Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
Approximately How Often Do You Have MC Reactions?
Goto page Previous  1, 2, 3, 4
 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options
 View previous topic :: View next topic  

About how often do you have reactions that are probably caused by MC?
Very often
40%
 40%  [ 33 ]
Several times a month
23%
 23%  [ 19 ]
Once or twice a month
13%
 13%  [ 11 ]
Once every few months
13%
 13%  [ 11 ]
Once or twice a year
4%
 4%  [ 4 ]
Once every few years
4%
 4%  [ 4 ]
Total Votes : 82

Author Message
Renaudsl

unknown IP

Joined: 29 May 2014

Posts: 5
User's local time:
2017 Sep 26 - 3:09 AM




PostPosted: Thu Aug 14, 2014 3:22 pm    Post subject: Reply with quote

Tex,

I read what you posted about pain under the rib cage and in the back. I was diagnosed back in February with MC and as of now only gluten bothers me. I was stupid and ate a donut Monday morning and am still in a great deal of pain. The pain this time is not in my lower stomach like normal but under my right rib cage and into my back. It is also very bad right in the middle of my chest. I had my gallbladder removed 3 years ago so am sure that's not the cause. Have you known of MC causing pain in this area? Thank you
Lori
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30499
User's local time:
2017 Sep 26 - 3:09 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Aug 14, 2014 3:53 pm    Post subject: Reply with quote

Lori,

MC can affect just about any organ in the body, so it's not impossible that it could cause pain in that area. Typically though, it affects the abdomen, from the belly button on down to the lower left and lower right quadrants. Pain above the belly button (due to MC) is much less common, but certainly still possible.

If you're referring to the breastbone area when you mention pain in the middle of the chest, that's highly suggestive of costochondroitis, and your doctor should be easily able to confirm a diagnosis if you want to treat it. Whatever the exact location might be though, if avoiding gluten eliminates the problem, then you know what causes the pain, and how to prevent it from recurring.

The tricky part of trying to guess a cause is associated with the fact that MC only affects the epithelia of the intestines (the inner surface layer of the walls of the intestines). This is in contrast with UC which can also affect the middle layers, and Crohn's, which can affect every layer, all the way through to the serosa (the outermost layer). The only layer of the intestines that contains any significant amount of pain sensors is the serosa. Because of that, any GI specialist can tell you that unlike Crohn's disease, pain is not a symptom of MC. Unfortunately that textbook approach doesn't work out in the real world, because the inflammation that causes MC tends to spread and affect many other organs, which causes all sorts of complications that GI docs don't tend to associate with MC.

So yes, I have heard of maybe a handful of members here who have experienced a similar pain when they ingested gluten, but that's not a common reaction. According to the classic medical description of MC, it is a painless disease. Laughing In the real world, probably more than half of us experience significant pain along with our reactions, and the rest tend to feel only slight pain to no pain at all. Some have localized pain, while others may experience severe pain over most of their body. When my reactions were at their worst, even my hair hurt. Laughing

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Renaudsl

unknown IP

Joined: 29 May 2014

Posts: 5
User's local time:
2017 Sep 26 - 3:09 AM




PostPosted: Thu Aug 14, 2014 9:35 pm    Post subject: Reply with quote

Tex thank you so much. I know when I was diagnosed back in February I had been having chronic stomach pain and extremely lose stool for 6 weeks probably 6 to 8 times a day. After I was diagnosed I completely came off of gluten and within 2 days my system was some what back to normal. I know now my warning signs if I eat gluten starts with horrific heartburn which I have never in my life experienced and I am almost 47 yrs old. After a few hours the lower abdominal pain will hit and in the potty we go. I also had mentioned having my gallbladder removed and pain will hit directly under the scar at the bottom of my right rib cage. Soon after that it moves to the right and left side of my lower abdomen. So that is my normal pain area however this time the pain just hasn't left that rib cage and is severe in my back as well. The last flare I had the pain was so severe the doctor treated me for a bladder infection which I thought for sure I had. After 3 days on antibiotics they called and said to stop taking them because my culture showed no sign of infection. That flare lasted 5 days with really no lose stool just pain. I am afraid of over looking something major and chalking it up to MC because it acts different in me every time. I don't take any prescriptions for MC because I can control it with diet for the most part. Also it's so hard to find a dr who knows anything about it. They all want to put you on the newest meds that who knows what they will cause you in the future. Thanks again for your helpful info. If you can recommend any good reads that will help me understand this better please let me know. Lori
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30499
User's local time:
2017 Sep 26 - 3:09 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Aug 14, 2014 10:18 pm    Post subject: Reply with quote

Lori,

You're very welcome. The only comprehensive book ever written about this disease is the one that I wrote, but I don't normally promote it because that strikes me as rather self-serving. If you want to see what others say about it though, you can read their reviews at the following link:

http://www.amazon.com/Microscopic-Colitis-Disea...ses/dp/0985977205

Yes, most GI specialists still have a long way to go to get up to speed with this disease. They are very good at prescribing medications recommended by their drug reps, but unfortunately many of them do their patients a grave injustice when they claim that diet has nothing to do with the disease.

You're on the right track, because as far as I can tell, treating the disease by diet changes is effective in most cases, and far safer than the drugs prescribed to treat it.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Renaudsl

unknown IP

Joined: 29 May 2014

Posts: 5
User's local time:
2017 Sep 26 - 3:09 AM




PostPosted: Fri Aug 15, 2014 12:17 pm    Post subject: Reply with quote

Tex, thanks again so much. I have been praying hard for this episode to pass so that I don't need to seek medical help. I am feeling a little better today so we will see. If you don't mind I will contact you when I have questions or concerns. You seem to know a lot about the illness itself for that I am thankful. Have a great weekend.
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30499
User's local time:
2017 Sep 26 - 3:09 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Aug 15, 2014 1:56 pm    Post subject: Reply with quote

You're very welcome. I hope you have a very enjoyable weekend, too.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
HappyBird
Gentoo Penguin
Gentoo Penguin


Joined: 17 Sep 2015

Posts: 305
User's local time:
2017 Sep 26 - 9:09 AM


Food Intolerances : GF, DF, SF, LF.

PostPosted: Sat Sep 19, 2015 10:34 am    Post subject: Reply with quote

I put very often, but need to qualify this by saying I am not sure how long I may have had MC for. During my history of D it's been several times per week - since 2010 but I had not heard about MC at that stage.
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Polls Related to Microscopic Colitis and Treatment Options All times are GMT - 6 Hours
Goto page Previous  1, 2, 3, 4
Page 4 of 4

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright 20052017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery