Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
Approximately How Often Do You Have MC Reactions?
Goto page Previous  1, 2, 3, 4  Next
 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options
 View previous topic :: View next topic  

About how often do you have reactions that are probably caused by MC?
Very often
40%
 40%  [ 33 ]
Several times a month
23%
 23%  [ 19 ]
Once or twice a month
13%
 13%  [ 11 ]
Once every few months
13%
 13%  [ 11 ]
Once or twice a year
4%
 4%  [ 4 ]
Once every few years
4%
 4%  [ 4 ]
Total Votes : 82

Author Message
Lucy
Rockhopper Penguin
Rockhopper Penguin


Joined: 25 May 2005

Posts: 1399
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : gluten, dairy casein, dietary yeast, egg whites, and soy

PostPosted: Tue Dec 20, 2005 1:06 am    Post subject: Reply with quote

Have a new theory, Wayne:

I've never had a problem with lettuce or veggies in general throughout this whole illness, but now, I'm wondering if perhaps the steaks at that restaurant where we ate during the evacuation at their Fort Worth location aren't ok after all, and if it's not just the fact that I eat an inordinate amount of fiber when I eat there -- big dinner salad, and big sweet potato with the steak. Eat almost all of it hen we're NOT going straight home, knowing that it'll go to waste if I don't eat most of it, and I generally get to the point that I can't eat another bite! There's no other time when I'm full to the brim on salad like this. Do you suppose it's the roughage passing through in that large a quantity at one time, that's the problem with my functionally unpracticed healed/ing colon that makes me think I've actually gotten ahold of some contamination. It doesn't feel to good when that bigger-than-I'm-used-to, harder stool passes through, that's for sure, particularly when it makes that last right hand turn toward the rectum. That's what I feel and assume it's pressing against the diverticulum that's somewhere over there.

Same feeling occurs when I eat too many vegetables a couple of meals or days in a row -- can feel the pressure of too large a volume passing through.

When I feel best is when I spread out the amounts of fiber evenly, and in small portions eaten at both lunch and the evening meal. I need to be better at being sure to get soluble fiber to balance out the insoluble fiber -- think that works best for me.

Now, I'm trying to remember if perhaps I didn't stop off at the diner right after that dental cleaning nearby, and load up on veggies? Hmm! This amount usually doesn't make me feel too full the next day down in the gut, unless I've perhaps had a big veggie stir-fry the day before -- make any sense?

Bottom line, the fiber just seems to be very effective when it moves evenly through the colon instead of concentrated into big clumps.

Anyway, for today's experiment, went to the local restaurant here, and was impressed with the young man's smarts when I talked to him about what I could eat.

Mom and I went vegetarian at this meal by just having the big dinner salad (smallest they have), and the big sweet potato. Ate all of both, so now the experiment is to see if I feel the same WITHOUT getting the steak I usually eat with it. Problem with that is that the steak would've added to the volume even though it's a small one.

Also, I usually drink way too much fountain coke cause they just keep filling up this huge glass over and over again. This time, just drank water, and not even a whole big glass of it.

Anyway, the idea was to see if there's anything about the two high fiber veggies -- big dinner salad, and big sweet potato, that MIGHT cause me to put out a little brown liquid next stool time. That's why I made sure to eat every bit of it.

Will let you know what my next stool is like. Just what you need to know, right? Hahaha!
By the way, Wayne, how's your colostomy working?

Yours, Luce
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Dec 20, 2005 10:18 am    Post subject: Reply with quote

Hi Luce,

I'm beginning to get the impression that you feel that the poll refers only to reactions caused by gluten. I say that because you seem to be desperately searching for a way to blame your reactions on something besides gluten, but that's really beside the point, as far as this poll is concerned, because the poll asked for information about "reactions that are probably caused by MC", not necessarily just by gluten. As you know, gluten is only one of many food items that can cause an MC reaction.

I believe that most of us agree that for many of us, sensitivity to fiber, is a characteristic of MC, and therefore, we consider reactions to fiber, to be symptomatic of MC. IOW, if it were not for the presence of MC, we would not be having problems with fiber.

Yes, I believe that your digestive problems in the instances that you cited may very well be related to the ingestion of fiber. Some of the problems may also be due to eating too much in one session, since that can also cause gastric distress.

The descriptions you give of the pain, or sensations of pressure that you experience at certain times, in your colon, are highly suggestive of constipation, especially since they are present a day or two before the BM that eliminates them. Everyone's bowel habits are different, and constipation can be difficult to define, especially for someone who is having regular BMs.

