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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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kberry7171

unknown IP

Joined: 04 Oct 2017
Posts: 11
User's local time:
2018 Jan 21 - 8:12 PM




PostPosted: Tue Oct 24, 2017 10:19 am    Post subject: Reply with quote

Tex, I'm interested in getting tested at Enterolab. Which test do you recommend me ordering? I've been diagnosed with LC.. Symptoms are
constipation
occasional hives
occasional swollen glands on base of head
occasional blisters in mouth
facial acne
stomach distention when reactive

Thank you I appreciate your help.
Kelly
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31007
User's local time:
2018 Jan 21 - 8:12 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Oct 24, 2017 11:44 am    Post subject: Reply with quote

Hi Kelly,

Most members order the A1 + C1 Panels. The A1 Panel tests the four most common food sensitivities, and the C1 Panel tests eleven more foods that often cause problems for MC patients. Ordered together, the price is discounted. Here's a link to their description:

https://www.enterolab.com/StaticPages/TestInfo.aspx#PanelA1C1

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kberry7171

unknown IP

Joined: 04 Oct 2017
Posts: 11
User's local time:
2018 Jan 21 - 8:12 PM




PostPosted: Tue Oct 24, 2017 2:10 pm    Post subject: Reply with quote

Tex - as always thank you very much - I will definitely look into it.
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kberry7171

unknown IP

Joined: 04 Oct 2017
Posts: 11
User's local time:
2018 Jan 21 - 8:12 PM




PostPosted: Wed Oct 25, 2017 3:08 pm    Post subject: Reaction to Turkey Reply with quote

I bought a turkey breast to roast and it had no injections, no hormones, free range, etc. I didn't tolerate chicken seasoned with himalayan pink salt and pepper so I decided to try the turkey seasoned with the same hymalyan pink salt and pepper. I let the turkey set on the counter for about 1.5 hr to cool down and then I ate some for my lunch. My immediate response was a tingling in my face and arms and I immediately blew up with the usual distended stomach. If I can't have chicken or turkey, and I don't like "game" meat, what can I have for protein? I do have grain fed angus beef -- I'm just concerned about not getting my protein. Can anyone help? Thank you so much
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Erica P-G
Rockhopper Penguin
Rockhopper Penguin


Joined: 08 Mar 2015

Posts: 1294
User's local time:
2018 Jan 21 - 6:12 PM


Food Intolerances : Gluten, Dairy, Eggs, Soy, Tuna, Beef, Oat, Almonds, Walnuts
Location: WA State

PostPosted: Wed Oct 25, 2017 5:07 pm    Post subject: Reply with quote

Hi Kelly,

Letting protein sit out for that length of time might have contributed to more histamine than your body can handle right now....many of us have learned we have to cook and package up our food items and freeze them to stop the histamine production that happens in foods. How about pork chops? I use Cornish hens to make bone broth and cook them off and remove the meat and put it in the fridge and then boil the bones for a small batch of broth and then I add some carrot and celery to it with sea salt in a pot on the stove and cook until the veggies are soft and then I batch them up individually and freeze immediately, I do not let them cool on the counter.

You mention hives....I met my threshold with histamine in July and I get occasional wheal pressure hives they call them pressure urticaria and ever since then it has been a struggle to keep histamine in the gut at bay....I was prescribed to take 2-3 times the dose of antihistamine to get it under control. It does help....I don't want to keep doing it for a long period of time but Spring and Fall are my worse times of the year for histamine. I'm just now able to gauge a day and not take so much antihistamine.

I also got the swollen glands and water blisters in the mouth too, but that was a sign for me to get more elemental Magnesium in or on me.

This year has been a russian roulette of things for me to figure out and focus on.

You can do this! Hang in there :-)
_________________
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31007
User's local time:
2018 Jan 21 - 8:12 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Oct 25, 2017 5:14 pm    Post subject: Reply with quote

I agree with Erica, that sounds like a histamine reaction (an IgE reaction), rather than a regular MC IgA reaction. That means that you are allergic to something you ate. An IgA reaction usually takes from 4 to 6 hours or longer.

It also could be the pepper. Pepper is one of the things that MC patients shouldn't use, and I think it's a source of oxalates. Maybe you're sensitive to oxalates. Reactions to turkey are more than extremely rare. That said, I would be the first to admit that anything is possible.

Safe proteins usually include lamb, venison, duck, goose, quail, pheasant, emu, ostrich, alligator, rabbit, antelope, shellfish (unless you are otherwise allergic to them) such as oysters, mussels, clams, shrimp, prawn, etc.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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kberry7171

unknown IP

Joined: 04 Oct 2017
Posts: 11
User's local time:
2018 Jan 21 - 8:12 PM




PostPosted: Thu Oct 26, 2017 8:14 am    Post subject: Reply with quote

Erica and Tex thank you so much - I may be asking more questions as I go thru this elimination process so please bare with me. Kelly
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Leeshaun

United States

Joined: 18 Oct 2017
Posts: 4
User's local time:
2018 Jan 21 - 8:12 PM




PostPosted: Fri Oct 27, 2017 7:31 am    Post subject: Reply with quote

Hello!

I am new to this MC family here. Not computer savvy, so I'm going to try my best!
I'm wondering what exactly causes fatty food to trigger the fatty-kind -of- puffy-floating, diarrhea?
Was thinking lack of specific pancreatic enzymes, but not sure if that's correct now.
I had a lovely price of steel trout-very similar salmon (another fish I seem to have the same issue with). Ended up with this frustrating event.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31007
User's local time:
2018 Jan 21 - 8:12 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Oct 27, 2017 11:55 am    Post subject: Reply with quote

Hi,

Welcome to the forum. The gastroenterologists blame it on steatorrhea (fat malabsorption), but you are probably correct that it's due to insufficient pancreatic enzymes (inadequate lipase, which causes incomplete digestion of fats) because most MC patients also have some degree of pancreatic inflammation in addition to the usual intestinal inflammation, and this compromises the functioning of our pancreas (whenever MC is active). It's par for the course until we get the inflammation under control.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Leeshaun

United States

Joined: 18 Oct 2017
Posts: 4
User's local time:
2018 Jan 21 - 8:12 PM




PostPosted: Fri Oct 27, 2017 1:46 pm    Post subject: Reply with quote

Praying I'll be able to get inflammation down with diet and lifestyle change.
I'm also under the care of a ND. Taking a very good probiotic called VSL#3, Colostrum, IPS, powdered bone broth in green smoothies, L-glutamine.
I've managed to stave off pain, and only have toilet runs once a day. Usually non urgent but most frequently it's unformed stool or watery diarrhea. The later being in situations where I eat too much insoluble fiber, too much fat, and still trying to figure out if the FODMAP foods are issues. It's scary sometimes.
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31007
User's local time:
2018 Jan 21 - 8:12 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Oct 27, 2017 5:09 pm    Post subject: Reply with quote

Normally, the fewer commercially-processed products (including naturopathic products) we use, the faster we will recover. If by green smoothies you mean ground-up uncooked vegetables, that's probably too much raw fiber. Home-made bone broth is almost always safer (and more nutritious) than commercial bone broth products. NDs are usually sincere, and want to help, but most just don't understand how to treat MC patients. When treating MC, less is more, and NDs don't seem to understand that they tend to smother the patient with unneeded treatment products that, while one or two might help, some just make things worse, and some can prevent the patient from ever being able to reach remission. They all tend to lighten the patients' pocketbooks without providing any substantial benefits. At least that's the impression I get after reading over 12 years worth of posts by members here about their treatment programs.

The bottom line is, if you're using an ND (or an MD) you have to carefully choose which treatment recommendations to follow and which ones to avoid, in order to derive any benefits from their treatment programs.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Leeshaun

United States

Joined: 18 Oct 2017
Posts: 4
User's local time:
2018 Jan 21 - 8:12 PM




PostPosted: Fri Oct 27, 2017 6:19 pm    Post subject: Reply with quote

Thank you for your insite!
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DD

United States

Joined: 26 Oct 2017
Posts: 6
User's local time:
2018 Jan 21 - 9:12 PM


Food Intolerances : gluten, dairy, soy, egg, oats

PostPosted: Sat Oct 28, 2017 5:25 am    Post subject: I'm new too. Thank you for this support. Missing anything? Reply with quote

Hello Everyone, I just want to thank you all for being honest with your symptoms and your care strategy. I was diagnosed this past June 2017. I went almost 2 years without a diagnosis...my gastro thought it was IBS and told me to eat soluble fiber. I ate oats every morning, black beans, etc. UGH. Went back, said this isn't right. He said without any tests that I had Celiacs. I'm like what?

Got a colonoscopy and upper scope, which revealed no signs of Celiac but Collagenous Colitis.. microscopic colitis. After my colonoscopy my gastro put me on 6 mg Budesonide a day without giving me options or doing a follow up visit. I panicked and rushed to Costco to get it. Started taking it and my tongue swelled, thought it would go away, and after a week and lots of research on the effects and after effects of it, I tapered off it. Got candida on top of that. Since then I have gotten the test from EnteroLab and it showed that gluten was a major factor. Also a small reaction to dairy, eggs, soy, oats, almond, corn, and rice. UGH!! Since then I have eliminated gluten and oats; and have been aware of my intake of all the other things trying to eliminate over time...eggs are the hardest for me. This is not easy.

I then tried Paleo diet and that didn't do much change, then read about Eat Right for Your Blood Type...in which I'm Type A+. Paleo is NOT for type A+! I have once again completely changed my diet and I'm feeling better with more energy, but the form wasn't there... I called my gastro and asked if I could the Pepto Bismol treatment, that I found out on my own... I just completed that treatment and it helped! But I only took 6 pills a day for 8 weeks. I'm weaning myself off of Pepto but honestly I'm scared. Especially so because last night I ate something that might have had some gluten in it! Horrible cramps, head ache, exhausted. But no D yet. I sure hope I don't fall back much from this incidence.

I have gotten a lot out of this forum. Again thank you. My gastro doesn't think diet changes will help me. I have since changed gastros. Hallelujah!

I'm also taking L-glutamine, vit d3, probiotic, Garden of Life multivitamin, fish oil, turmeric, ginger after dinner, peppermint tea, decaf green tea... I do think I am going to try magnesium chloride spray for I've had symptoms of deficiency. Anyway, I have hope through this site. Thanks again all. If I am missing something that has totally worked for a lot of you, I would love to know!

Best- "DD"
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31007
User's local time:
2018 Jan 21 - 8:12 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Oct 28, 2017 8:37 am    Post subject: Reply with quote

Hi DD,

Welcome to our Internet family. Probably the first point to keep in mind is that this is not a forgiving disease it plays hardball. The only way to achieve and maintain remission is to avoid ALL of your food and drug sensitivities ALL of the time. 99.9 % compliance won't get the job done, unfortunately. Apparently you're allergic to Budesonide, so that's out.

At this point, not knowing what you are eating, I can't critique your diet, except to mention that some people can't tolerate turmeric or certain probiotics. Probiotic products have aborted more recovery efforts than they have enhanced. For most MC patients they do not help. For some people they make symptoms much worse. Rarely do they help, but there are always exceptions. Out of many hundreds of members here over the years who have tried them during their recovery period, probably no more that a dozen or so people have been helped. Those individuals are now strong advocates of probiotics, of course. But for the many members for whom probiotics caused adverse symptoms, totally avoiding them was the only way to achieve remission. Personally, I have never used them. We are all different, so you have to decide for yourself how you will proceed in your recovery program.

Did the Pepto treatment work?

Again, welcome aboard and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gigi Shelley

unknown IP

Joined: 28 Oct 2017
Posts: 2
User's local time:
2018 Jan 21 - 7:12 PM




PostPosted: Sun Oct 29, 2017 9:19 am    Post subject: Reply with quote

I am new to this discussion and I am so glad to be a part of it. I just went through a very serious bout which included two trips to the ER. I do have one immediate question. Is there any information about taking tumeric for inflamation?
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