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What Causes The Burning?

 
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SweetSydney
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PostPosted: Tue Jan 15, 2013 8:43 pm    Post subject: What Causes The Burning? Reply with quote



Hi.

I was diagnosed with collagenous colitis-started Budesonide 5 weeks ago.

But I was wondering, has anyone else experienced extreme rectal burning?

It's been months of burning, I'm miserable, and it is not subsiding, on the Budesonide.

TIA

Sydney
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tex
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Joined: 24 May 2005

Posts: 30597
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2017 Oct 21 - 10:16 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Jan 15, 2013 9:24 pm    Post subject: Reply with quote

Hi Sydney,

Over the years, many members here have cited battery acid diarrhea as a symptom (which sort of meets your description). We have determined that battery acid D is associated with a sensitivity to casein (in dairy products).

But even if casein is not the cause, "baboon butt" is a common problem when MC is active, and so this topic comes up somewhat regularly on this board. The thread at the following link should provide the information needed to resolve the problem:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10052

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SweetSydney
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Joined: 11 Jan 2013

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PostPosted: Tue Jan 15, 2013 9:48 pm    Post subject: Reply with quote

tex wrote:
Hi Sydney,

Over the years, many members here have cited battery acid diarrhea as a symptom (which sort of meets your description). We have determined that battery acid D is associated with a sensitivity to casein (in dairy products).

But even if casein is not the cause, "baboon butt" is a common problem when MC is active, and so this topic comes up somewhat regularly on this board. The thread at the following link should provide the information needed to resolve the problem:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=10052

Tex


Hi, Tex.

Thanks so much. It seems like you are always right here, with the answers I need. I really appreciate your help.

Thanks for the link.

Sydney
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tex
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Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 10:16 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Jan 15, 2013 10:06 pm    Post subject: Reply with quote

You're more than welcome,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SweetSydney
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Joined: 11 Jan 2013

Posts: 104
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2017 Oct 21 - 10:16 PM



Location: United States

PostPosted: Tue Jan 15, 2013 10:13 pm    Post subject: Reply with quote

tex wrote:
You're more than welcome,
Tex


Tex,

Has anyone told you that you should become a doctor?

You know more than most of mine.

Now, it is after 10 here in cold NW IN, time for bed.

Sweet Dreams.

Sydney
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tex
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Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 10:16 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Jan 15, 2013 10:52 pm    Post subject: Reply with quote

Hi Sydney,

Actually, I did give it some thought, and then went to engineering school, instead. Frankly, I doubt that I could survive if I were a doctor, because with all the control that the insurance companies, pharmaceutical companies, and lawyers have over the medical profession, I would be a regular customer in the ER, because of constantly beating my head against the wall, due to all the frustration. Laughing And I would probably have to spend most of my time in court, fighting lawsuits filed because I didn't go by the book. Laughing

As cold as it is here in Texas, I hate to even think about how cold is must be up there. I hate cold weather.

I hope you have pleasant dreams, too.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SweetSydney
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PostPosted: Wed Jan 16, 2013 3:43 am    Post subject: Reply with quote

tex wrote:
Hi Sydney,

Actually, I did give it some thought, and then went to engineering school, instead. Frankly, I doubt that I could survive if I were a doctor, because with all the control that the insurance companies, pharmaceutical companies, and lawyers have over the medical profession, I would be a regular customer in the ER, because of constantly beating my head against the wall, due to all the frustration. Laughing And I would probably have to spend most of my time in court, fighting lawsuits filed because I didn't go by the book. Laughing

As cold as it is here in Texas, I hate to even think about how cold is must be up there. I hate cold weather.

I hope you have pleasant dreams, too.

Tex


Hi, Tex.

Smart choice, because the insurance companies have most definitely tied doctors hands. My son works for BCBS. He started as a "temp" 16 years ago, when he was in college. Doctors actually had to ask a college kid, if they could do a procedure. Now mind you, my son had no medical education, whatsoever! He was majoring in Business!

And he told me, when they deny a claim, file it again, because most of the time, it's been denied by some college kid, working part-time.

In IL, pediatricians have quit practicing because the cost of malpractice insurance is too high.

Before my husband retired, we tried an HMO. They're a joke! One of my doctors was so frustrated with them, he broke his contract and told them to sue him!

I was getting sicker, and Ford Motor Co. had a policy that you couldn't change insurance until sign-up time. My husband told them, "You keep losing doctors, and my wife is being bounced from one doctor to another, and she is getting sicker. Change us back to a traditional policy or I'm going to see an Attorney". Within 20 minutes, we had the approval to change.

It is far too cold up here in NW IN.

If it weren't for my MS Specialist, we'd move south.

Sydney
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tex
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Site Admin


Joined: 24 May 2005

Posts: 30597
User's local time:
2017 Oct 21 - 10:16 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Jan 16, 2013 9:53 am    Post subject: Reply with quote

Sydney wrote:
Doctors actually had to ask a college kid, if they could do a procedure.


That's a sad commentary on the integrity of the insurance companies.

Sydney wrote:
And he told me, when they deny a claim, file it again, because most of the time, it's been denied by some college kid, working part-time.


Shocked Another sad reflection on the insurance companies

The health care industry is badly broken in this country, and I don't see any possibility that it will be fixed any time soon. Sad

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SweetSydney
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PostPosted: Wed Jan 16, 2013 10:24 am    Post subject: Reply with quote

Yes, Tex, it's downright pathetic. Doctors go to medical school for so many years, and then, they have to ask some un-educated 23 year old, for permission to do a procedure.

And what is worse, is most of these kids don't even bother to research the claims.

Yes, the health care industry is severely broken in this country, and I agree with you, I don't believe, in my lifetime, it will be fixed.

Sydney
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ant
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Food Intolerances : Gluten, Diary, Soy, Corn, Eggs, Peanuts and other legumes, nightshades (e.g. tomatoes and potatoes). DX Osteopenia. Suspect Celiac - Genes Type: DQ2/DQ8

PostPosted: Wed Jan 16, 2013 11:57 am    Post subject: Reply with quote

Quote:
Yes, the health care industry is severely broken in this country, and I agree with you, I don't believe, in my lifetime, it will be fixed.


I think is broken everywhere, not just in USA. Do not know the solution, just know that somehow what motivates the "industry" has gone wrong. Maybe because it should never have become an "industry". What happened to the concept of a "vocation". Sorry getting political here, so I will shut up.

Best ant.
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SweetSydney
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Location: United States

PostPosted: Wed Jan 16, 2013 4:21 pm    Post subject: Reply with quote

ant wrote:
Quote:
Yes, the health care industry is severely broken in this country, and I agree with you, I don't believe, in my lifetime, it will be fixed.


I think is broken everywhere, not just in USA. Do not know the solution, just know that somehow what motivates the "industry" has gone wrong. Maybe because it should never have become an "industry". What happened to the concept of a "vocation". Sorry getting political here, so I will shut up.

Best ant.


Hi, Ant.

Yes, I agree, it is broken everywhere. I have a very dear friend in Canada, whom I love like a daughter. Their medical system is so flawed, that even though a Neurologist diagnosed her with MS, her primary care physician refuses to allow it in her charts. Therefore, she cannot get treatment.

I have been blessed, to have two of my doctors, truly care about me. Our insurance does not cover office calls. My D.O. needed to see me monthly, when I was 1st diagnosed with hypothyroidism, 12 years ago. My case was complicated. We had to work for two years to get my thyroid levels balanced. I explained to him that I could not afford to pay his monthly fee, and he reduced it. (By a great amount!)

My former Neurologist, diagnosed me with MS in '08, then got "cold feet", retracted his diagnosis, and told me that I would die, before anyone figured out what was wrong me me.
I was down to 72#s at that point.

I looked him in the eye, and told him, "Only God knows when I am going to die, and last time I checked, you weren't Him".

A year ago this past summer, it appeared that I was headed for a wheelchair. A top Spine Specialist called an MS Specialist, and spoke to her. She didn't see patients that did not have a definite diagnosis.

I was diagnosed, on November 19th, 2011.

She hugged me and promised me, "I will never give up on you!"

She reviewed my symptoms and determined that I'd had my 1st MS exacerbation in 1998. Then, it went into remission, until a lifelong friend passed away in May of '05.

I have a rare form of MS, so I was very fortunate to be diagnosed.

So, I think there are still some doctors out there that are devoted.

Sadly, not many.

Sydney
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ant
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Food Intolerances : Gluten, Diary, Soy, Corn, Eggs, Peanuts and other legumes, nightshades (e.g. tomatoes and potatoes). DX Osteopenia. Suspect Celiac - Genes Type: DQ2/DQ8

PostPosted: Thu Jan 17, 2013 7:32 am    Post subject: Reply with quote

Quote:
"Only God knows when I am going to die, and last time I checked, you weren't Him".
\

Quote:
She hugged me and promised me, "I will never give up on you!"


Dear Sydney

You just summed up, more powerfully than I have ever seen, all that is not-so-great and is great in human nature.

Best wishes, Ant

P.S. There are a quite a few people here (e.g. Tex) that I have come to realize also "never give up" on us
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SweetSydney
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PostPosted: Thu Jan 17, 2013 7:53 am    Post subject: Reply with quote

ant wrote:
Quote:
"Only God knows when I am going to die, and last time I checked, you weren't Him".
\

Quote:
She hugged me and promised me, "I will never give up on you!"


Dear Sydney

You just summed up, more powerfully than I have ever seen, all that is not-so-great and is great in human nature.

Best wishes, Ant

P.S. There are a quite a few people here (e.g. Tex) that I have come to realize also "never give up" on us


Dear Ant,

Thank you so much for your kind words. Sometimes, due to my MS, I struggle to find the right words.

I feel so truly blessed to have found this Internet Family.

You're so right about Tex. He has responded immediately to every one of my posts.

I wish he could educate doctors about microscopic colitis.

I have a great G.I. Doc, and I was fortunate to get diagnosed, but, he didn't have any advice about diet. And I have learned diet is crucial in the healing process.

I feel blessed to have "met" people, such as yourself, here.

Sydney
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