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A Question For Those Who Have A MTHFR Gene Mutation
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Is your red cell count (and associated red cell test numbers) almost always in the normal range?
Yes.
70%
 70%  [ 7 ]
Usually, but occasionally they're low.
10%
 10%  [ 1 ]
Frequently (but not most of the time), they're low.
0%
 0%  [ 0 ]
No, most of the time they're low.
0%
 0%  [ 0 ]
No, they're almost always low.
10%
 10%  [ 1 ]
No, they're occasionally high.
0%
 0%  [ 0 ]
No, they're frequently high.
0%
 0%  [ 0 ]
No, they're almost always high.
10%
 10%  [ 1 ]
I'm not aware that I have any MTHFR gene mutations.
0%
 0%  [ 0 ]
Total Votes : 10

Author Message
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
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2017 Nov 21 - 4:01 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Oct 22, 2014 11:45 am    Post subject: A Question For Those Who Have A MTHFR Gene Mutation Reply with quote

Hi,

I'm curious about how common out-of-the-normal-range red cell counts might be with these gene mutations.

Thanks,
Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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dfpowell
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Joined: 03 Apr 2013

Posts: 486
User's local time:
2017 Nov 21 - 4:01 AM


Food Intolerances : Gluten Free
Location: Lakeville, Minnesota

PostPosted: Wed Oct 22, 2014 1:59 pm    Post subject: Reply with quote

I am homozygous for the MTHFR A1298C mutation and my RBC has always been high normal.
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Donna

Diagnosed with CC August 2011
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Zizzle
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Joined: 22 Jul 2010

Posts: 3483
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Food Intolerances : gluten, dairy, soy, sesame seeds, buckwheat, amaranth, walnuts, peppers, CORN!

PostPosted: Thu Oct 30, 2014 2:57 pm    Post subject: Reply with quote

I just ordered the test kit! But my red cell values are always normal. My white counts are always low.
_________________
1987 Mononucleosis (EBV)
2004 UCTD post-partum
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2012 Dermatomyositis
2013 Modified Paleo Diet
2014 Low Dose Naltrexone
2015 Megaspore and Culturelle probiotics
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Gabes-Apg
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Joined: 21 Dec 2009

Posts: 7216
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Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Oct 30, 2014 4:00 pm    Post subject: Reply with quote

Interesting question...

just reviewed my results, and they are always in the HIGH range of normal...(for past 6 years)

I am not MTHFR 1298/677, but do have methylation issues.
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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tex
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Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 4:01 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Oct 30, 2014 4:51 pm    Post subject: Reply with quote

Zizzle,

I sent 'em a tube of spit this morning. Laughing

Tex
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cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
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User's local time:
2017 Nov 21 - 8:01 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Thu Oct 30, 2014 5:11 pm    Post subject: Reply with quote

oohhhh cant wait to see what results people get!!!
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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AnnW
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PostPosted: Thu Oct 30, 2014 5:46 pm    Post subject: Re: A Question For Those Who Have A MTHFR Gene Mutation Reply with quote

tex wrote:
Hi,

I'm curious about how common out-of-the-normal-range red cell counts might be with these gene mutations.

Thanks,
Tex


Tex:

RBC counts are not greatly altered by MTHFR gene mutations unless there is a actual deficiency of folate or B12. It also depends on what other defects co-exist. More often these defects present with vague symptoms such as increased food/chemical sensitivties, elevations in homocysteine, tendency towards autoimmune disorders (no surprise there) and mood swings.

Dr. Ann
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 4:01 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Oct 30, 2014 6:41 pm    Post subject: Reply with quote

Thanks. The responses certainly seem to bear that out.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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ldubois7
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Joined: 19 Feb 2013

Posts: 1269
User's local time:
2017 Nov 21 - 4:01 AM


Food Intolerances : Gluten, dairy, eggs, soy
Location: Pennsylvania

PostPosted: Thu Oct 30, 2014 6:47 pm    Post subject: Reply with quote

Tex,

I messed up your count. I hit the no, it's almost always low. Actually my RBC is high. But, in the breakdown .....my MCV, MCH, & MCHC are low & RDW-CV is high. So, am I both or high? Can you change my vote?

