. After being diagnosed last May 2014 with Collagenous Colitis the GI Specialist I saw wanted to put me on Budesonide right away but I was not having a flare up at the time and was against taking a steroid as I had heard so much about steroids in the past with people. I tried several months with Pepto Bismol since I really started with all this in January 2014 and the D would eventually go away but after a few months it would return. I had been eating GF and Dairy Free for over a year prior to diagnosis. The last bout with it started in again and I was having a rough time as I had lost so much weight over that prior 6 months and was so tired because as you know sleep is hard when you are having uncontrolable D all night! Anyway my Naturopath suggested I see Dr Sandberg-Lewis at the Sibo Center as he is very knowledgable about digestive issues. He has helped me so much! First he tested me for SIBO "Small Intestine Bacteria Overgrowth" which does not cause MC but can make it worse. Sure enough I had that. He put me on some antibiotics for 2 weeks then we retested in 3 and I was mostly clear. He now has be taking a very low dose of Erythromycin 1/4 of a 250 mg pill daily to keep it at bay. He also started me on the Low Fodmap Diet (no grains) and suggested the Budesonide. At first I wanted to try without but after a few days (again I was at my last rope) I asked him to prescribe the Budesonide. I started taking 3 pills a day and after two weeks when he checked on me and my D was gone in basically 3 days after starting he told me to go down to 2 pills and I did that for two weeks and then I have been on 1 pill ever since as well as the diet. I have had no problems until about a month ago and I thought I was doing so well and I ate a corn tortilla and that was all it took. Two days later it returned. Thankfully it only lasted for 2 days but still freaked me out. Dr. Sandberg-Lewis explained to me right off that diet had to be changed as well as telling me that he was going to keep me on the Budesonide for at least a year and maybe a little longer depending on how well I did. In June I will start trying a every other day dose and see how I do and we will judge from there. I learned more from him than my GI and he is very well known. I did mention to him on a followup visit about the SIBO and of course he made a face that he thought I was crazy and seeing a quack. This same doctor has done proven studies with Fecal Transplants (was on the news here in Portland) that saved a womens life that had CDiff and the doctors in the hospital were basically telling her to get her life in order. Her daughter had gone to naturopaths before and had read about it and convinced her to try and she was better in 2 days. I know this is a lot to say just to give you a doctors name but again he helped me tremendously and if I had stuck with my GI I'm sure he would have taken me off the Budesonide too early as well as no diet was ever mentioned. Hope this helps someone else here in Portland.
_________________
Collagenous Colitis, Benign Cramp Fasciculations in lower legs, Thyroid and High Cholesterol
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:35 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Apr 24, 2015 12:10 pm    Post subject: Reply with quote

Thanks,

And welcome to our Internet family. I appreciate your suggestion, and I've added him to the list.

Yes, GI specialists are becoming much better at diagnosing this disease, but they can be their own worst enemy (regarding treatment success rates) when they refuse to think out of the box. MC can be a very complex disease.

Again, welcome aboard, and thank you for sharing your experience.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Overitmc

United States

Joined: 20 Apr 2015

Posts: 12
User's local time:
2017 Dec 17 - 9:35 AM




PostPosted: Mon May 04, 2015 5:37 am    Post subject: Reply with quote

I'm looking for a good doctor in the Kansas City area. Anyone know of one?
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care314



Joined: 11 May 2015

Posts: 14
User's local time:
2017 Dec 17 - 10:35 AM


Food Intolerances : cruciferous vegetables
Location: United States

PostPosted: Wed May 13, 2015 10:27 am    Post subject: Reply with quote

My Gastro go to person is

Russell D. Keinath, MD - Huron Gastroenterology
hurongastro.com
5300 Elliott Dr. Ypsilanti, Michigan 48197. Location Phone: (734) 434-6262. Additional Location Phone: (800) 772-4659. Location Fax: (734) 712-2820.

He listens!!![/i]
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1274
User's local time:
2017 Dec 17 - 7:35 AM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Thu Jun 25, 2015 3:00 pm    Post subject: Reply with quote

Anybody in the South Eastern Washington State area needing a Functional Medicine Dr. I see this Dr. and he has done fairly well for me so far, I have not seen the second person listed below, but I hear she good too.


IFM Certified Practitioner 2013AFMCP 2007 DEC
Bart Moore, MD, MPH
(509) 527-8151
Walla Walla Family Medicine
Nutritional Medicine Functional Medicine - See more at: https://www.functionalmedicine.org/practitioner_...px?id=117#results

Adventist Health/Medical Group: Moore C Barton MD
1111 S 2nd Ave Walla Walla, WA 99362
(509) 527-8151


AFMCP 2011 SEP
Melissa McClintock, ND
(509) 525-4160 Walla Walla - See more at: https://www.functionalmedicine.org/practitioner_...px?id=117#results
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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Nutter

unknown IP

Joined: 03 Jan 2016

Posts: 2
User's local time:
2017 Dec 17 - 2:35 PM


Food Intolerances : 15085280449

PostPosted: Fri Jan 22, 2016 8:11 pm    Post subject: Reply with quote

HI
I'm new here, recently diagnosed with MC after 8 weeks on nonstop WD. I'm near Boston and my GI diagnosed me and prescribed entocort for 8 weeks. After much research, I decided not to take the full dose (took it for 10 days) and started GF, DF and Metagenics, Vit B, VIt D. Anyway, really enjoying the site and comraderie here. I was trying to find a good GI doctor that 'gets it' more than the one I have and found this thread. Tex, you talk about a list of doctors but I can't seem to find the list. Is it just this thread or is there an actual place with a list of doctors and addresses? If so, could someone help me navigate there? Again, thanks for a great site.
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7274
User's local time:
2017 Dec 18 - 1:35 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Fri Jan 22, 2016 8:32 pm    Post subject: Reply with quote

here is a link to that section of the forum
http://www.perskyfarms.com/phpBB2/viewforum.php?f=40
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Adelaide
Adélie Penguin
Adélie Penguin


Joined: 14 Dec 2015

Posts: 171
User's local time:
2017 Dec 18 - 1:05 AM


Food Intolerances : Gluten
Location: South Australia

PostPosted: Fri Jan 22, 2016 9:44 pm    Post subject: Reply with quote

Bit sad that there are no Aussies on the list Gabes
_________________
Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30858
User's local time:
2017 Dec 17 - 9:35 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Jan 22, 2016 9:47 pm    Post subject: Reply with quote

Hi Nutter,

Welcome to our Internet family. I see that Gabes has already directed you to the lists. Unfortunately the lists aren't growing as I had hoped. It's still very tough to find GI specialists who actually know how to treat MC successfully. I hope that changes one of these days.

Again, welcome aboard, and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7274
User's local time:
2017 Dec 18 - 1:35 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Jan 23, 2016 1:38 pm    Post subject: Reply with quote

Quote:
Bit sad that there are no Aussies on the list Gabes


Linda, agree
when i joined the board in 2009 there were only two other aussies regularly posting, liz who lives sunshine coast Qld and Lyn who lives in Canberra (at that time I was living in Brisbane) since then we have not had any regular contributors from Aus.

one aspect to this, i think for new people joining from other countries outside America it might be hard as the items (medications, foods etc) discussed on the forum are not all available in other countries.

the other aspect with the doctor list, it is hard to keep up to date and maintain. majority of people here that once they get the MC management plan in place, they are only doing the routine colonoscopies every 5 years etc.

Both the GI specialists I saw (one in brisbane and one in toowoomba) did not think diet was a key management tool for the MC.
and of the 12 or more GP's i have seen in this time, only 1 of them had treated another patient with MC. all the rest struggle a bit with my low fibre, minimal ingredients approach.
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Adelaide
Adélie Penguin
Adélie Penguin


Joined: 14 Dec 2015

Posts: 171
User's local time:
2017 Dec 18 - 1:05 AM


Food Intolerances : Gluten
Location: South Australia

PostPosted: Sat Jan 23, 2016 4:32 pm    Post subject: Reply with quote

I haven't even had an appointment with my GI doctor since the diagnosis. I see him in a couple of weeks. He did tell me on the phone that diet will not help with this disease.
_________________
Linda

Lymphocytic Colitis Dec 2015
(symptoms started Nov 2011)
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