Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The only comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
Fodmap diet

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Information on Diet
 View previous topic :: View next topic  
Author Message
Maryse
Little Blue Penguin
Little Blue Penguin
United States

Joined: 05 Aug 2014

Posts: 34
User's local time:
2017 Sep 22 - 5:40 AM




PostPosted: Tue Aug 05, 2014 3:09 pm    Post subject: Fodmap diet Reply with quote

Hello,
I'm new here. My 20 yr old daughter was diagnosed with microscopic colitis last week and I'm reading as much as I can about it. I've just finished reading Wayne's book.
Her MD wants to treat her and seems very optimistic about a remission. My daughter's only symptom so far is loose bowel movements (all her life, really). We've spent years trying to eliminate foods and to get a diagnosis. Now we have one. Eliminating eggs, milk, soy, and gluten does not do the trick. Is it possible to get into remission without addressing the other food sensitivities?

I've been reading about the low Fodmap diet and was wondering if anyone has given it a try. The fodmap issues make sense to me, that's why I'm curious about finding out if this diet, that works well for IBS, can help too with IBD.

Thanks!!
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30469
User's local time:
2017 Sep 22 - 5:40 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Aug 05, 2014 5:57 pm    Post subject: Reply with quote

Hi Mary,

Welcome to the discussion board. If your daughter is already avoiding gluten, dairy, soy, and eggs, then a prescription from her doctor for budesonide (Entocort EC), which is probably what her doctor has in mind, would probably promptly bring remission. The problem is, unless she finds out what is still causing her diarrhea (D), and eliminates it, after her doctor weans her off the budesonide, the symptoms will return. Medications are only a temporary fix, because the inflammation is being caused by something in her diet, or something else she is using (such as lipstick, shampoo, conditioner, skin cream, oral contraceptives, etc., that contains gluten, soy, or something else that causes her to react (even some hormone treatments can trigger MC). Is she taking any medications or supplements? Many of them can trigger MC.

Yes, the Fodmap diet seems to help some members here. The problem is that we all have different sensitivities, so no single diet works for everyone. And if she has been having problems with D most of her life, then her digestive system may have to "learn" to have normal bowel movements. It may not happen automatically, because the longer we react (and the more damage we accrue) the longer it takes for the damage to heal.

The diet that works best for most of us is a paleo diet, or a modified paleo diet, but most modern versions of the paleo diet include far too much fiber, and too much fruit, and we have to limit fiber and sugar until our gut is able to do some healing.

Does she seem to have mast cell issues? Here are links to a few short articles about how mast cell issues are associated with MC for many of us:

What are mast cells?

How are mast cells associated with microscopic colitis?

How do I know if mast cells are causing problems for me?

How are mast cell issues treated?

And possibly the most important question is, how long has she been avoiding gluten? Anti-gliadin antibodies have a half-life of 120 days, so it can take a long time for the antibody level to diminish after gluten is eliminated from the diet. And the longer we have been reacting, the higher our antibody level will be, so the longer it will take to decline to a level below which we will no longer react.

Again, welcome aboard, and please feel free to ask anything.

Tex (Wayne)
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Maryse
Little Blue Penguin
Little Blue Penguin
United States

Joined: 05 Aug 2014

Posts: 34
User's local time:
2017 Sep 22 - 5:40 AM




PostPosted: Wed Aug 06, 2014 6:14 am    Post subject: Reply with quote

Hi Wayne,

Thanks so much for your reply. This is a complicated issue and we've decided to start working with a nutritionist specializing in IBD at the end of the year. In a few days my daughter will be leaving for Europe for a semester abroad and we feel it's not realistic to start figuring out what is causing her issues right now. Gluten free in Europe is hard.

I'm not sure about mast cells. I will do some reading as I don't really understand what they are. I'm grateful that her symptoms are mild and that she's young, so should have a good chance of healing her gut once we determine what she's sensitive to.

Do you find that EnteroLab's testing is reliable? It's very expensive, though.

I will keep learning with her and in a few months, we'll get to the bottom of this.

Best,

Maryse
Back to top
Maryse
Little Blue Penguin
Little Blue Penguin
United States

Joined: 05 Aug 2014

Posts: 34
User's local time:
2017 Sep 22 - 5:40 AM




PostPosted: Wed Aug 06, 2014 6:17 am    Post subject: Reply with quote

She doesn't have any reaction right after she eats so I'm not sure mast cells are involved. The only other symptom she has that might be related is dandruff and itchy eyebrows (sometimes). Are you aware of this being linked to MC?

Thanks again!!
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30469
User's local time:
2017 Sep 22 - 5:40 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Aug 06, 2014 8:42 am    Post subject: Reply with quote

Maryse wrote:
Do you find that EnteroLab's testing is reliable? It's very expensive, though.


Yes, they are a fully-accredited lab, regulated by the state of Texas, with many thousands of satisfied clients over the years that they have been offering these tests. They hold world-wide patents on these tests, and no other lab is licensed to use them.

This discussion board has been here for over 9 years now, and we have been extremely well satisfied with the test results that members here have received from them. Their stool tests are by far the most accurate, the most sensitive, and the most reliable (repeatable) of any tests available anywhere in the world for determining the type of food sensitivities that are associated with MC.

Maryse wrote:
The only other symptom she has that might be related is dandruff and itchy eyebrows (sometimes). Are you aware of this being linked to MC?


I've had those same symptoms for most of my life, but it never occurred to me that they might be associated with MC. They certainly might be, because skin problems (eczema, etc.), are definitely associated with MC. Of course, other things can cause those problems, also.

You're very welcome. I hope she enjoys her stay in Europe, and when she returns I hope that the 2 of you can track down the sources of her symptoms so that she can resolve them. Anytime you have any questions that I might be able to help with, please don't hesitate to ask.

All my best,
Wayne
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Information on Diet All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright 20052017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery