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MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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An update on my LDN therapy: A Miracle? An unequivocal YES!
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Erica
Little Blue Penguin
Little Blue Penguin
Canada

Joined: 28 May 2014

Posts: 39
User's local time:
2017 Dec 14 - 10:14 AM


Food Intolerances : gluten/dairy/fibre/food needs to be boiled
Location: Canada

PostPosted: Fri Aug 04, 2017 8:13 am    Post subject: Reply with quote

Dear Members I would like to know if L.D.N. is a good option for me. Ican get it in Ottawa ,I livein Montreal . Iam on entrecort now once or twice a week . Ihave D once in the morning.I also have a malt lymphonia but we are only watching it now, I do not need any treatment for it. My energy level is good I work out every day I would try the L.D.N.instead of entrecort? Is this a good idea? or should I just stay on a low dose od entrecort?Iam also trying cannabis oils , has anyone tried this?
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wmonique2
Rockhopper Penguin
Rockhopper Penguin


Joined: 03 Aug 2012

Posts: 1021
User's local time:
2017 Dec 14 - 10:14 AM


Food Intolerances : GF, SF, DF,Walnuts, cherries, caffeine and another 30+ foods
Location: Georgia, U.S

PostPosted: Fri Aug 04, 2017 7:05 pm    Post subject: an update on my LDN therapy: A Miracle? An unequivocal YES! Reply with quote

Erica,

I got rid of entrecort when I started with LDN. Both of them together gave me constipation. I only take LDN now. I also got rid of Lialda and Alevil. Only LDN.

Go to IBD LDN facebook page if you are interested in talking to more people about it.

There is also Got Endorphins on FB.

I am almost 4 years in remission.
_________________
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
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sunny
Rockhopper Penguin
Rockhopper Penguin


Joined: 17 Jan 2008

Posts: 694
User's local time:
2017 Dec 14 - 7:14 AM



Location: Washington

PostPosted: Fri Aug 04, 2017 8:20 pm    Post subject: LDN Reply with quote

I started LDN 2 years ago to treat PMR (Polymyalgia Rheumatica) It was like a miracle and soon the joint and muscle pain lessened and the disappeared. I couldn't turn over in bed without help or pick up my cup of tea, let alone lift the teapot. I have stayed on 4.5 mg since then.
However , the LDN has not helped or even impacted my gut issues! It just seems to prove that our bodies are all different and react to various mess in very different ways.
If your doc is willing to prescribe LdN, it's certainly worth a try...there seem to be no side effects other than improved sleep and improved mood....
Sunny
_________________
"It is very difficult to get a man to understand something, when his salary depends upon his not understanding it. "
Upton Sinclair
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tcmarv62
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 27 Sep 2017
Posts: 52
User's local time:
2017 Dec 14 - 10:14 AM




PostPosted: Sat Oct 07, 2017 8:17 pm    Post subject: Reply with quote

This is a post from 2014-Is this still a valid med to consider? I also saw a similar post on FB today?
Following...
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:14 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Oct 07, 2017 9:14 pm    Post subject: Reply with quote

Hi tcmarv62,

It appears that LDN helps for most autoimmune diseases, but not for MC if MC is the only autoimmune disease that you have. If some other disease is preventing you from reaching remission with MC, then it's worth trying. But so far, no one has reported having any luck using LDN to treat MC specifically (alone).

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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tcmarv62
Adélie Penguin
Adélie Penguin
unknown IP

Joined: 27 Sep 2017
Posts: 52
User's local time:
2017 Dec 14 - 10:14 AM




PostPosted: Sun Oct 08, 2017 10:32 am    Post subject: Reply with quote

Thanks Again Tex! Thought the white coats might have finally stumbled onto a real solution/Fix for our conditions?
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:14 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sun Oct 08, 2017 10:51 am    Post subject: Reply with quote

You're very welcome. It shouldn't hurt to try, because LDN usually doesn't cause any digestive issues, but I wouldn't get my hopes up. MC is a tough disease to control.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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henrym
Adélie Penguin
Adélie Penguin


Joined: 30 Dec 2011

Posts: 71
User's local time:
2017 Dec 14 - 11:14 PM


Food Intolerances : gluten, casein, soy, peanuts, nuts (not sure which), avocado, lots of fruits, chocolate, ...
Location: China

PostPosted: Tue Oct 31, 2017 10:30 pm    Post subject: Reply with quote

I have tried it. It cured my gastritis in a couple of days. Sadly no luck on the MC..
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:14 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Nov 01, 2017 8:06 am    Post subject: Reply with quote

Henry,

Thanks for sharing your results. That's very helpful. But I'm sorry that it didn't help.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gigi Shelley

unknown IP

Joined: 28 Oct 2017
Posts: 2
User's local time:
2017 Dec 14 - 8:14 AM




PostPosted: Thu Nov 09, 2017 4:24 pm    Post subject: Reply with quote

Hello, I am learning so much from all of you on this site. I have a ways to go. Is wine okay with CC when things have improved? I am GF SF and I have made improvements since this flared up 5 weeks ago. I have not seen any info on alcohol. My daughters and my grandson have celiac disease. I took a genetic test which put me at a very high risk for celiac. I know that my daughters are very careful about drinking alcohol. I just want to be sure before I have wine. I am not ready for wine yet. I did read where turmeric helps with inflammation. I am using drops, and I do think it is helping. Thank you to everyone![/b]
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30837
User's local time:
2017 Dec 14 - 9:14 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Nov 09, 2017 5:45 pm    Post subject: Reply with quote

Gigi,

Larger amounts of alcohol can cause increased gut permeability (leaky gut), or make it worse, so it's best to do some healing before trying more than small amounts. If you have any histamine issues, alcohol will probably make them worse because it's a high-histamine "food". Wines are usually OK if you don't have any problems with the sulfites. If you do, look for low-sulfite wines.

You're very welcome.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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