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Need New Pain Medication
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SweetSydney
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PostPosted: Fri Aug 01, 2014 1:01 pm    Post subject: Need New Pain Medication Reply with quote

I have been taking Oxycodone since March. Just a small dose: 2.5 mg three times a day.
Well, now it is giving me undesirable side effects: dizziness & the big D.

I need a safe pain medication for my back pain.

What is safe, when you have LC?

Thanks in advance.

Sydney
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Sydney
Lymphocytic Colitis-12/17/2012
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JLH
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Food Intolerances : gluten, casein, soy, eggs, yeast; 3+ rice, chicken, corn, almond; 2+ tuna. oat, beef, cashew; 1+ white potato, walnut

PostPosted: Fri Aug 01, 2014 1:30 pm    Post subject: Tex's List of MC Safe Medications Reply with quote

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=19771
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SweetSydney
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PostPosted: Fri Aug 01, 2014 1:48 pm    Post subject: Re: Tex's List of MC Safe Medications Reply with quote

I don't see a "safe" pain medication on that list.

Sydney
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Sydney
Lymphocytic Colitis-12/17/2012
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tex
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Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Fri Aug 01, 2014 7:56 pm    Post subject: Reply with quote

Hi Sydney,

Unfortunately, they are no truly safe (while still being effective) pain medications, that I'm aware of.

Usually, the problem with the narcotic-based pain meds is constipation, rather than diarrhea.

There are a few herbal products sold as pain medications, but most of them don't seem to be effective enough for most of us. For example, the spice turmeric contains the active ingredient curcumin, valerian root is used as a tranquilizer, and traditional Chinese medical practitioners recommend eucommia bark for back and joint pain. Boswellia serrata has been used for centuries in Ayurvedic medicine as a treatment for arthritis. One member here tried to control his MC symptoms with Boswellia, based on research that claims that it is effective at treating Crohn's disease and UC, but he didn't seem to have any success with it.

Some people have reported benefits from acupuncture, but there are no really good options for controlling pain for many/most of us, unfortunately.

I'm sorry that I couldn't be more helpful.

Tex
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SweetSydney
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PostPosted: Fri Aug 01, 2014 8:31 pm    Post subject: Reply with quote

Hi, Tex.

I kind of suspected there weren't really any effective pain medications for people with LC.

I guess I am back to where I started from before my MS was diagnosed. I was thinking recently, I'd rather not have been diagnosed, because the Rebif caused my LC, and I can't take the pain meds that eased the pain before.

Thanks so much for your reply.

Sydney
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Sydney
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nerdhume
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Food Intolerances : Working it out

PostPosted: Sat Aug 02, 2014 3:43 am    Post subject: Reply with quote

Sydney,
I thought the same thing because I was on several pain meds for fibro and OA. When I got my diet under control I didn't need the meds any more. I am not sure about MS, but several PP have reported other symptoms improving once the colitis is under control.
I do take one Tylenol PM at bedtime (Benadryl is the PM part). Also Tylenol has an arthritis strength that my DH takes.
I also find a glass on red wine helpful for muscle relaxant.
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MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
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SweetSydney
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PostPosted: Sat Aug 02, 2014 8:55 am    Post subject: Reply with quote

Theresa,
Thank you-gluten free diet didn't help me. Just being careful to stay low fat, low fiber kept my LC under control.
Mayo Clinic says no Ibuprofen, no Acetaminophen with LC.
And with MS-I do need pain meds.
And I can't drink red wine. Sad
Sydney
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Lymphocytic Colitis-12/17/2012
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MBombardier
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Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Sat Aug 02, 2014 9:08 am    Post subject: Reply with quote

Hi Sydney,

I am wondering... how long did you try a gluten-free diet? Did you make sure all sources of gluten were gone from your house, including wooden utensils, cutting boards, aluminum pans, cast iron, etc., that become impregnated with gluten and cannot be cleaned? How about supplements, hair products, skin cream, lip balm?

There is also the possibility that you are sensitive to things like soy or other grains, so it seemed like going gluten-free didn't help. I'd like to encourage you to go gluten-free again and make sure there is no cross-contamination or hidden sources of gluten. For most of us, including me, going gluten-free is a huge step forward in becoming pain-free.
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Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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seeljanerun
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Food Intolerances : Gluten, Soy, Eggs, Nuts, Oats, Milk, Others

PostPosted: Sat Aug 02, 2014 9:10 am    Post subject: Reply with quote

Uh oh.

I have been having increasing muscular aches and pains, enough to interfere with my ability to fall asleep.

I have been taking ibuprofen or acetaminophen. So that is a no-no? What OTC are safe for MC? Are there safer prescription meds less regulated than oxy?

I have not been in remission for years so I haven't noticed an effect of taking the ibuprofen - I just always have watery D.
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seeljanerun
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Food Intolerances : Gluten, Soy, Eggs, Nuts, Oats, Milk, Others

PostPosted: Sat Aug 02, 2014 9:13 am    Post subject: Reply with quote

Nvm - I just saw Tex's extensive post. Tylenol is okay.

Is it problematic if you take it all the time?
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MBombardier
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Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Sat Aug 02, 2014 9:17 am    Post subject: Reply with quote

Tylenol (acetaminophen) is really hard on your liver. In fact, the amount of acetaminophen in Vicodin was cut in the last year or so because of that concern.
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Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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SweetSydney
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PostPosted: Sat Aug 02, 2014 9:32 am    Post subject: Reply with quote

MBombardier wrote:
Hi Sydney,

I am wondering... how long did you try a gluten-free diet? Did you make sure all sources of gluten were gone from your house, including wooden utensils, cutting boards, aluminum pans, cast iron, etc., that become impregnated with gluten and cannot be cleaned? How about supplements, hair products, skin cream, lip balm?

There is also the possibility that you are sensitive to things like soy or other grains, so it seemed like going gluten-free didn't help. I'd like to encourage you to go gluten-free again and make sure there is no cross-contamination or hidden sources of gluten. For most of us, including me, going gluten-free is a huge step forward in becoming pain-free.


Hi, Marliss.
I had been gluten free for several years, prior to my diagnosis of LC. I've had the biopsies, etc. Yes, my husband & I were very careful to make sure anything that might contain gluten were gone.

No supplements, without my G.I. Doc's approval. He is very knowledgeable about LC.

Thanks, but at 74#s, my G.I. Doc said he does not want me to go gluten free again.

My pain is from MS. And going gluten free didn't resolve nerve pain.

But thanks for your suggestion.

Sydney
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MBombardier
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Food Intolerances : Grains, dairy, legumes (especially soy), and eggs. Avoiding nightshades, cruciferous veggies, and high-histamine foods.
Location: Vancouver, WA

PostPosted: Sat Aug 02, 2014 9:46 am    Post subject: Reply with quote

I am really glad that you have a good GI doc who is knowledgeable about LC, especially in light of your MS. Sounds like he's a keeper!

Are you familiar with the Wahls Protocol? Dr. Terry Wahls, who has MS, went from not even being able to sit up in a wheelchair to biking long distances in five months. She eats a LOT of vegetables, which is difficult with MC, but her story about overcoming her symptoms may be encouraging to any of us with autoimmune issues. Here's a Huff Post article about her: http://www.huffingtonpost.com/meryl-davids-land...et_b_2258056.html
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Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
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SweetSydney
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PostPosted: Sat Aug 02, 2014 10:29 am    Post subject: Reply with quote

MBombardier wrote:
I am really glad that you have a good GI doc who is knowledgeable about LC, especially in light of your MS. Sounds like he's a keeper!

Are you familiar with the Wahls Protocol? Dr. Terry Wahls, who has MS, went from not even being able to sit up in a wheelchair to biking long distances in five months. She eats a LOT of vegetables, which is difficult with MC, but her story about overcoming her symptoms may be encouraging to any of us with autoimmune issues. Here's a Huff Post article about her: http://www.huffingtonpost.com/meryl-davids-land...et_b_2258056.html</td>


I was very fortunate to have been referred to my G.I. Doc many years ago, and yes, he is definitely a "keeper". He no longer accepts new patients, he's that busy. But he understands LC & MS, and treats me accordingly.

Yes, I am very familiar with the Wahl's protocol. If her protocol actually worked, do you know how many MSer's would be out of wheelchairs? I belong to an MS support group, and many people have followed her protocol, with absolutely no success.
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Sydney
Lymphocytic Colitis-12/17/2012
MS
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SweetSydney
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PostPosted: Sat Aug 02, 2014 11:29 am    Post subject: Reply with quote

http://theness.com/neurologicablog/index.php/can-diet-cure-ms/

There isn't a diet that can cure MS.

Sydney
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Sydney
Lymphocytic Colitis-12/17/2012
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