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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7256
User's local time:
2017 Dec 11 - 5:35 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat May 25, 2013 7:00 am    Post subject: Attn newbies or anyone struggling.... Reply with quote

Hello there to all the recent newbies!!! - This info may be helpful to others who are struggling.

Some mc basics and essentials.....

- most people have D (diarrhea) and some have C (constipation) dominate MC, other symptoms like pain / bloating /gas are all signs of inflammation. Inflammation damages the gut, long term inflammation leads to leaky gut (search for leaky gut on the archives or on google) it also means that the ability to absorb nutrients is compromised ( either from food or supplements)
There is no magic quick fix for inflammation caused by MC. we need the right nutrients/minerals, low inflammation gut healing eating plan to heal. You have to eliminate/minimise any and all triggers to have a chance at healing.

- MC makes our bodies super sensitive and reactive (and sometimes to the weirdest things)

- there is no right way or wrong way to manage /live with mc. There is your way.
What works for one may not work for another.
ie - a medication that works great for one person, can cause total chaos for another.
Listen to your body, keep a journal, with observation the clues will reveal themselves.

- there is no quick fix or guaranteed solution. for medication support it can be a bit of trial and error as to which will work best for you.

-if you want to heal and optimise wellness, it is highly recommended to follow a lifestyle and eating plan that minimises inflammation
As we age, and the longer one has chronic symptoms, the bodies ability to heal gets harder.
It takes time for the body to heal..... Be patient

-If you are have symptoms, you are having contact with a trigger. You won't get better until you eliminate/minimise that trigger....

- mast cell /histamine is very common. When you have some spare brain cells, do the reading about this topic.

- yes gluten is a very common irritant approx 90%. Dairy, soy is an irritant for ?70%. Eggs, nitrates, sulphides are an irritant for ?50%.
If you are having symptoms, bang for you buck, remove these ingredients and within weeks you are likely to confirm if it is an issue or not.
Your doctor may have done a caeliac blood test, you tested negative and they told you to eat gluten. ALmost everyone here that has major MC reactions to Gluten, tested negative on the caeliac blood test. In MC world it is not a reliable indicator of gluten sensitivity.

- not all triggers relate to food/ingredients. It can be stress (physical, mental, emotional), it can be environmental; season changes, pollens, chemicals, mould. Things like hormone changes, thyroid etc can also be a trigger. One of the reasons we recommend the eating plan of avoiding triggers is so that we can cope better with the external type triggers and minimise inflammation reactions

- finding a good doctor /gi is rare. It is mostly an outcome of the health systems within our countries, not necessarily that doctors are bad. The published info on things like mc is outdated and incorrect.
Research, ask questions, and make your own decisions. Listen to your body, don't reject your doctor, we still need them, just have realistic expectations of what they and the health system can do to help you.

- living with mc can be crap! If what you are reading on this site is making you scared, hesitant about all the changes, that is understandable. As you read the posts of peoples MC journey you will see the sacrifices, changes suggested by these wonderful people are worth it.
We also have to do some mental/emotional reading/work on transition, change, acceptance.

- It may take months if not a year or so to sort out your mc management plan.
There will be progress, set backs (which are learnings)
It may take every ounce of courage, patience, tenacity that you have...
All of which is definitely worth it!!!!

- highly recommend to check your vit d levels, If money is tight, this is the must have supplement. You need good levels of vit d in the cells of your body to absorb nutrients. inflammation depletes Vit D3. If you don't have good vit d3 levels, you are not absorbing nutrients from foods or supplements. Search the archives for vit d3, the articles and reading on this topic is worthy of your time.
NB, going outside in the sun for an extra 20mins per day won't solve this issue....

-Linked to my saying, there is no right way or wrong way.... What each individual does or doesn't do is governed by many factors..... Money, family, work, beliefs, etc all have influence. There is no shame if you do or don't do something that other MC'ers are doing.
I have never done the enterlab testing. Yes it has helped a lot of people, for some it didn't reveal anything new. I figured out my major triggers within 6mths.

- in line with the point above about stress being a trigger, for some there is some limitations on physical, emotional mental energies. Push the limits on one and/or all of these and you may have symptoms or major flare. Learn what your limits are, plan your day, plan your week to align with what you can handle physically, mentally and emotionally.

- MC is for life. you can 'get rid of it' or 'cure it' with the right management plan you can have long periods of remission.
part of the process is acceptance of this, and that you dont always get to 'control' MC.

You can get your life back!! Albeit it may not be the exact same as what it was before the MC diagnosis,
When you have time, read some of the posts in the success stories, this will give an indicator of how easy it was for some, and where it may have been challenging for others. And the time it took.

What you will see from reading the posts and discussions, the people that gave it 100%, listened to their bodies, and followed the advice of these generous supportive people; climbed mountains!!!!!

All the supportive, knowledgeable people who will help you through the MC maze, are doing it because they want you to be well, symptom free. They sincerely want you to get your life back.

This is not a typical forum, it is a family!!! Distance and time difference doesn't seem to matter. Some of my closest friends are potty people members that I met due to MC. I consider those friendships the beautiful gift that MC brought to my life.

Take some deep breaths!!! Feel safe and relaxed that you have found a place that can help you. The success of living with MC, symptom free is up to you and how you approach this..... Only you can take all the info from this site and make it work!!! It's free!!!! No conditions or payment required!!!!

Most of all, healing hugs for your mc journey.
opera
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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Nettierud
Adélie Penguin
Adélie Penguin


Joined: 25 Mar 2013

Posts: 59
User's local time:
2017 Dec 11 - 1:35 AM


Food Intolerances : Gluten

PostPosted: Sat May 25, 2013 7:27 am    Post subject: Reply with quote

Thank you so much for taking the time to post this....this forum is full of caring helpful people and this post is a testimony to that. Thanks Gabes!
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dfpowell
Gentoo Penguin
Gentoo Penguin


Joined: 03 Apr 2013

Posts: 486
User's local time:
2017 Dec 11 - 1:35 AM


Food Intolerances : Gluten Free
Location: Lakeville, Minnesota

PostPosted: Sat May 25, 2013 8:16 am    Post subject: Reply with quote

Gabes,

Good post, I think a place for newbies to start would be the elimination diet. I believe they can find relief much faster by beginning their diet detective work with just a few basic foods and slowly adding back.

I found Jean's post a good place to start
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=732
[/url]
_________________
Donna

Diagnosed with CC August 2011
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carolm
Rockhopper Penguin
Rockhopper Penguin


Joined: 02 Sep 2011

Posts: 1015
User's local time:
2017 Dec 11 - 1:35 AM


Food Intolerances : Gluten and soy.
Location: Kansas City

PostPosted: Sat May 25, 2013 5:50 pm    Post subject: Reply with quote

Great post, Gabes. thumbs up

I am no longer a newbie and I enjoyed reading your post.

Carol
_________________
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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Jack

United States

Joined: 21 May 2013

Posts: 12
User's local time:
2017 Dec 11 - 1:35 AM




PostPosted: Sun May 26, 2013 9:48 am    Post subject: Reply with quote

Thanks, Gabes. Your post is inspiring. I am a newbie am so glad I found this forum.
_________________
Diagnosed with MC in June of 2011. Prescribed 0.375 grams of Apriso. Experienced remission within 3 weeks while still eating whatever I wanted. Flare up in May of 2013. Digesting all the information on this board and developing a food strategy.
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Jazi
Adélie Penguin
Adélie Penguin


Joined: 26 Mar 2013

Posts: 171
User's local time:
2017 Dec 11 - 2:35 AM


Food Intolerances : I don't know yet

PostPosted: Sun May 26, 2013 10:48 am    Post subject: Reply with quote

Thank you Gabes... very uplifting, it gives me hope.
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Joanne

"A Journey Of A Thousand Miles Must Begin With A Single Step"
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humbird753
Rockhopper Penguin
Rockhopper Penguin


Joined: 28 Nov 2011

Posts: 948
User's local time:
2017 Dec 11 - 1:35 AM


Food Intolerances : Gluten, Casein
Location: Wisconsin

PostPosted: Sun May 26, 2013 3:23 pm    Post subject: Reply with quote

Thank you, Gabes, for this post. It is very encouraging whether we are new, struggling or just continuing our own journey.

Paula
_________________
Paula

"You'll never know how strong you are until being strong is the only choice you have."

"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
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barbaranoela
Emperor Penguin
Emperor Penguin


Joined: 25 May 2005

Posts: 5402
User's local time:
2017 Dec 11 - 1:35 AM



Location: New York

PostPosted: Sun May 26, 2013 7:02 pm    Post subject: post by gabes Reply with quote

great posting--I hAVE missed being here-----but am home now and shall pop in and catch up on issues--
I did a few posts but don't know if they got thru-----
great 2 see all names Smile

barbara
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the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
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Martha
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Oct 2010

Posts: 1078
User's local time:
2017 Dec 11 - 1:35 AM


Food Intolerances : gluten, dairy, soy
Location: Dallas, Texas

PostPosted: Mon May 27, 2013 12:39 pm    Post subject: Reply with quote

Dear Gabes,

Your posts are always spot-on, just saying what we all need to hear.

I hope you will soon be feeling better from your non-MC-related health issues.

Love,
Martha
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Martha
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Kari
Rockhopper Penguin
Rockhopper Penguin


Joined: 05 Sep 2010

Posts: 1218
User's local time:
2017 Dec 11 - 1:35 AM


Food Intolerances : gluten, dairy, soy
Location: Colorado

PostPosted: Mon May 27, 2013 1:10 pm    Post subject: Reply with quote

iagree with you Martha.

Dear Gabes - hope you do as well with your latest issues as you've done with managing MC!!!

Love,
Kari
_________________
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
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Lesley
King Penguin
King Penguin


Joined: 03 Sep 2011

Posts: 2914
User's local time:
2017 Dec 10 - 11:35 PM


Food Intolerances : Too many to list

PostPosted: Mon May 27, 2013 9:53 pm    Post subject: Reply with quote

Gabes, as usual you have hit the nail on the head. By no means a newbie, but need to act as if I am.

I think I might have to go back to the beginning. Start all over again and find out what's doing it now. Something is not allowing me to heal. I also need a new vit D test. I am taking a lot of it, but have no idea if it is working.

Thanks for posting this. It's a good reminder for all of us.
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nancyl
Rockhopper Penguin
Rockhopper Penguin


Joined: 29 Dec 2010

Posts: 762
User's local time:
2017 Dec 11 - 2:35 AM


Food Intolerances : dairy, not sure about anything else yet
Location: Massachusetts

PostPosted: Tue May 28, 2013 8:59 am    Post subject: Reply with quote

Gabes,
What a wonderful informative post. I read it top to bottom and you sure did explain away a a lot of questions that "newbies" have.

Thank you so much for sharing with our "PP Family".

Hugs,
Nancy
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7256
User's local time:
2017 Dec 11 - 5:35 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Tue May 28, 2013 2:10 pm    Post subject: Reply with quote

Thank you Martha, Kari, Lesley, Nancy.
I can feel the hugs and support on the other side of the globe.... XO

Right now I suppose I feel like I did when I started the mc journey, and maybe that is what prompted me to write that post. The Fms / kidney issues together are slightly harder monkeys to train and manage than the mc monkeys.
To the extent I am struggling to work full time, i am having to rethink, reassess so many aspects of my life.

Lesley, don't look at as starting again, see it as a place you need to go, to let your body heal. Your trip was massive, and took a lot of energy to do.
I am on my mc safe staples of gooey rice and chicken mince etc. my body struggles to digest anything with too many ingredients.
It's not a set back or starting again, it is just what my body needs right now.
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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kayare
Adélie Penguin
Adélie Penguin


Joined: 23 Oct 2011

Posts: 148
User's local time:
2017 Dec 11 - 1:35 AM


Food Intolerances : Gluten, eggs, soy, beef, corn, pork, tuna, peanuts, lentils, peas, tomatoes, still trying to determine others.
Location: Florida

PostPosted: Tue May 28, 2013 8:37 pm    Post subject: Reply with quote

Gabes,

What an terrific post! You summarized beautifully what it takes to get your life back. The journey can be tough, but the support is unmatched, and the reward is great. I wish you well with your latest non-MC issues. Reassessing is a continous and healthy process for all of us. Best wishes.
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DebE13
Rockhopper Penguin
Rockhopper Penguin


Joined: 27 Nov 2011

Posts: 1614
User's local time:
2017 Dec 11 - 1:35 AM


Food Intolerances : Gluten, casein, soy, eggs
Location: Wisconsin

PostPosted: Wed May 29, 2013 6:56 pm    Post subject: Reply with quote

Gabes, great post! I tend to point out the negative aspects of my progress or lack of it. It's a nice reminder to take positive steps in making life-long changes.
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