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need lots of advise!

 
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ldubois7
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Joined: 19 Feb 2013

Posts: 1249
User's local time:
2017 Aug 23 - 9:02 PM


Food Intolerances : Gluten, dairy, eggs, soy
Location: Pennsylvania

PostPosted: Thu Apr 04, 2013 11:19 am    Post subject: need lots of advise! Reply with quote

Hello!

I need some advise now that I've received my lab results....what am I going to eat?

My antigliadin IgA is 62 units. Casein-18 units, ovalbumin-21 units, soy-22 units

Foods with 3+ reactivity-rice, beef, tuna, chicken, oat
Foods with 2+- corn, pork, almond
Foods with 1+- white potato, cashew, walnut

Seriously, since going gluten free a few months ago, I have tried to stay away from yeast so I make almond flour bread. I make almond flour cookies & treat because they are so good. I eat Chex with almond milk, too.
I eat chicken daily, and white fish...is the fish still Ok?
How will I get protein? What about turkey?

I need some food suggestions, please for a healthy diet.
Linda
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JFR
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Joined: 30 Mar 2012

Posts: 1263
User's local time:
2017 Aug 23 - 10:02 PM


Food Intolerances : gluten, dairy, soy, eggs

PostPosted: Thu Apr 04, 2013 11:45 am    Post subject: Reply with quote

Linda,

Do not despair. Your results are similar to mine and I have found ways to continue eating

My results were:
Fecal Anti-gliadin IgA 74 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 33 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 36 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 35 Units (Normal Range is less than 10 Units)


Mean Value 11 Antigenic Foods 38 Units (Normal Range is less than 10 Units)

Food toward which you displayed most immunologic reactivity: Oat, Rice, Corn, Chicken
Food toward which you displayed intermediate reactivity: Tuna, Beef, White potato, Cashew
Food toward which you displayed least immunologic reactivity: Walnut, Pork, Almond

Granted I can eat pork and almond which you should avoid but the principles remain the same. Find a few "safe" food and stick with them for a few months. For protein the white fish may very well still be ok and you could add lamb perhaps and turkey. I eat no grains, no breads, no crackers, no cookies. I'm used to it now and its ok. I make macadamia nut butter and like it a lot. You could try that. You could also try walnut butter. I eat white fish now and always add coconut oil to it. You can do this. The hardest part is accepting that you have to give up most of your old notions of what constitutes a "healthy" meal and only eat those foods that don't make you sick. I also make bone broth every week and eat some every day. If you find yourself still hungry eat more of those foods that are safe.

Keep asking question and I and others who are in the same boat will be happy to help. It really is worth it.

Jean
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ldubois7
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Joined: 19 Feb 2013

Posts: 1249
User's local time:
2017 Aug 23 - 9:02 PM


Food Intolerances : Gluten, dairy, eggs, soy
Location: Pennsylvania

PostPosted: Fri Apr 05, 2013 2:55 pm    Post subject: Reply with quote

Thanks, Jean. I may not be able to resist a homemade muffin, or so in the morning! :) You are a stronger person than me!

If I understood Phyllis at Enterlab, I should try the rotation diet. Only eating any one food twice a week, because my body is hyperalert. So, I can choose from the 1+ and 2+ (even 3+) re-activity categories as long as it is only twice a week spread out by several days.

Has anyone else had this advise? How did it work for you?

Jean, do you eat fruit?

Linda
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JFR
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Joined: 30 Mar 2012

Posts: 1263
User's local time:
2017 Aug 23 - 10:02 PM


Food Intolerances : gluten, dairy, soy, eggs

PostPosted: Sat Apr 06, 2013 6:19 am    Post subject: Reply with quote

Hi Linda,

It's not strength really. I believe that the foods I don't eat are poison for my system so except for the odd craving every now and again, I really have no more desire to eat them than I do to ingest arsenic. I also eat hardly any fruit. Right now I eat 1/4-1/2 cup of blueberries every morning and a handful or 2 of goji berries during the day. Fruit is both high in fiber and high in carbs and I try to keep both fiber and carbs low. Also fruit seems to be problematic for most people here, so I figure it is just best to avoid it.

Jean
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ldubois7
Rockhopper Penguin
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Joined: 19 Feb 2013

Posts: 1249
User's local time:
2017 Aug 23 - 9:02 PM


Food Intolerances : Gluten, dairy, eggs, soy
Location: Pennsylvania

PostPosted: Sat Apr 06, 2013 7:22 am    Post subject: Reply with quote

Jean,

Have you tried other flours such as quinoa, or millet? Or, do you find it easier to just avoid all? When were you diagnosed?
I did get hazelnut and brazil nuts to try. I'm trying a smoothie this morning with coconut milk, hazelnut butter, 1/2 frozen banana, 1Tb chia, and a 1 TB hemp protein powder. I hope it works for me!

Linda
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JFR
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Joined: 30 Mar 2012

Posts: 1263
User's local time:
2017 Aug 23 - 10:02 PM


Food Intolerances : gluten, dairy, soy, eggs

PostPosted: Sat Apr 06, 2013 7:41 am    Post subject: Reply with quote

Linda,

I just find it easier to avoid grains entirely and I think I do better without them. I pretty much follow a paleo diet.

I was never diagnosed with MC. I have spent my adult lifetime (40 years) having gastrointestinal problems. Mostly just dealt with it alone. Saw a doctor a few times and never got any more help than being told I had ibs and should eat more fiber (A GI told me this even after I said fiber makes things worse) By the time I found this site I had pretty much given up on doctors being able to help at all. At that time (a year ago) I was having almost constant watery D. It would start about 15-20 minutes after I ate and continue day and night. About 6 immodium would stop it but only until I ate again when it would start anew. I was never tested for mc and when I joined this forum that was the first question I asked, "Did it make sense to have another colonoscopy to get a diagnosis?". With Tex's input I decided that it wouldn't. I immediately instituted a gf, df, sf, ef diet (actually I ate only ground meat and bone broth for a while) and then had the Enterolab testing done with the results that are posted (similar to yours). I think because I was so sick when I joined here, and the results of the diet were so immediate and the consequences of eating something that I reacted to so immediate, it has been easy for me to stick with a few safe foods and avoid most experimenting. Chia seeds and hemp do not agree with me but that doesn't mean you can't eat them.

Good luck.

Jean
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ldubois7
Rockhopper Penguin
Rockhopper Penguin


Joined: 19 Feb 2013

Posts: 1249
User's local time:
2017 Aug 23 - 9:02 PM


Food Intolerances : Gluten, dairy, eggs, soy
Location: Pennsylvania

PostPosted: Sat Apr 06, 2013 1:24 pm    Post subject: Reply with quote

Jean,

Thanks for sharing your story with me. I was like you, I had digestive issues for a long time & everything I ate went straight through me after the D started. It seems that after eating a chicken wrap at a coffee shop, last August, both my mom and I became ill. I was tested for everything under the sun and everything came back normal. I had D constantly , and was down to 94 lbs. when I had the colonoscopy in October. I had a complication from the colonscopy, and won't have one again. Since then I've been trying to get the food thing right and it takes a long time to do it! Now that I finally have my lab results, I think I can make better choices.
Like Tex says....we look normal so people and doctors who don't understand this whole situation, don't seem to understand what we deal with.

Are you doing better now?

Linda
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JFR
Rockhopper Penguin
Rockhopper Penguin


Joined: 30 Mar 2012

Posts: 1263
User's local time:
2017 Aug 23 - 10:02 PM


Food Intolerances : gluten, dairy, soy, eggs

PostPosted: Sat Apr 06, 2013 2:19 pm    Post subject: Reply with quote

Linda,

I am doing much better. I don't do a whole lot of experimenting with food. I still have some problems but if I am careful I can avoid urgent d which was certainly the most debilitating and restrictive part of all this for me. I was told several years ago that I have pelvic floor dysfunction. I suspect that my years of eating damaging foods has caused neurological damage that effects how my intestinal tract functions and causes some pelvic pain issues. It's hard to describe my symptoms but they seem to me to be neurological in origin. I am taking some supplemental b vitamins that mimic Tex's prescription supplement MetaNX in hopes that things will improve. Still, looking back a year when I joined this forum, things are exponentially better.

You seem determined to figure this out and that is the essential requirement for getting better.

Jean
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