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Diet changed everything!

 
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C.U.B. girl
Adélie Penguin
Adélie Penguin


Joined: 15 Jun 2012

Posts: 71
User's local time:
2017 Nov 21 - 12:45 PM


Food Intolerances : Gluten; dairy; soy; almonds; rice; peanuts; pork; cane sugar; nearly 100 others.....
Location: North Georgia

PostPosted: Sun Jun 17, 2012 9:38 pm    Post subject: Diet changed everything! Reply with quote

I'm new here, and have found this forum to be FAR more help than any doctor or related website! In fact, it was this site that made me suspect I had what was ultimately confirmed as CC. I was diagnosed with celiac four years ago -- after 11 years of misdiagnoses, and being so sick and depleted nutritionally that I was blacking out occasionally. My weight had dropped to 99 lbs, and had I not done my own research and basically self-diagnosed, I probably would have been hospitalized in short order. Anyway -- four years of the GF diet did wonders for me and I felt like I had my life back. Up until March of this year, that is.

It was almost like all of my old celiac symptoms had suddenly returned -- chronic diarrhea, fatigue, feeling weak and depleted -- all while knowing for certain that I hadn't been eating anything with gluten in it. My PCP wanted me to take Flagyl, which would have wiped out everything in my gut, the good with the bad. I held off though, until she would order stool tests for bacteria, parasites, & C. Diff. She finally complied, and all the tests came back negative. Thank God I never took the Flagyl -- it wasn't even necessary! I had also been having episodes of itching on my legs and ankles, along with flaky patches on my scalp and face, and a white tongue in the AM. All of which spelled "fungal overgrowth" to me. So then I convinced her to prescribe an antifungal, and I took a course of Diflucan. I was hoping that the D was related to the fungal overgrowth, but though the itching, etc. went away, the gastro symptoms remained. At that point I was pretty convinced it was an allergy or intolerence to something I was eating...

I had had food allergy tests a couple of years earlier, and knew I was already allergic to dairy, soy, eggs, and peanuts. Experience also showed me I was allergic to almonds. One of my sisters, who is battling debilitating chronic Lyme disease, had had an ALCAT test a couple of years earlier, with excellent results from eliminating the offending foods that showed up on it. So I took the 200 foods panel test, and about 100 of them showed up as an intolerence to one degree or another. Not surprisingly, one of the worst offenders was rice --- the ubiquitous ingredient in nearly all GF foods! I started on the rotation diet right away, although there was such a limited list of foods to choose from each day that it really has put my culinary creativity to the test! Within a month I saw about an 85% improvement in my symptoms, but because it wasn't yet 100%, the GI doc wanted to go ahead with a colonoscopy. I agreed, mostly because I suspected (from reading the posts on this site and others) that I had some form of MC. The suspicions were correct -- CC -- but even since the colonoscopy there has been further improvement. Now I'd say the symptoms have improved by about 95%. Of course, the doc wanted me to go on Entocort right away, but I have declined at this point. When dietary changes are working so well, why on earth upset the apple cart by dumping corticosteroids into my now-healing gut?? I should also add, I've also been taking probiotics, Saccharomyces Boulardii, Digest Spectrum as needed, along with plenty of Vit. D and multi-vitamins.

If I had followed the advice of my PCP and the GI doc, Lord knows what kind of shape I'd be in now! Sometimes it pays to buck the system. I have several more weeks to go on the rotation diet before I'll be able to start re-introducing foods, but I'm feeling so much better now that I may leave some of them out of my diet permanently. If I start having symptoms again in the future, I may get re-tested to see if I've developed new sensitivities, but I'll cross that bridge when -or if - I get to it! :)[/b]
_________________
Cindy
2008 Celiac disease
2012 Collagenous Colitis
Family history includes ALS, ulcerative colitis, Lyme disease, mild epilepsy
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30720
User's local time:
2017 Nov 21 - 11:45 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jun 18, 2012 8:20 am    Post subject: Reply with quote

Hi,

Welcome to the board. Good for you for being so proactive about your own health, and congratulations on your successes.

Since you're so motivated, and clearly on the right track, I have no doubt that you'll be able to track down any future diet issues and remain in control of your health.

Thank you for posting your experiences. Many others will surely benefit from your insight.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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