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Medical alert card
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maestraz
Gentoo Penguin
Gentoo Penguin
United States

Joined: 27 Feb 2011

Posts: 459
User's local time:
2017 Sep 20 - 8:00 AM


Food Intolerances : Gluten, dairy, soy, plus histamine issues
Location: CT

PostPosted: Wed Apr 04, 2012 6:37 pm    Post subject: Medical alert card Reply with quote

Hello Folks,
I haven't posted for a while, but I've been looking at the board every day. Wow! we have a number of new members! And, several members I've been missing seeing on here.

I don't know why I haven't posted about this card before, or whether anyone else already has, but maybe it will provide some peace of mind for those who are just starting out with MC, or having management troubles.

If you go to www.myibd.org, you can get a (free) card that is supposed to give you bathroom access (such as to employee bathrooms) if no public bathroom is available. If any other MC'ers have this, and have used it, did it work? Thankfully, I haven't had to pull it out, but I like knowing it's there.

The card reads, MEDICAL ALERT RESTROOM ACCESS REQUIRED, then goes on to say, "The holder of this card has Crohn's disease or ulcerative colitis. Colitis is painful and requires immediate access to a toilet facility. This patient cannot physically 'hold it.'. Please make
your restroom available."
OK, so we have MC instead, who cares? I don't think people will quibble the details. It will help to look very distressed, which, based on my experience, is easy to do.
_________________
Suze
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brandy
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 16 Oct 2011

Posts: 1912
User's local time:
2017 Sep 20 - 7:00 AM


Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Wed Apr 04, 2012 6:49 pm    Post subject: Reply with quote

Hi Suze,

Huge, thanks for the tip, Brandy
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Lesley
King Penguin
King Penguin


Joined: 03 Sep 2011

Posts: 2914
User's local time:
2017 Sep 20 - 5:00 AM


Food Intolerances : Too many to list

PostPosted: Wed Apr 04, 2012 9:49 pm    Post subject: Reply with quote

Good tip!
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MaggieRedwings
King Penguin
King Penguin


Joined: 31 May 2005

Posts: 3865
User's local time:
2017 Sep 20 - 8:00 AM


Food Intolerances : Gluten, Soy, Eggs, Nightshades, Mushrooms, Bananas, Melons, Most Dairy, usually Citrus, Corn for the most part
Location: SE Pennsylvania

PostPosted: Thu Apr 05, 2012 5:44 am    Post subject: Reply with quote

Hi Suze,

Have the card and needed to use it a couple of times. A big assest to carry in your wallet for this disease.

Maggie
_________________
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
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DebE13
Rockhopper Penguin
Rockhopper Penguin


Joined: 27 Nov 2011

Posts: 1568
User's local time:
2017 Sep 20 - 7:00 AM


Food Intolerances : Gluten, casein, soy, eggs
Location: Wisconsin

PostPosted: Thu Apr 05, 2012 5:59 pm    Post subject: Reply with quote

Has anyone ever had problems gaining access to a bathroom? I can't imagine not allowing someone in need the use of facilities. I think if in a situation, I would give the place a choice of letting me use a toilet or the floor. Smile I guess people could be insensitive if they or someone they know have never dealt with the immediate need of a bathroom. My family will actually check with me before using the bathrooms themselves. It sounds pathetic and I laugh at times for granting them permission to use our bathroom but at the same time appreciate the thoughtfulness.

I was a frequent visitor in the bathroom to my 16 yr old son in the shower. He is a sweetheart and has never grumbled but no mom really wants to be making noise in the bathroom with thier child behind a curtain. It's like my body just waited for him to get up every morning - it's such a small window of time, you'd think I'd be able to wait. Embarassed
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30455
User's local time:
2017 Sep 20 - 7:00 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Apr 05, 2012 8:01 pm    Post subject: Reply with quote

DebE,

Have you ever seen this series of threads?

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=8594

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=8612

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=8643

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=8635

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MBombardier
Rockhopper Penguin
Rockhopper Penguin


Joined: 14 Oct 2010

Posts: 1524
User's local time:
2017 Sep 20 - 5:00 AM


Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Thu Apr 05, 2012 10:41 pm    Post subject: Reply with quote

I just read the first posts in those four threads. What an interesting story, and show how one person can change things for the good of many. Great job to both you and Jodi!
_________________
Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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DebE13
Rockhopper Penguin
Rockhopper Penguin


Joined: 27 Nov 2011

Posts: 1568
User's local time:
2017 Sep 20 - 7:00 AM


Food Intolerances : Gluten, casein, soy, eggs
Location: Wisconsin

PostPosted: Fri Apr 06, 2012 4:00 pm    Post subject: Reply with quote

Wow- I can imagine exactly how she felt. I've been stopped dead in my tracks in the middle of the store knowing that I'd be done if I moved. My husband jokingly offered to stand me up in a shopping cart and wheel me to the restroom on several occassions. Sometimes humor is life saving. The look of someone in need of a toilet is universal- I still can't imagine saying no to someone in need. Thanks for pointing that story out to me Tex, it is an eye opener that I can't assume everyone would act as I would. I ordered the card and hope to never have to use it.