If you are passing very dry, compacted, stools, preceeded by abdominal distress, that would seem to meet the definition of constipation. On the other hand, fiber should reduce the tendency toward constipation, not increase it, so you seem to be the victim of a paradox. Perhaps the discomfort that you are feeling is just the irritation that fiber causes for many of us, whether or not it causes a "complete" reaction.

Of course, constipation is also an alternate form of MC reaction, but surely that's not what is happening in your case, since you don't present any of the other symptoms of a reation on a regular basis.

I'll say this much, just as an irrelevant observation: before my surgery, my BMs were very low volume, generally rather dry in composition. This was not surprising, though, because I ingested virtually no fiber, due to the fact that fiber tended to make me sick. Now, since my surgery, I can handle fiber, (at least I can eat all the apples, bananas, green beans, spinach, broccoli, turnip greens, etc., that I want, without any problems), and my BMs are much greater in volume, (naturally), with a slightly higher moisture content, (of course, a section of my sigmoid colon has been removed, and the distal remnant disconnected, which might slightly reduce the water extraction function of my colon, but I would think that this effect would be minimal).

IOW, maybe the influence of diverticulosis, (for those of us who have it, which is probably most of us over 50), is playing a greater role in our digetive system problems than we realize, especially as far as our ability to tolerate fiber is concerned.

My colostomy is working fine.

Wayne
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Lucy
Rockhopper Penguin
Rockhopper Penguin


Joined: 25 May 2005

Posts: 1399
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : gluten, dairy casein, dietary yeast, egg whites, and soy

PostPosted: Wed Dec 21, 2005 1:09 am    Post subject: Reply with quote

Wayne,

I've heard that the incidence of diverticulosis is around 50 percent in those over 50, which, in a way, seems fairly low, doesn't it? Perhaps I just hang around with the wrong crowd. Ha!

Today, had no ill effects from all that insoluble fiber that I ate yesterday, so maybe the meat the other times was just too much on top of all the other stuff. Stools were perfect..go figure!

Anyway, so long as I don't have diarrhea, and other symptoms, I'll just know, from now on, not to eat everything on my plate, just because it's there, and if I do, I deserve the consequences! Ha!

Know what I could do next time? Could run this experiment the other way around by just eating the meat part of that meal, and not eating the salad and sweet potato til maybe the next day after the steak had had a chance to produce symptoms, if indeed it would by itself. That way, I'd know for sure about that meat, one way or the other. If it's ok as well, then next time, will just eat smaller proportions of everything, and should be fine.

At any rate, now, I'll be on a GLUTTEN-Free diet!! Hahaha!

Yours, Luce
Back to top
newchrist@verizon.net

United States

Joined: 14 Jan 2010

Posts: 1
User's local time:
2017 Sep 24 - 3:46 AM




PostPosted: Sun Jan 17, 2010 2:28 pm    Post subject: new to site Reply with quote

I wanted to contact shirley (starfire) to ask her about asacol. I am on this 800 mg 4 times a day. Still have 4 to 5 blow outs. Don't think this med is working. I am on my 9th day of blow out. Is there a way to see who has used this drug and has it help them? Sorry if I am in the wrong place. I have collageous colitis. Thanks
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Jan 17, 2010 5:29 pm    Post subject: Reply with quote

Hi,

Welcome to the board. Actually, these polls are archived mostly for information purposes. If you'll look at the dates of these posts, they were made over 4 years ago. If you'll post on the discussion boards, here

http://www.perskyfarms.com/phpBB2/viewforum.php?f=2

or here,

http://www.perskyfarms.com/phpBB2/viewforum.php?f=27

for example, a lot more members will see your posts, and respond.

To answer your question, though, the consensus of our experiences, among the members of this board, has shown that the 5-ASA medications, (IOW, those based on mesalamine, which include Asacol, Lialda, Colazal, Rowasa, etc.), are not very effective for treating CC. They do fairly well as a maintenance medication, after remission has been reached, but it takes a very long time for them to bring remission, if they work at all. Many of us are intolerant of Asacol, for example, because it contains lactose, and most of us are not only lactose intolerant, but also casein intolerant, (casein is the primary protein in milk, whereas lactose is the primary sugar in milk). Those who are intolerant to it, will have more diarrhea, rather than less. Also, a small percentage of patients who use it, develop chronic pancreatitis, which is a serious condition. Most GI docs are not aware of that risk, since it is not well publicized.

The most effective, safe medication for treating CC, is Entocort EC, but many GI docs are afraid to prescribe it, because they believe that it carries the same side-effect risk as the other corticosteroids. It does not, because it is encapsulated, so that it only becomes activated when it reaches the lower third of the small intestine, and the colon. Therefore only about 10 to 15 % of it is absorbed into the bloodstream, making it a much, much safer drug to take, than Prednisone, for example, even though it is just as effective as Prednisone, for all practical purposes.

After you make a few more posts, the system will allow you to see the e-mail addresses, and Personal Message, (PM), addresses of other members, so that you will be able to contact them off the board. However, unless it involves a very personal matter, it is always best to ask questions on the board, because that way, everyone can offer a solution, if they have one, or advice, if they have an opinion, and every one can benefit from the responses. We're all in this together, you know - we're all trying to find the best solutions for treating this disease, by sharing our experiences, and comparing results, and this approach works very well. We have a far better success rate for helping to bring remission to this disease, than the GI docs do, and there is more up-to-date, and effective information on treating MC, here in our database, than anywhere else in the world. Several of our members are doctors, (who have the disease), and a number of them are nurses. We all learn together, the best ways to deal with the disease.

Shirley recently lost her husband, and so she is currently dealing with personal issues, and not posting very often at the moment. If you will post your questions in one of the two forums that I mentioned above, I believe that you will find that most of the members here, know more about treating this disease, and learning to live with it, than 99.9 % of the doctors in this country.

Please be aware that this disease is very difficult to control, and remission typically takes a while, though some of us are luckier than others. CC is a true inflammatory bowel disease, and it typically takes a year or more for the intestines to heal, after treatment is started, though remission of symptoms often comes much sooner than that, typically, in 1 to 6 months, though some cases take much longer. CC cannot be cured, but the symptoms can definitely be controlled, either by diet changes, or by medications, (or a combination of the two), so that you can definitely get your life back, if you use the best treatment choice, for your particular lifestyle. We are all different, and there is no one-size-fits-all treatment. We all fine-tune our treatment to best fit our own personal situation.

Best of luck with your treatment, and again, welcome to the board.

Tex (Wayne)
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Sunbmctcher

unknown IP

Joined: 11 Mar 2010

Posts: 1
User's local time:
2017 Sep 24 - 3:46 AM



Location: Harleysville, Pennsylvania

PostPosted: Fri Mar 12, 2010 1:43 pm    Post subject: Comments about question and the forum, too. Reply with quote

Hello,
So pleased to meet you and learn about this. I'm brand new, in fact still awaiting the biopsy results. Most everything else ruled out and the gastroenterologist believes this is the problem, pending the biopsy results. Biopsy taken Wed. Smile

It's a bit overwhelming but finding this forum is so, so helpful!. I initially went to the bathroom through the night, maybe 3-7 times, then 2-3 more after breakfast. That went on for two months and now I have some episodes during the daytime and evening also. Sometimes it's "explosive" and I've wondered if I will become housebound. I've had the overt symptoms for nearly 3 mos. but I've had overwhelming fatigue for two years. I also have joint pain. I am guessing both may be connected. I have Type I Diabetes, so the autoimmune thing is not new for me. I believe this affects my diabetes.

Have much reading of the various forums to catch up on. I'm a rather reticent person and the concept of even discussing bowel movements with others is not a natural thing. It's actually wonderful to see you folks authentically relaying your experiences. Thank you so much!

Best regards,
Peggy
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Mar 12, 2010 2:58 pm    Post subject: Reply with quote

Hi Peggy,

Welcome to our internet family. Your symptoms sound like what most of us have gone through, so the odds are pretty high that your GI doc is correct to suspect that you have MC.

This is a very unique group, and because of the nature of the disease, we sometimes discuss things here that we wouldn't think of mentioning to our own family. You will find that no one really understands this disease, unless they have it, but we can come here, and be sure that everyone understands how we feel.

Please let us know how the biopsy turns out.

Again, welcome aboard, and please feel free to ask anything.

Tex (Wayne)
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
PaigeP



Joined: 29 Jun 2010

Posts: 11
User's local time:
2017 Sep 24 - 4:46 AM


Food Intolerances : cucumbers, peppers, garlic, seeds, and a lot I just don't know yet.
Location: Fernandina Beach, FL

PostPosted: Wed Jul 07, 2010 9:28 am    Post subject: Reply with quote

Entocort keeps my flare ups under control for the most up, but I agree with Maggie that if I generally stick to a "clean" diet and away from the junky stuff, I'm better off.
Quote:
One half of the world cannot understand the pleasures of the other.
Jane Austen, Emma

_________________
Paige Poechmann
Back to top
DJ
Gentoo Penguin
Gentoo Penguin


Joined: 01 Oct 2013

Posts: 472
User's local time:
2017 Sep 24 - 3:46 AM


Food Intolerances : gluten, dairy, eggs, soy, kidney beans (and most other legumes), nuts, especially almonds and peanuts, tapioca, xanthan gum, and chicken
Location: Upstate NY

PostPosted: Sun Oct 06, 2013 6:37 pm    Post subject: Reply with quote

If I don't eat carefully, I would have diarrhea many times daily. With Enticort and complete avoidance of wheat, dairy, soy, and nuts, I do quite well. My stamina has not returned.
Back to top
healthydesire



Joined: 07 Jan 2014

Posts: 14
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : dairy
Location: appleton, wisconsin

PostPosted: Wed Mar 12, 2014 8:13 am    Post subject: Reply with quote

I'm down to having diarrhea once a day unless I eat something I shouldn't. I suppose I'd consider that still "often"
_________________
close your eyes...make a wish~**
Back to top
coryhub
Gentoo Penguin
Gentoo Penguin


Joined: 12 Jul 2011

Posts: 434
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Soft cheese, gluten, roughage: anything with a fibre, seed, skin, raw etc.
Location: Central Texas

PostPosted: Thu Mar 13, 2014 9:14 am    Post subject: Reply with quote

Despite how well I am feeling I voted several times a month but want to say my reactions are no longer severe. I haven't missed work this year. My worst symptom of being "glutened" is the headache. I did have one severe reaction this month and it was my own doing. A friend put a bowl of cheese popcorn out while we were watching Downton Abbey and I couldn't resist. I was cramped up on the toilet that night and don't want to even see cheese popcorn again!
To end on a good note, this year I have added small amounts of foods back to my diet that I never could tolerate before.
Tex, thx for this poll, it's good to see I am not alone on this planet with this disease.
_________________
CoryGut
Age 64
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
Back to top
brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1921
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Thu Mar 13, 2014 3:28 pm    Post subject: Reply with quote

After 24 months I am remission. My reactions if I am inadvertently gluttened is severe hand joint pain.
Back to top
Renaudsl

unknown IP

Joined: 29 May 2014

Posts: 5
User's local time:
2017 Sep 24 - 2:46 AM




PostPosted: Wed Aug 13, 2014 8:29 pm    Post subject: Reply with quote

Has anyone with MC experienced severe pain under right rib age and also in the same area of your back? I have been suffering for 3 days now after eating gluten. This is a new area of pain never felt before with a MC flare.
Back to top
Renaudsl

unknown IP

Joined: 29 May 2014

Posts: 5
User's local time:
2017 Sep 24 - 2:46 AM




PostPosted: Wed Aug 13, 2014 8:41 pm    Post subject: Reply with quote

I mostly only flare when I have eaten gluten. Other times I have small flares but are not sure what has caused them.
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30485
User's local time:
2017 Sep 24 - 2:46 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Aug 13, 2014 9:16 pm    Post subject: Reply with quote

Hi,

Welcome to the discussion board. I had aches and pains in many locations when I was still reacting, but pain just under the rib cage, that can be felt in back also, especially if it is located just to the right of center, can be due to gallbladder problems. Typically, if the pain is due to a gallbladder problem, it will appear (or become much worse) soon after eating (especially if the meal contains a significant amount of fat), and it will last for roughly 46 hours and then diminish.

Another possibility is costochonditis, which is inflammation of the cartilage that connects the ribs to the breastbone.

Both conditions are somewhat common with MC, because MC is caused by inflammation of the intestines, and both of those conditions are also inflammation issues.

Virtually all of us here are sensitive to gluten and dairy products, and we have to avoid them (even trace amounts) in order to control our MC symptoms. Many of us also have other food sensitivities that we have to avoid.

Again, welcome aboard, and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options All times are GMT - 6 Hours
Goto page Previous  1, 2, 3, 4  Next
Page 3 of 4

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright 20052017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery