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Newbie, reading here a year helped so much...

 
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twirlitgirl
Adélie Penguin
Adélie Penguin


Joined: 21 Aug 2014

Posts: 176
User's local time:
2017 Aug 21 - 7:54 AM


Food Intolerances : gluten,dairy,corn,soy, nightshades these are the ones known
Location: Canada

PostPosted: Thu Sep 11, 2014 8:20 am    Post subject: Newbie, reading here a year helped so much... Reply with quote

staying positive and
most of all doing the best you can with what you know right now. the future isn't here yet, and the past is gone and can't come back all we have is the very present moment we are in right now and our attitude with it. I choose to stay positive and stride for living the best possible way I can with head held up and not be ashamed of this disease anymore. I don't have to explain myself to make excuses for my many foods I don't eat to someone who doesn't understand . I am done with that, I have to do what I have to do to get through eating each day something that makes me smile and feel good about myself. This road is not easy to get to a place where you like yourself again and feel comfortable around others eating the foods you yourself used to eat, takes time, we are not hares in this , we are the tortoise and go at a slow and steady pace to get to where we are going with trial and errors
flares and all, but I believe we are the cutting edge to show the way for those that are still in denial. I was one of those people who
wouldn't believe it. I think my body just gave up with the small signals and when my yearly physical pap test was painful and I was told something was really wrong. My ultrasound revealed a huge cystic mass in my ovary so a complete hysterectomy was performed for a lump 8 times the size of my ovary to show me my body was under attack and it was defending itself , it was not cancer and the surgeons are at a loss to know what it was in there, but I am glad it is all out so nothing left to cause me problems in future. I do not know if my colitis was just lurking underneath it all and coupled ti leaky gut my whole life changed.
two months after surgery I was rushed to ER in ambulance with cramping and given a full episode of antibiotics and
on an IV getting it administered went through chills and body temperature dropping very low , it was not a fun place to be. I was released that night diagnosed as a UTI and sent home to just take it easy for a few days and gain my strength back again, so I started eating again
and then the explosive diarrhea started and continued for 8 weeks no matter what I ate, I was given a battery of tests once again for parasites, C difficile everything came back negative. so, my MD ordered a colonoscopy for me to find out what was going on,
my colonoscopy biopsy diagnosed LC and the GI told me oh, that is nothing to worry about , go home and eat whatever you want do this pepto bismol 6 tablets a day for 8 weeks and you will be good as new, it protects your intestine like a band-aid on a cut and you won't have any more problems, there is no celiac or chrones so you are in good shape. this microscopic colitis is exactly as the word describes just microscopic you are not 90 don't worry about your poops they will be black with the pepto but other than that you will be good as new afterwards, I don't need to see you back here again.
I was floored leaving the office and did what he said and for the first two weeks I continued eating anything and everything I did before and the pepto with it, the diarrhea did stop but the constipation set in, and I didn't like the new sensation it was having on me, I had cramps now for a different reason, but I had come on here and found this forum and immediately stopped the gluten and continued the pepto for another 4 weeks and the constipation continued
yes I would get relief but my stools were not normal and that frustrated me . So, I thought okay, even thought the pepto bismol did help other people it wasn't helping me ,so I will stop the pepto and continue to not eat gluten and the stools changed to a little more normal and I was having the cramping but not as bad anymore.
I then went to see a naturopath to get some advice on why I was so tired and he put me on some natural adrenal support tablets,
liver support, digestive enzymes, glucosimin, vitamin B, Vitamin D also a concentrated form of probiotics and told me that I had all classic signs of leaky gut because even though I had stopped gluten, other foods were causing me problems so he suggested that I also give up , dairy, corn, nightshades and go back to see him in a few months so here I was faced with a huge task of figuring out meals leaving out my many staples that I had grown up with. So, it was a huge learning curve for me and I went through the denial , this is all a dream ( nightmare was more like it) and I need to wake up but no I walked out of there in a total numbness that there wasn't any easy fix for this, in order to heal and get my life back to a new normal I had to change my lifestyle to figure this out.
I will not go into what I gave up the list is to long but I will say I gained a new perspective on life that has been invaluable, no matter how hard it seemed to be at times to get something to eat at least there were options and I could eat food that I cooked myself and there was some real satisfaction in knowing whatever I was putting in my mouth I knew the actual ingredients that were in there, I was in control again, something that was so lacking when I was going through my explosive diarrhea weeks of the past.
I make a choice each morning when I awaken, okay is this going to be a day where I feel sorry for myself about what I can't eat anymore or am I going to feel so thankful that I have the control of what goes in my system the quality of food , the quantity of food and most of all the kind of food that nourishs my body and is no longer attacking it. I am doing the best with what I know right now, do I have this figured out "NO," this very minute and if I happen to flare and figure out another food sensitivity , that is knowledge I will gladly accept as another stone in the path to replace on my way in my life I am living. We only have one life and we have to cherish what we have been given
There is always someone out there who has it much worse than me. For all of the compromises I have had to go through, it is nothing compared with living one day in the life of a suffering person who wakes each morning to not having enough food to eat to be nourished and no help to get that food. So, each day is a blessing to me and I get out of bed with these words in my head.
today is a possiblity for anything to happen and it is to be lived with joy and appreciation, afterall , I did wake up and I am alive.
Too many lives are cut short from illness or tragedy so I must live my life to be grateful for this precious gift I am given each morning to just, "be here".
Wow, I don't know what happened but I just felt like sharing this morning. I apologize for the length these are my feelings on my journey so far with this disease and I say bring on every new day I am ready to face anything and do it with a smile sure as the name says twirlitgirl, I like to twirl when nobody is watching and just feel like a little girl again. Do what makes you feel like a kid again and laugh at yourself, it feels good to laugh and be carefree, yes, even with this disease. I realize for everyone this journey has been different I can only give my opinion of mine so far. I appreciate all everyone's support and I enjoy reading each and every post and a big hug to all those who first started this amazing helpful place to turn to when needing advice and support,and talk in words written on a computer, it is the best thing since gf sliced bread made with ingredients that we can tolerate that is.. well you know what I meant. Ha! Thank you for taking precious time out of your day to read this, and I hope you all have many wonderful ups on your journey with this disease, one day at a time.
slow and steady and like Frank Sinatra , sing at the top of your lungs " I did it my way" we are all different and gain so much from eachother's experiences. thank for all you have done to help me find my path. I am on my way and my journey continues...........

