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How Many Of Us Have Esophageal Spasms?
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Do you have esophageal spasms, or have you had them in the past?
No, I've never had that problem.
61%
 61%  [ 30 ]
I had the problem before my MC symptoms began, but I haven't had it since my MC Diagnosis.
0%
 0%  [ 0 ]
I had the problem before my MC symptoms began, and I still have it, but only when my MC is active.
6%
 6%  [ 3 ]
I had the problem before my MC symptoms began, and I still have it, regardless of whether or not my MC is active.
20%
 20%  [ 10 ]
My esophageal spasms began about the same time that my MC symptoms began, but it's not a problem as long as my MC symptoms are under control.
4%
 4%  [ 2 ]
My esophageal spasms began about the same time that my MC symptoms began, and I still have the problem, regardless of whether or not my MC is active.
2%
 2%  [ 1 ]
My esophageal spasms began after my MC diagnosis, but it's no longer a problem when my MC is in remission.
2%
 2%  [ 1 ]
My esophageal spasms began after my MC diagnosis, and it's still a problem regardless of whether or not my MC is active.
4%
 4%  [ 2 ]
Total Votes : 49

Author Message
tex
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Joined: 24 May 2005

Posts: 30499
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Jul 09, 2012 7:48 pm    Post subject: How Many Of Us Have Esophageal Spasms? Reply with quote

Hi All,

Deb inquired about a poll on this topic, so let's see if we can get an idea of how many of us have this problem.

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Deb
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Food Intolerances : Gluten, still determining others
Location: Minnesota

PostPosted: Tue Jul 10, 2012 5:34 am    Post subject: Reply with quote

I wasn't quite sure how to answer this. It seems my symptoms of ES are better now than they were but I still get it occasionally, perhaps ?coinciding with a small flare. I just recently had a day or two bout with it after not noticing it for quite a while.
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mbeezie
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Joined: 29 May 2009

Posts: 1500
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Food Intolerances : gluten, dairy, soy, tapioca
Location: Texas

PostPosted: Tue Jul 10, 2012 2:48 pm    Post subject: Reply with quote

It seemed to be worse for me when I was in a bad mast cell flare.

Mary Beth
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"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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Sheila
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Food Intolerances : gluten, eggs, cow's milk, soy, guar gum, whey, goat's milk, cocoa, crab, carrot, amaranth, kamut,
Location: Palm Beach Gardens, Fl

PostPosted: Tue Jul 10, 2012 6:48 pm    Post subject: Reply with quote

My esophageal spasms began after the D began, even before being diagnosed. It continued to get worse after I began a GF/SF/EF/DF diet. My chiropractor could always get it under control but it was a problem when it hit on a weekend. I have had a few problems recently but nothing very bothersome.

BTW, four out of five in my family have esophageal spasm. My mother was the only one with MC and probably celiac. My father passed away when he was pretty young so I don't know if he also had it. All four of us have autoimmune issues including: celiac, MC, rosacea, polymyalgia rheumatica and some others that may or may not be autoimmune.

Sheila W
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To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
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angy
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Joined: 28 Jun 2008

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Food Intolerances : gluten for sure!! dx cc 2008
Location: scotland,Edinburgh

PostPosted: Wed Jul 18, 2012 6:14 pm    Post subject: Reply with quote

Don't think docs have a clue what that is in uk lol!!!I need to think about that one myself...
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GRB
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Joined: 10 Sep 2010

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PostPosted: Fri Aug 24, 2012 11:47 am    Post subject: Reply with quote

I had to look this up. The answer is yes. There were times I had to be careful what I ate because I had trouble swallowing and could choke. I also felt pain in my chest. I had no idea it was esophageal spasms and it started long before I ever had the big D.
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ant
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Food Intolerances : Gluten, Diary, Soy, Corn, Eggs, Peanuts and other legumes, nightshades (e.g. tomatoes and potatoes). DX Osteopenia. Suspect Celiac - Genes Type: DQ2/DQ8

PostPosted: Fri Aug 24, 2012 12:11 pm    Post subject: Reply with quote

I said no. I have had acid reflux for many years before MC dx, but not spasms. Since the diet I have had hardly any reflux.

Best, Ant
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"Softly, softly catchee monkey".....
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cjbndtsn
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Joined: 16 Aug 2012

Posts: 172
User's local time:
2017 Sep 26 - 3:13 AM


Food Intolerances : Gluten
Location: Peoria, Illinois

PostPosted: Thu Sep 20, 2012 7:56 pm    Post subject: Reply with quote

I had alot of this in the previous months before MC came into my life. They told me I was just having heartburn. It was worse if I tried to eat a hamburger but since I don't eat those anymore because of the GF diet I don't see that much of it after GF. THey even did tests that showed my gall bladder wasn't working properly and needed to come out because of the trouble I was having. Well that never happened because they wanted to get the MC under control and again now that I am GF...........I don't have it anymore.
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Cathy
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tex
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Joined: 24 May 2005

Posts: 30499
User's local time:
2017 Sep 26 - 3:13 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Sep 20, 2012 10:25 pm    Post subject: Reply with quote

Cathy wrote:
THey even did tests that showed my gall bladder wasn't working properly and needed to come out because of the trouble I was having. Well that never happened because they wanted to get the MC under control and again now that I am GF...........I don't have it anymore.


Now that's mighty interesting. For a long time, I've had a hunch that many/most of the cholecystectomies performed on people who had MC were unnecessary, but I never had any evidence to support that theory. IOW, like the pancreatitis issues that some people with MC have, I've always had a sneaky suspicion that once the MC symptoms were resolved, the gallbladder problems would disappear also, but you are the first to offer any supporting evidence. I wanted to add that theory to my book, but I decided against it, because I didn't have any data to support it. sigh

Thanks for posting that.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Sheila
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2017 Sep 26 - 4:13 AM


Food Intolerances : gluten, eggs, cow's milk, soy, guar gum, whey, goat's milk, cocoa, crab, carrot, amaranth, kamut,
Location: Palm Beach Gardens, Fl

PostPosted: Fri Sep 21, 2012 5:51 am    Post subject: Reply with quote

Hmmmmmmmmm. This had got me thinking about the removal of my gallbladder 10 years ago even though I didn't have any gall stones. I did have some very severe, painful "gallbladder" attacks and that is why it was removed. This happened during an extremely stressful time when my first husband was within a month of dying of cancer. Stress + gluten intolerance = digestive issues.

My mother, who also had CC for many years and did not give up gluten, had a gall bladder attack, was operated on and died 2 days later of "massive infection". She died after developing ileus and that is something no one wants to experience.

I wonder how many people are walking around unknowingly with a variety of gastointestinal symptoms that relate to either gluten or other food intolerances. I'm sure most aren't properly diagnosed and, like my mother, are treated for a whole lot of things they don't actually have. She had a GI doctor, a dietician, a dermatololgist, a rheumatologist all working to help her feel better and nothing helped. She had CC (and probably celiac) and got some relief from entocort, however, it stopped working because she didn't give up gluten.

If I had the money, I would send Tex's book to every GI doctor in the country.

Sheila W
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To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
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tex
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Joined: 24 May 2005

Posts: 30499
User's local time:
2017 Sep 26 - 3:13 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Sep 21, 2012 8:11 am    Post subject: Reply with quote

Sheila wrote:
If I had the money, I would send Tex's book to every GI doctor in the country.


If I could afford it, I would donate all the books for that project, but I'm afraid that after investing all our time and money, precious few of them would actually read it. sigh

That's a very poignant story. As soon as I read your post, the gears in my head shifted into overdrive, and I suddenly have a strong urge to write another book. I'll see if the urge survives more than a few days.

Thanks,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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wonderwoman
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Joined: 17 Feb 2010

Posts: 574
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2017 Sep 26 - 2:13 AM


Food Intolerances : Per Enterolab March 2010 and May 2012, wheat, dairy, eggs, soy, rice, corn, oats, chicken, beef, walnuts, cashews, nightshades, MRT Jan. 2012 capsaicin, ginger, DNA 0202, 0603,
Location: Sun City, AZ

PostPosted: Fri Sep 21, 2012 8:16 am    Post subject: Reply with quote

Tex, my husband always says if he takes a nap the strong urge goes away. If you are serious about another book, go for it. I'm curious, what would it be about.
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Charlotte

The food you eat can be either the safest and most powerful form of medicine, or the slowest form of poison. Ann Wigmore
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tex
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Site Admin


Joined: 24 May 2005

Posts: 30499
User's local time:
2017 Sep 26 - 3:13 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Sep 21, 2012 8:49 am    Post subject: Reply with quote

wonderwoman wrote:
I'm curious, what would it be about.
.

I'm not sure about the outline yet, but basically it would explore certain aspects of gluten sensitivity that alter people's lives in unexpected ways.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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cjbndtsn
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Joined: 16 Aug 2012

Posts: 172
User's local time:
2017 Sep 26 - 3:13 AM


Food Intolerances : Gluten
Location: Peoria, Illinois

PostPosted: Fri Sep 21, 2012 10:23 am    Post subject: Reply with quote

OMG I love it............see what happens when you talk about something that has happened in your life and you really just blew it off to the side thinking......."oh this is just how life is" The best part of my experience with it is when I went to the surgeon to discuss having it out.................he said...........I'm not taking out your gallbladder. Thats not the reason you are having D. Taking out your gallbladder could make that problem worse. I was really at first upset with him but in the long run I think..............he is a great guy. He could've taken the gallbladder and money and ran but he said nope. He wanted me to follow through with my initial GI visit and then see him in 4 weeks. During that time is when I got the MC news. So then he said............I'm not touching anything until you are feeling better and then we will see what's up and if I still feel I need it out. Go Tex............you can do it and we will all be behind you
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Cathy
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wonderwoman
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Joined: 17 Feb 2010

Posts: 574
User's local time:
2017 Sep 26 - 2:13 AM


Food Intolerances : Per Enterolab March 2010 and May 2012, wheat, dairy, eggs, soy, rice, corn, oats, chicken, beef, walnuts, cashews, nightshades, MRT Jan. 2012 capsaicin, ginger, DNA 0202, 0603,
Location: Sun City, AZ

PostPosted: Fri Sep 21, 2012 12:49 pm    Post subject: Reply with quote

In regard to the esophageal spasms I would have said no, never, when the pole was first presented but I didn't answer. Today I did a google search as I didn't know exactly what was meant by the term. This is what Mayo Clinic says

Quote:
Signs and symptoms of esophageal spasms include:

Squeezing pain in your chest, often intense, which you might mistake for heart pain (angina)
Difficulty swallowing (dysphagia)
The feeling that an object is stuck in your throat (globus)
The return of food and liquids back up your esophagus (regurgitation)


Remember back awhile I said I had a sore throat for several months, took two z-packs, eventually saw an ENT doctor who said I had acid reflux much to my surprize. After that DX, I think I may be making my throat sore (irritated) by constantly swallowing and clearing my throat because it feels like something is in my throat. I have also discovered that this happens when I am under STRESS. When I am more relaxed I don't have this urge to swallow. It is amazing what stress can do to us. Have I heard this before someplace?

As a kid and young adult I developed an eye tic that would come and go due to stress. Then later on I found myself grinding my teeth. Now I believe I am having throat irritation all because of stress. Just before taking the 2nd Z-pack I was at my daughters taking care of 4 children for 5 days. I love seeing the children but it can be a stressful time for this Grandma.

I voted yes to the last question. I got it just recently and it is not related to how I am doing with my MC as I am still off budesonide ( about 4 weeks) and taking one loratadine tablet (antihistamine) in the morning with normal BM's every morning.
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Charlotte

The food you eat can be either the safest and most powerful form of medicine, or the slowest form of poison. Ann Wigmore
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