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An update on my LDN therapy: A Miracle? An unequivocal YES!
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wmonique2
Rockhopper Penguin
Rockhopper Penguin


Joined: 03 Aug 2012

Posts: 1009
User's local time:
2017 Aug 18 - 8:44 PM


Food Intolerances : GF, SF, DF,Walnuts, cherries, caffeine and another 30+ foods
Location: Georgia, U.S

PostPosted: Sun Jun 22, 2014 3:43 pm    Post subject: An update on my LDN therapy: A Miracle? An unequivocal YES! Reply with quote

Hello dear friends,

I've been away for a couple of months trying my new therapy with LDN before I'd report back to all those who want to hear about it and those who are considering it.

In the three years since my LC diagnosis, I have not felt any better, any healthier and any more optimistic than I do now.

I WANT TO SAY UNEQUIVOCALLY THAT I WISHED I HAD HEARD OF IT THREE YEARS AGO BEFORE I TRIED ALL THE OTHER DRUGS AND ALL THE OTHER METHODOLOGIES.

LDN has become my stand-alone therapy. I do not need any other drugs to control my debilitating nausea, my diarrhea, the cramps, the depression (from it all) and the feeling of despair and hopelessness I had with LC.

I am healthier, happier and have a sense of well-being I didn't have for more than three years. I AM EATING BETTER. I have more choices in my diet although I am GF, SF and histamine and tyramine conscious.

I recognize that diet is the answer but if I have to take a drug, LDN is the answer. No side effects. Contrary. It lifts my mood and gives me more energy than I ever need. I don't recognize myself. I have more energy than I ever had. I exercise daily -- I swim, I dance daily.

On a personal level this has allowed me to conduct a normal life. I was afraid to commit to anything -- I had my first book signing for Barnes & Noble this last week (something I would have been afraid to commit to) and I am as busy as ever.

So, if you are on the fence make the jump. Read about it on www.lowdosenaltrexone.org. It might be the answer you are looking for.

Love to all. Sorry I haven't been around much (I was busy with the LDN group and other things).

Monique

Love to all of you

To read more about it : www.lowdosenaltrexone.org
There are several Facebook pages: LDN Trust Fund is one

Where to buy it: It needs to be compounded into micro doses since it comes in 50mg pills and the recommended doses for us is maximum 4.5mg. Best pharmacist is Skip's Pharmacy in Boca Raton FL. He is an expert on LDN.

Best if you can find a doctor that will prescribe it for you. My GI went along with me once I presented all the evidence to him. A Functional Medicine doc will do it too.

If you can't find a doc, you can order it online at www.alldaychemist.com. It comes in 50mg pills and you have to dilute it with 50ml water then you can draw what you need out of it.

Buyldn.com sells it online already compounded. Just choose the dose you want. Start with a very low dose and increase as you need it. 0.5mg is best.

There are several FB pages where you can ask questions and get support from others.
https://www.facebook.com/groups/380829732055771/

And also: IBN and LDN https://www.facebook.com/groups/IBDLDN/

There are plenty of other resources online.

Good luck in your journey.
_________________
_________________
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
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Pat
Rockhopper Penguin
Rockhopper Penguin
Canada

Joined: 17 Nov 2006

Posts: 1068
User's local time:
2017 Aug 18 - 7:44 PM


Food Intolerances : Gluten, Dairy, Soy, Egg, Beef, Chicken, All fruit, All vegetables except some squash, Corn, Rice, Maple, Basil, Coconut, Cane Sugar, Carob, Vanilla, Mustard, Polysorbate 80, Capsaicin, MSG, Benzoic Acid,
Location: Texas

PostPosted: Sun Jun 22, 2014 4:29 pm    Post subject: Reply with quote

Monique,

This is wonderful news! So happy for you!

Pat
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Sheila
Rockhopper Penguin
Rockhopper Penguin


Joined: 18 May 2011

Posts: 1127
User's local time:
2017 Aug 18 - 8:44 PM


Food Intolerances : gluten, eggs, cow's milk, soy, guar gum, whey, goat's milk, cocoa, crab, carrot, amaranth, kamut,
Location: Palm Beach Gardens, Fl

PostPosted: Sun Jun 22, 2014 5:05 pm    Post subject: Reply with quote

I'm so happy for you, Monique. You were proactive and took charge of your health. I'm looking forward to your second book.


bricks bouncing with joy



Sheila W
_________________
To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
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Sheila
Rockhopper Penguin
Rockhopper Penguin


Joined: 18 May 2011

Posts: 1127
User's local time:
2017 Aug 18 - 8:44 PM


Food Intolerances : gluten, eggs, cow's milk, soy, guar gum, whey, goat's milk, cocoa, crab, carrot, amaranth, kamut,
Location: Palm Beach Gardens, Fl

PostPosted: Sun Jun 22, 2014 5:07 pm    Post subject: Reply with quote

Oops! I didn't mean to choose the stupid bricks! I thought I hit the "party" emoticon.

Sheila W
_________________
To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
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Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 6999
User's local time:
2017 Aug 19 - 11:44 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sun Jun 22, 2014 6:27 pm    Post subject: Reply with quote

Congratulations! fantastic news
wierdnana

I hope the wellness, happiness and 'making the most of life' keeps flowing!
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30278
User's local time:
2017 Aug 18 - 7:44 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Jun 22, 2014 7:07 pm    Post subject: Reply with quote

thumbs up Awesome!

Love,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Marcia K
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 03 Apr 2014

Posts: 832
User's local time:
2017 Aug 18 - 7:44 PM


Food Intolerances : gluten, dairy, tuna, chicken, oat, cashew, salmon
Location: PA

PostPosted: Mon Jun 23, 2014 10:46 am    Post subject: Reply with quote

That's wonderful news!
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Lesley
King Penguin
King Penguin


Joined: 03 Sep 2011

Posts: 2914
User's local time:
2017 Aug 18 - 5:44 PM


Food Intolerances : Too many to list

PostPosted: Mon Jun 23, 2014 11:49 am    Post subject: Reply with quote

I want to add - while I have no experienced the miracle Monique has, I can say that LDN has made a difference for me, in the lifting of my mood and giving me more energy to do more than I have been able for years.
Instead of going out and only being able to do one, or maybe 2 errands, I am managing to do quite a lot before coming home. I am still tired, but have WAY less bouts of extreme exhaustion now. Remember, I am nearly 70 and have lived with auto immune disorders and their effects for many years. Exhaustion was always part of my life, and so the very fact that there is less of it is fantastic.
Also, I am constantly in a lot of pain, for which I take NO painkillers. That is also very tiring. Having a bit more energy is a gift!

As far as MC goes - I have not had bad C for a while now, and have not had to take Dr. S., so have not had the D that follows. My stool is still indicative of severe inflammation - floaty, mucousy, with ribbons. ans sometimes pencil thin. No sign of N. However, there is relief from the constant battle with C.
I have not been able to turn my doctors to my way of thinking, but they do know that I am taking LDN, and that it is helping.

For those of you newbies out there and for the experienced, there is hope for feeling better (even somewhat), even for a hard core veteran like me.
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CathyMe.
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 27 Feb 2012

Posts: 582
User's local time:
2017 Aug 18 - 7:44 PM




PostPosted: Mon Jun 23, 2014 1:02 pm    Post subject: Reply with quote

So glad things are continuing to go so well for you Monique!
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tlras
Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 18 Aug 2012

Posts: 589
User's local time:
2017 Aug 18 - 7:44 PM


Food Intolerances : Gluten so far
Location: Houston, TX

PostPosted: Mon Jun 23, 2014 7:27 pm    Post subject: Reply with quote

Monique my good friend! I'm so glad I got on here today to read such awesome news!! I'm so happy for you. I had heard about that drug from a FB group I was on...a miracle drug! And you are off the Amitriptyline? Such great news...so happy for you. I especially like the fact that you are back at dancing! Woohoo! Have fun at all your book signings!

Take care....love ya girl.

Terri
_________________
Diagnosed with Lymphocytic Colitis in July, 2012 then with Celiac in November, 2012.
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UkuleleLady
Gentoo Penguin
Gentoo Penguin


Joined: 23 Jun 2013

Posts: 378
User's local time:
2017 Aug 18 - 7:44 PM


Food Intolerances : Gluten, Dairy, Soy, Peanut, Eggs, Chicken, Tuna, Rice, Oat, Almond, Ginger, Garlic, Pepper, Potato...more
Location: Texas

PostPosted: Tue Jun 24, 2014 7:49 am    Post subject: Reply with quote

Congrats, Monique. I'm so incredibly happy for you. I am very intrigued by LDN.

Lesley, it's amazing to hear the C has abated. I know that's been a constant battle for you. I hope things continue to improve.

Nancy
_________________
If you want others to be happy, practice compassion. If you want to be happy, practice compassion. ~The Dalai Lama
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mzh
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 12 Nov 2010

Posts: 615
User's local time:
2017 Aug 18 - 8:44 PM


Food Intolerances : gluten sensitivity
Location: Upstate South Carolina

PostPosted: Tue Jun 24, 2014 8:43 am    Post subject: Reply with quote

LDN is a wonder drug for me too. It gives me the energy and pain relief I've been searching for without resorting to pred. I've been off it b/c I ran out of it and I feel the same old lack or energy to do anything. When I'm on it, I'm a happy, functioning human being. What a pleasure! Very Happy

I have LDN again but can't take it. I had foot surgery and am on pain meds. One can't take both LDN and strong pain meds. Can't wait to resume it!
_________________
Also have sleep apnea
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coryhub
Gentoo Penguin
Gentoo Penguin


Joined: 12 Jul 2011

Posts: 433
User's local time:
2017 Aug 18 - 7:44 PM


Food Intolerances : Soft cheese, gluten, roughage: anything with a fibre, seed, skin, raw etc.
Location: Central Texas

PostPosted: Tue Jun 24, 2014 3:29 pm    Post subject: Reply with quote

Thank you, it's good to have options and LDN is one I had no previous knowledge of. Seems like it's working for a few of us and that is good news for the lot of us.
_________________
CoryGut
Age 64
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
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MaggieRedwings
King Penguin
King Penguin


Joined: 31 May 2005

Posts: 3865
User's local time:
2017 Aug 18 - 8:44 PM


Food Intolerances : Gluten, Soy, Eggs, Nightshades, Mushrooms, Bananas, Melons, Most Dairy, usually Citrus, Corn for the most part
Location: SE Pennsylvania

PostPosted: Wed Jun 25, 2014 5:01 am    Post subject: Reply with quote

Great news Monique and I am so happy for you at getting back your life. I am going to give this a hard look since I have a PCP appointment next week and really do want to get some relief after so many years with CC. Maybe it is the thing I need. Glad to hear about the comfort at the book signing and also the dancing.

Love, Maggie
_________________
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
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Polly
Moderator
Moderator


Joined: 25 May 2005

Posts: 5122
User's local time:
2017 Aug 18 - 8:44 PM


Food Intolerances : gluten, dairy, soy, corn, yeast, chocolate, tomato, white potato, celery, sesame, carrot, yellow squash, lamb, pork, mango, strawberry, almond, cashew, vanilla, grapefruit, raspberry, avocado, mustard, paprika, cauliflower, cucumber, plum, and more!
Location: Maryland

PostPosted: Wed Jun 25, 2014 8:39 am    Post subject: Reply with quote

Monique and Leslie,

Wonderful news!

Love,

Polly
_________________
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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