cheers
Lora
Smile Smile
_________________
diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
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Grahm
Gentoo Penguin
Gentoo Penguin
United States

Joined: 05 Jun 2014

Posts: 254
User's local time:
2017 Aug 21 - 8:54 AM


Food Intolerances : gluten, dairy, eggs, and possibly corn
Location: Lexington, KY

PostPosted: Thu Sep 11, 2014 8:52 am    Post subject: Reply with quote

Cheers to you Lora, so glad you are feeling better. I love your attitude. It sure helps in our journey....

Love,
Connie
_________________
Live, Laugh & Love Much
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Maryse
Little Blue Penguin
Little Blue Penguin
United States

Joined: 05 Aug 2014

Posts: 34
User's local time:
2017 Aug 21 - 7:54 AM




PostPosted: Thu Sep 11, 2014 9:21 am    Post subject: Reply with quote

Thank you, Lora. It's a powerful post that helps me see the MD diagnosis in a new light. May you continue to improve and feel in control of your life. ♥
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30283
User's local time:
2017 Aug 21 - 7:54 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Sep 11, 2014 9:29 am    Post subject: Reply with quote

Hi Lora,

Welcome to our Internet family. You were indeed inspired this morning to write such a long post, but those words ring true for so many of us here.

Thank you for sharing your inspiring thoughts. Messages such as yours make the day go by so much more smoothly for all of us. And you are right — we are lucky. We could have a serious disease instead of one that is just microscopic, as your doctor would say. Laughing

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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twirlitgirl
Adélie Penguin
Adélie Penguin


Joined: 21 Aug 2014

Posts: 176
User's local time:
2017 Aug 21 - 7:54 AM


Food Intolerances : gluten,dairy,corn,soy, nightshades these are the ones known
Location: Canada

PostPosted: Thu Sep 11, 2014 9:38 am    Post subject: Reply with quote

thank you Connie and Maryse, for posting such kind words. I won't start writing again too much or it will turn into another sitting down with a cup of coffee just to read it ha! I appreciate this forum more than I could ever express. You both have a great day and
twirl like you mean it Ha! take care

cheers
Lora waving
_________________
diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
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twirlitgirl
Adélie Penguin
Adélie Penguin


Joined: 21 Aug 2014

Posts: 176
User's local time:
2017 Aug 21 - 7:54 AM


Food Intolerances : gluten,dairy,corn,soy, nightshades these are the ones known
Location: Canada

PostPosted: Thu Sep 11, 2014 9:56 am    Post subject: Reply with quote

Hi Tex,
thank-you for that warm welcome, I am just smiling to be part of this forum and some place to talk about this disease where there is support and understanding , I appreciate that so much , I will help any way I can
sending high 5's to you all and of course twirling..... ha!

cheers
Lora dance dance
_________________
diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
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CathyMe.
Rockhopper Penguin
Rockhopper Penguin
United States

Joined: 27 Feb 2012

Posts: 582
User's local time:
2017 Aug 21 - 7:54 AM




PostPosted: Fri Sep 12, 2014 6:45 am    Post subject: Reply with quote

Welcome Lora. So glad you've been able to take back control. Love your spirit!
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JFR
Rockhopper Penguin
Rockhopper Penguin


Joined: 30 Mar 2012

Posts: 1263
User's local time:
2017 Aug 21 - 8:54 AM


Food Intolerances : gluten, dairy, soy, eggs

PostPosted: Fri Sep 12, 2014 7:05 am    Post subject: Re: Newbie, reading here a year helped so much... Reply with quote

twirlitgirl wrote:
I make a choice each morning when I awaken, okay is this going to be a day where I feel sorry for myself about what I can't eat anymore or am I going to feel so thankful that I have the control of what goes in my system the quality of food , the quantity of food and most of all the kind of food that nourishs my body and is no longer attacking it.


This is perfectly said. We can choose the attitude we bring to each and every day.

Jean
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twirlitgirl
Adélie Penguin
Adélie Penguin


Joined: 21 Aug 2014

Posts: 176
User's local time:
2017 Aug 21 - 7:54 AM


Food Intolerances : gluten,dairy,corn,soy, nightshades these are the ones known
Location: Canada

PostPosted: Fri Sep 12, 2014 7:49 am    Post subject: Reply with quote

Hi Cathy & Jean,
thank- you for taking the time to read my post, I appreciate your kind words and hope you both have an excellent
weekend of relaxation and joy in your lives.

cheers
Lora















.
_________________
diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
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