I am compound hetero. for 1298 & 677.

I also have Thallasemia.

Thanks for the info, Ann! Maybe my new test results will show the folate or B12 issues.
_________________
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 4:01 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Thu Oct 30, 2014 9:45 pm    Post subject: Reply with quote

Hi Linda,

After a while, such data tend to become buried in the database and can be very difficult to track down, but since votes are recorded in the polls anonymously (without a direct reference to member IDs), that greatly simplifies the job of tracking down a poll vote, and since there weren't many votes yet, and this was the last poll entered, I was able to track down your vote and change it. I hope I changed it to the selection that you preferred.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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ldubois7
Rockhopper Penguin
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Joined: 19 Feb 2013

Posts: 1269
User's local time:
2017 Nov 21 - 4:01 AM


Food Intolerances : Gluten, dairy, eggs, soy
Location: Pennsylvania

PostPosted: Fri Oct 31, 2014 6:05 am    Post subject: Reply with quote

Yes, thank you Tex. That is more accurate. Laughing
_________________
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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brookevale
Adélie Penguin
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Joined: 03 Mar 2014

Posts: 75
User's local time:
2017 Nov 21 - 5:01 AM


Food Intolerances : Gluten, Dairy, Fructose
Location: United States

PostPosted: Sat Nov 01, 2014 4:48 pm    Post subject: Reply with quote

Are you all doing the 23andme? My naturopath ordered a MTHFR test. I am heterozygous for both A1298C and C677T. I can't mail out the 23andme test for all the other gene mutations until I visit my son at college in Vermont next weekend. New York State doesn't allow saliva samples to be sent out. Makes no sense. Anyhow, I tried methyl protocol and had a horrible time. I am showing classic signs of a COMT, SOD, and/or CBS mutation. I am especially finding that I am sensitive to sulfur foods, sulfites/sulfates. Therefore, it would make sense the methyl protocol didn't work. If there is a defect in the sulfation pathway (CBS), that needs to be addressed first before MTHFR can be addressed. For now I am doing a low sulfur diet but losing weight again. Not good. If this is what you are all talking about, I should have my results in a month.
_________________
Strongly believe I have a form of MC that began to flare December 27, 2013.
44 year old married mom to three sons ages 26, 17, and 2, a 21 year old stepdaughter, and 18 year old stepson. I also have a beautiful granddaughter who is one.
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Gabes-Apg
Emperor Penguin
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Joined: 21 Dec 2009

Posts: 7216
User's local time:
2017 Nov 21 - 8:01 PM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Sat Nov 01, 2014 8:58 pm    Post subject: Reply with quote

Brooke, it is the same for pyrrole, the treatment protocol causes issues if there are deficiencies / excess of toxins.
At least you are figuring out the puzzle, piece at a time.
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Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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irisheyes13
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Joined: 28 Jan 2011

Posts: 212
User's local time:
2017 Nov 21 - 5:01 AM


Food Intolerances : Gluten, Casein, Soy, Eggs & Yeast so far...
Location: Pittsburgh, PA, United States

PostPosted: Wed Nov 05, 2014 2:43 pm    Post subject: Reply with quote

I'm homozygous 677. RBC's are typically within normal range but tend to run on the low end of normal or slightly below normal with WBC.

Sorry I haven't posted in a long time but I do jump on to read posts every once in a while.
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Kelly

Believe deep down in your heart that you are destined to do great things~ Joe Paterno
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tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 30717
User's local time:
2017 Nov 21 - 4:01 AM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Nov 05, 2014 3:25 pm    Post subject: Reply with quote

Hi Kelly,

It's good to see a post from you again, and thanks for the information for the poll.

How in the world are you doing these days? I'm hoping that your long absence is a sign that you are doing very well.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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