I used to exercise every morning in the basement. I finally gave it up after having difficulty getting to the bathroom without having a mess on a daily basis. I've felt humiliated to have to use the litter box on a few occassions. To be in a public place and feel that humiliation when a toilet is only a few steps away is almost unforgivable. All I can do now is laugh at what happened- my cat was on the stairs looking at me in disbelief Shocked. Don't worry, I reassured her that she'd get all new litter after the box was bleached. animated cat
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30455
User's local time:
2017 Sep 20 - 7:00 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Apr 06, 2012 4:29 pm    Post subject: Reply with quote

Laughing Laughing Laughing I can't help but wonder what was going through that cat's head.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kristinef
Little Blue Penguin
Little Blue Penguin


Joined: 31 Mar 2012

Posts: 30
User's local time:
2017 Sep 20 - 7:00 AM


Food Intolerances : Not sure yet
Location: California

PostPosted: Fri Apr 06, 2012 5:23 pm    Post subject: Reply with quote

Jodi's story is very eye opening. It had never occurred to me that someone might refuse me access to a bathroom like that.

Hey Tex - why is Jodi and angel instead of a penguin?
_________________
Kristine
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MBombardier
Rockhopper Penguin
Rockhopper Penguin


Joined: 14 Oct 2010

Posts: 1524
User's local time:
2017 Sep 20 - 5:00 AM


Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Fri Apr 06, 2012 6:22 pm    Post subject: Reply with quote

I ordered the card as well. Thank you for the link, Suze!

I wonder why this bathroom access law, Ally's law, is not on the books in California? That seems odd, as CA is usually one of the first states with new legislation.
_________________
Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30455
User's local time:
2017 Sep 20 - 7:00 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Apr 06, 2012 8:24 pm    Post subject: Reply with quote

kristinef wrote:
Hey Tex - why is Jodi and angel instead of a penguin?


Those are called "rank" icons, and they represent rough approximations of the number of posts written by each member.

Jodi is really into angels, and she requested that change, so I located some code for angel rank icons, and substituted them for her.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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humbird753
Rockhopper Penguin
Rockhopper Penguin


Joined: 28 Nov 2011

Posts: 945
User's local time:
2017 Sep 20 - 7:00 AM


Food Intolerances : Gluten, Casein
Location: Wisconsin

PostPosted: Sat Apr 07, 2012 2:46 pm    Post subject: Reply with quote

Suze - Thank you for this information.

I experienced explosive D for over 2 years. I have gone into gas stations, Walmart stores, and other stores and have been told the bathrooms were not available because they were being cleaned Shocked

And, of course, left and ended up having to go home to clean up and change.

I have more control now that I am GF/DF/SF. Looking back (and even at those times) it angered me that they didn't allow me access to a bathroom when I was in obvious distress.

I have ordered the card also, but hoping that with this diet I will not need to use it. But just in case....

Paula
_________________
Paula

"You'll never know how strong you are until being strong is the only choice you have."

"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
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maestraz
Gentoo Penguin
Gentoo Penguin
United States

Joined: 27 Feb 2011

Posts: 459
User's local time:
2017 Sep 20 - 8:00 AM


Food Intolerances : Gluten, dairy, soy, plus histamine issues
Location: CT

PostPosted: Sun Apr 08, 2012 5:03 pm    Post subject: Reply with quote

WOW, just got home from a trip and read the 2008 posts that Tex gave links to. SO SAD that anyone should have had to go through that. Thankfully, that never happened to me, though I ditched a shopping cart and ran for the ladies' room more than once in the early days of MC. The feeling of panic was almost unbearable.

I have a new, semi-related dilemma, and I'm wondering how others have dealt with this: jury duty. I am already in a panic over having to sit in a jury box, unable to control my access to a bathroom. And, as so many of you know, anxiety is not our friend.

I welcome all suggestions. And, I'm happy to know that others have ordered "the card" as a result of my post.
_________________
Suze
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maestraz
Gentoo Penguin
Gentoo Penguin
United States

Joined: 27 Feb 2011

Posts: 459
User's local time:
2017 Sep 20 - 8:00 AM


Food Intolerances : Gluten, dairy, soy, plus histamine issues
Location: CT

PostPosted: Sun Apr 08, 2012 5:06 pm    Post subject: Reply with quote

Just so you know, I don't have a clue why that posted twice. Or, at first it looked like it did. ?????
_________________
Suze
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