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Approximately How Often Do You Have MC Reactions?
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About how often do you have reactions that are probably caused by MC?
Very often
40%
 40%  [ 34 ]
Several times a month
23%
 23%  [ 20 ]
Once or twice a month
12%
 12%  [ 11 ]
Once every few months
14%
 14%  [ 12 ]
Once or twice a year
4%
 4%  [ 4 ]
Once every few years
4%
 4%  [ 4 ]
Total Votes : 85

Author Message
tex
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Joined: 24 May 2005

Posts: 30706
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2017 Nov 18 - 7:40 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Sep 06, 2005 7:08 am    Post subject: Approximately How Often Do You Have MC Reactions? Reply with quote

About how often do you have reactions that you are reasonably sure are caused by MC, or at least related to it?

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MaggieRedwings
King Penguin
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Joined: 31 May 2005

Posts: 3865
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2017 Nov 18 - 8:40 AM


Food Intolerances : Gluten, Soy, Eggs, Nightshades, Mushrooms, Bananas, Melons, Most Dairy, usually Citrus, Corn for the most part
Location: SE Pennsylvania

PostPosted: Tue Sep 06, 2005 7:15 am    Post subject: Reply with quote

At least several times a month and I feel that due to a diet so "clean", they are more than likely caused by stress, overwork or just not eating properly.

Maggie
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Maggie Scarpone
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Resident Birder - I live to bird and enjoy life!
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JJ
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Joined: 27 May 2005

Posts: 2891
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2017 Nov 18 - 5:40 AM



Location: North Bend, Wa.

PostPosted: Tue Sep 06, 2005 7:46 am    Post subject: Reply with quote

Hi...I'm not sure I should reply because my CC has been controlled with meds. Entocort has stoppped the reactions. JJ
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tex
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Site Admin


Joined: 24 May 2005

Posts: 30706
User's local time:
2017 Nov 18 - 7:40 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Sep 06, 2005 7:53 am    Post subject: Reply with quote

Jill,

That's exactly what we want to find out. There's nothing illlegitimate about using meds. Whatever works is fair game with MC. Your vote is important.

Thanks,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kate_ce1995
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Joined: 25 May 2005

Posts: 1321
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2017 Nov 18 - 8:40 AM



Location: Vermont

PostPosted: Tue Sep 06, 2005 10:22 am    Post subject: Reply with quote

Hmm does this count gut reactions that are caused by cheating on a diet that is related to MC? Otherwise, maybe only once in the last year and that was post repro problems/new hormonal meds.

Katy
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starfire
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Joined: 25 May 2005

Posts: 5163
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2017 Nov 18 - 8:40 AM


Food Intolerances : Gluten, Soy
Location: Pennsylvania

PostPosted: Tue Sep 06, 2005 11:58 am    Post subject: Reply with quote

Well, I put in several times a month because I believe I do have reactions although I'm on Asacol and they aren't terribly noticeable. Mostly it's consistancy of stool and how "acidic" they seem to me.

When I get adjusted to the Paleo diet, I'm hoping it happens less.

pulsing hearts Shirley
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When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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tex
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Joined: 24 May 2005

Posts: 30706
User's local time:
2017 Nov 18 - 7:40 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Sep 06, 2005 12:18 pm    Post subject: Reply with quote

Katy,

Sure! Let's be realistic. I have a hunch that if I didn't slip up every once in a while, or make myself sick by "trying" something one more time, I probably wouldn't have any episodes at all, or at least they would be rare. The reality of the situation is, though, that I do slip up, and I can't seem to keep from "trying" things, to see if my intolerances have changed any since the last "test", so I might as well admit that I do have reactions--'cause I do.


Shirley,

You made the right selection. We're all different, and the intensity of our reactions varies a great deal sometimes, but a reaction is still a reaction, even if it's a mild one. Thank goodness they're mild, sometimes.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kate_ce1995
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Joined: 25 May 2005

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2017 Nov 18 - 8:40 AM



Location: Vermont

PostPosted: Tue Sep 06, 2005 1:09 pm    Post subject: Reply with quote

I voted for once every few months although I suspect its a little more frequent than that, but less frequent than the once or twice a month choice.

Katy
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peanut
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Joined: 09 Jun 2005

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Location: Arkansas

PostPosted: Tue Sep 06, 2005 5:34 pm    Post subject: Very often... Reply with quote

I think you are asking about diarrhea, etc., right ? If so, it is still a constant thing for me, everyday. Several times a day...

Anyhoo, I've been gluten free for a little over a year now, and except for two weeks right after going gluten free, (I was gloriously normal for that two weeks!!), I have had constant diarrhea, back & stomach aches, etc., for about two years now.

Man, that depressed me, just writing that crying !

Love,

Carla
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LC - dx'd 2004 - Celiac -biopsy dx'd 2004 - pernicious anemia... ;)
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JJ
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Joined: 27 May 2005

Posts: 2891
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2017 Nov 18 - 5:40 AM



Location: North Bend, Wa.

PostPosted: Tue Sep 06, 2005 8:27 pm    Post subject: Reply with quote

Oh Carla...I am sad for you!

crying That is the pits!

Hang in there kiddo...JJ
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starfire
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Joined: 25 May 2005

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Food Intolerances : Gluten, Soy
Location: Pennsylvania

PostPosted: Tue Sep 06, 2005 9:42 pm    Post subject: Reply with quote

Carla, it most certainly is the pits!!

Have you considered that you may have other intolerences which haven't been identified?

I'm really sorry you aren't doing better. crying

pulsing hearts Shirley
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When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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Carrie
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Joined: 28 May 2005

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Location: Newburgh, NY

PostPosted: Wed Sep 07, 2005 8:06 am    Post subject: Reply with quote

Hi Wayne. I am in remission and have not had any reactions so I didn't vote in this poll (no category for "no reactions"). I thank God every day for my good fortune. Good luck with your poll. This is a terrible disease; and there are so few of us that we have to do our own research.

Love,
Carrie
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30706
User's local time:
2017 Nov 18 - 7:40 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Sep 07, 2005 8:24 am    Post subject: Reply with quote

Hi Carrie,

Well, to be honest, it never dawned on me that someone might "never" have another reaction from MC. I started to revise my poll, but then it occurred to me that the jury is still out on all of us. I don't believe that any of us have been totally free of reactions during the past three years. Therefore, if you have had any reactions in the past three years, then the last catagory applies to you.

I'll try to remember to run another poll in about three years, and then I'll add an aditional catagory for that possibility. Forgive me for having what may appear to be a pessimistic attitude, but this is a very persistant disease, and most of us are not capable of perfect behaviour. While it's certainly possible that a span of spontaneous remission might exceed three years, I'm unaware that has been documented, so I will be very interested to see how this plays out.

Love,
Wayne
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sally
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2017 Nov 18 - 6:40 AM



Location: Wilsonville, Oregon

PostPosted: Wed Sep 07, 2005 10:26 am    Post subject: Reply with quote

Hmmm....I have been thinking about this and wondering about the role of stress in all of this. I remember that long before any of this MC stuff was going on with me, whenever I was under a lot of stress, I had attacks of diarrhea. But they were sudden and once I made it to the pot, I was fine. Now either I have had MC a lot longer than I thought or I am one of those people whose stress settles in their gut. Some people get stress headaches. I don't.

So, although I answered the poll with once or twice every few months, I also know that during those times I was under stress. (Or had eaten lettuce. Very Happy ) I consider that I am in remission, but I don't know if I would have had these reations anyway. What I am saying is that I don't know what is due to MC and what is my body's normal way of dealing with stress.

Anyone care to comment?

Lots of love,

Sally
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(Lakota for "We are all related")
earth
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Carrie
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Joined: 28 May 2005

Posts: 271
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Location: Newburgh, NY

PostPosted: Wed Sep 07, 2005 10:52 am    Post subject: Reply with quote

Hi Wayne. I've only had LC since July 2004 (at least that's when it erupted) and I was diagnosed one year ago this week...so only time will tell. I hope that I never, ever, get that sick again. For six months I had totally liquid diarrhea and lost almost 20% of my body weight. Since going into remission this January I have gotten my appetite back and regained all the weight I lost. The only GI signs I can think of since remission are a few gassy rumblings from time to time that don't really bother me, and the fact that my stools never are as firm as before LC. I don't take any meds, only a few vitamins. Believe me, Wayne, you and the group will be the first to know if I get any reactions (let's hope not!).

Sally, funny but I don't get headaches, either. And I think I've always been prone to having my stomach "tied in a knot" when under stress. Perhaps I've always had LC or a variant; or, maybe that's just the way things are. I don't know.

Love,
Carrie
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